Discussions By Condition: I cannot get a diagnosis.

Severe memory loss problems, cannot get a diagnosis

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: David78
  • July 9, 2010
  • 03:29 PM

About five months ago i begun experiencing a severe shift in consciousness. At first it felt like my perception of reality was fading away, then i realized it was actually my memories that were receding (including memories lasting seconds, which is why it felt like reality itself was receding since i cannot remember things very well after directly experiencing them, which is the same as not being able to experience them in the first place), as if something was pulling away my consciousness. All my life experiences have become fainter and fainter, and new experiences actually feel even more vague and distant, so that i feel as if my conscious mind was literally disappearing. There is no other way to describe this. It literally feels like there is this big black cloud where my memories and thoughts used to be, as if i was dying a bit every day instead then all at once.

The thing that has made a diagnosis extremely hard is that i can remember facts perfectly well. I could sit down and try to learn the rules of some game, or i could be reading a technical or medical article, and still remember the same amount of information i would have been able to memorize before the onset of those symptoms, yet, my memory of the experience is almost non existent. Because i can still remember facts however i can still act normal on the outside, which has made doctor dismiss my concerns as unimportant, particularly due the lack of physical anomalies. I had blood works done, thyroid tests (including ultra sound, but no anti-body test yet, just THS and free thyroid hormone), glucose tests, cortisol test and even an MRI, and so far nothing has showed up. The only physical symptom i experienced is that prior to the onset of my memory problems, my feet swell up on two occasions (this had never happened before), and apparently i gained 22 in a very short period of time (about six weeks), which i haven't been able to shed yet. This might indicate some problem with water retention, but i have no idea if those symptoms are just incidental. I also experienced a great deal of stress and anxiety for a long time and developed a panic disorder one year prior to when those problems begun, which makes my doctor glee in joy as they quickly try to dismiss my issues to some psychiatric disorder, which might even be true, but that's besides the point. Either way, i just cannot convey the gravity of my problems and doctors simply appear uninterested in trying to get to the bottom of this. And those symptoms get worst every day. Right now i am at a point where my memories are almost non existent, and i'm just in a constant state of panic. I feel as if this doesn't stop soon, i may eventually develop total retrograde and anterograde amnesia and spend the rest of my life in a near vegetative state, where only the present exists. I cannot think of a worst fate.

I'm sorry if this post appears to be rambling away, but i cannot think straight and i'm just at the point of desperation. BTW, i don't know if this may help, but i found that drinking Caffeine and taking St John Wort and Ginko Bilboa in tea form all aggravate my symptoms. I have no idea why this may be the case but i just thought it might help.

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14 Replies:

  • Can anybody help me at all? I cannot be the only person in the worst who suffers from this kind of symptoms.
    David78 1 Replies Flag this Response
  • Maybe you should ACT how you feel the next doctors appt. Act confused. forget purposely from one minute to the next. You'll probably get admitted and seen by a specialist that can actually test and possibly diagnose you... Good luck and God Bless!!!!!!
    Anonymous 42789 Replies Flag this Response
  • I have a couple questions: Of course I have to ask if you have ever had any toxic exposure to chemicals, perhaps in a work environment? Of course, I'm sure you've also been asked if you've taken any psychotropic drugs, such as acid, mushrooms, or anything from the amphetamine family such as ecstatsy or methamphetamines? If so, how much and for how long? Also, have you ever taken any psychoactive prescription drugs for any condition, or any neurological conditions or seizure disorder? If you try to visualize something, just completely make up a fanstasy in your own head, can you remember that with your regular degree of clarity? Given that you describe a sudden onset of weight gain, it is plausible that your symptoms may be metabolic in origin and may be causing something that is typically referred to as a metabolic encephalopathy. These can range from diabtes to liver disease to Addison's disease or cushing's syndrome. Also a check of your thyroid seems like a perfectly rational step to take as well.
    gregtfish 67 Replies Flag this Response
  • I forgot to add that if your symptoms are worsened by caffeiine, it may indicate that your symptoms are being worsened by a change in heart rate or blood pressure, esspecially if your weight gain is caused by a fluid overload caused by systemic or even portal hypertension. My basic point is that you may need to look outside the brain for the underlying cause of your symptoms, perhaps somewhere in the area of endocrine or metabolic disorders.
    gregtfish 67 Replies Flag this Response
  • on the other side of the fence.. gregfish may be right . Another way you thou can also look at this If the issue is stress and anxiety .. caffeine can make the symptoms worst. Stress and anxiety can also cause weight gain .. are you sure you arent eatting more than you used to eg comfort eatting or exercising less
    taniaaust1 2267 Replies Flag this Response
  • I am experiencing the EXACT!!! same thing and I have also gotten blood tests done, all my hormones are normal. Ive gotten an MRI done, everything is normal. I feel like a black cloud has covered my consciousness and my memories are distant. Im often very forgetful and cant concentrate. The doctors just give me the run around shifting responsibility to other doctors. I feel like im slowly decaying or dying or something. The worst thing is it appears to be getting worse as time progresses. I began to notice having these problems about 8 months ago.Im 25 years old, 200lbs, 6'1" healthy male. David, did you ever find help? Can anyone help me in the right direction?
    Evan4706 3 Replies
    • November 10, 2010
    • 03:02 AM
    • 0
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  • Research Kundalini Awakening online. This will help you understand your condition.Also, I would book a healing session with a practitioner at Dahn Yoga (www.dahnyoga.com) if you have one in your area. They helped transition me through a similar experience. Your energy is changing. It is a rough process. But it can be gentler.Also, accupunture helped me a lot. It took me three tries with three different practitioners to find one that was advanced enough to help me. You are going through something very special, and very specialized. Not many people can understand because they haven't been through a shift yet. Best of luck.
    Anonymous 42789 Replies
    • November 11, 2010
    • 03:00 AM
    • 0
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  • Could your symptoms be due to anxiety?I've suffered anxiety/panic attacks for over 25 years.It can manifest in different ways, but it usually begins with persistant ,upsetting thoughts.I've always had a high IQ, but when my kids were born, my 'brain fog' attacks worsened due to lack of sleep & being a sole parent,difficult circumstances etc. This led to me not being able to think or remember things i'd always remembered eg- bank pin no., which child had chicken pox, etc.This heightened my anxiety & left me feeling hysterical (which exacerbated everything!)I was on my own with 2 babies relying on me to make a life for us, and here was my mind letting us all down.I also felt 'detached' as though I wasn't in the 'moment'My body is so used to running in this state now, hypervigilance etc, that i am now resigned that i will never be who i was.I hope u get help soon & nip this in the bud, as when left, the symptoms can worsen & become habitual, as in my case.Its common sense that a tired or distracted mind can't concentrate, so as hard as it might be, TRY to relax, try to accept the uncomfortable frightening thoughts/symptoms as just that- frightening thoughts by a tired worried mind. Let them pass through, in time u will see they lose their power. The more attention u give these feelings, the harder u will find memory recall,concentration etc., which then only serves to escalate your anxiety.I really hope you can try this. I truly believe if I had found this approach years ago, I could have got on top of my anxiety, but I had countless therapists that didnt practice this, and what they did suggest never worked for me ,adding to my despair.Good luck & let us know how u get onxx
    Anonymous 42789 Replies
    • November 12, 2010
    • 09:51 PM
    • 0
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  • Thank you so much for your response, i pray that your right. It doesn't feel like it comes in waves or attacks its like i wake up and i never really wake up if that makes any sense. Im 100% in this cloud and everything seems to come from a far distance. Its not like it goes away if i dont think about it. I really dont feel anxiety other the fact that it feels like im on drugs or something. It makes no sense to me, its almost like im loosing touch with reality and im slowly slipping into a black hole. Is this what you felt? Ive pretty much come to terms with this and accepted this as my fate although i feel like im getting ripped off in life. I used to be normal. I wish it were something like a chemical imbalance and i could take something and i would be normal again. How did this happen to me, where did it come from?
    Evan4706 3 Replies
    • November 18, 2010
    • 11:22 PM
    • 0
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  • I don’t think I can help you but I have been experiencing symptoms very similar. I am a 22 year 150 lb male with no drug use. I experience a clouded thought process where everything seems more distant. I also sometimes experience a loss of reality where something in my mind interprets my thoughts as real. I will have thoughts similar to daydreaming and my mind will interpret them as real. It is difficult to explain but it is not the context but something my brain that interprets it as real where it feels wrong and is not. I also feel as though my mind will turn inside out, like some kind of inverse of being high. I don’t know how to explain it, but it is a very bad feeling. It is like my mind and eyes loose focus and my mind is turning inside out. Initially when it happened I would feel a wave of panic, like an anxiety attack come over me as though it was not supposed to happen or as though I had sustained brain damage and it would be permanent. I also felt like it would reoccur and I was fearful to sleep because I thought my mind would loose control. Each time this happened my symptoms felt worse. My mind would also not be able to think. The first time it happened I kept repeating words to occupy thoughts in my head. I also stepped outside and everything looked distant to the point where I almost didn’t recognize it. I also realized when I experience symptoms, I don’t get headaches. I just feel a pressure in the front of my head. I often put my hand to my forehead and feel as though it is very warm. I also have felt that caffeine does not help along with alcohol, it only intensifies the symptoms. After drinking I would get the feeling as though my mind would turn inside out. After drinking I would wake up in the morning and not be able to think for about 20 seconds or so. I also found that I experience depression. I have never once before this experienced depression in any way or an anxiety attack. After the first time it happened I stopped drinking for months and the symptoms have continued for about 6 months. The feelings are always there but vary with intensity day by day or at certain periods of the day. I initially went to the hospital and received an MRI, bloodtest, and urinalysis that all came back negative. I then had a more accurate bloodtest and MRI done which came back negative again. I also had an EEG and a sleep study done that monitored brain waves, this also came back negative with the exception that I entered REM earlier than normal. None of the doctors have an idea what I have, only speculation.I have looked at schizophrenia, alcohol induced schizophrenia, narcolepsy and many other things but nothing fits. Hopefully something can be figured out.
    Anonymous 42789 Replies
    • December 10, 2010
    • 09:09 AM
    • 0
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  • Evan I am sorry you are feeling this way. I have been experiencing the exact same symptoms for 6 months now. I have had tests run several times all coming back negative. I have had no luck with help or figuring this out until recently. I have found that this is not something that only a few people experience. What I believe you have has been referred to as Deja Vu, depersonalization, or simple partial seizures. Please watch this video because I believe personal testimony aided me more than sorting through a giant list of varying symptoms. I hope this helps.http://www.youtube.com/watch?v=lkd5cCEE1g4
    Anonymous 42789 Replies
    • December 10, 2010
    • 07:58 PM
    • 0
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  • Thank you so much for your response, i pray that your right. It doesn't feel like it comes in waves or attacks its like i wake up and i never really wake up if that makes any sense. Im 100% in this cloud and everything seems to come from a far distance. Its not like it goes away if i dont think about it. I really dont feel anxiety other the fact that it feels like im on drugs or something. It makes no sense to me, its almost like im loosing touch with reality and im slowly slipping into a black hole. Is this what you felt? Ive pretty much come to terms with this and accepted this as my fate although i feel like im getting ripped off in life. I used to be normal. I wish it were something like a chemical imbalance and i could take something and i would be normal again. How did this happen to me, where did it come from?Hi Evan. I have been experiencing the exact same symptoms for about 6 months now. I have been lost as well, being that I've had multiple tests done and seen doctors with no help. I would check out something called Deja Vu or simple partial seizures. I found that personal testimony has been more beneficial than sites listing a giant list of varying symptoms. Check out this video and I hope it helps. http://www.youtube.com/watch?v=lkd5cCEE1g4
    Anonymous 42789 Replies
    • December 11, 2010
    • 08:45 PM
    • 0
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  • I'm going through this right now.I've been through blood tests for antibodies,MRI and EEG tests, multiple doctors appointments and referred to a neurologist and got told it's a b12 deficiency. Im a unistudent studying biological sciences and knew that b12 affects the central and peripheral nervous system which was not being affected! She gave me cobalamine which is over the counter stuff and told me sue would see me in 4 months! I'm not getting just annoyed and angry at this but also getting scared. I hate feeling unaware I hate feeling that I will have a funny turn at any second. Just hang in there. Something will be found. I know exactly what you're going through
    Anonymous 42789 Replies
    • January 6, 2011
    • 00:27 PM
    • 0
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  • I'm going through this right now.I've been through blood tests for antibodies,MRI and EEG tests, multiple doctors appointments and referred to a neurologist and got told it's a b12 deficiency. Im a unistudent studying biological sciences and knew that b12 affects the central and peripheral nervous system which was not being affected! She gave me cobalamine which is over the counter stuff and told me sue would see me in 4 months! I'm not getting just annoyed and angry at this but also getting scared. I hate feeling unaware I hate feeling that I will have a funny turn at any second. Just hang in there. Something will be found. I know exactly what you're going throughThis is going to sound whacked out to all you 'shifters'...but consider it anyway please. These symptoms your getting are going to lead to a new way of life not only for yourself but for our planet. We are transitioning from one reality into another. You need only to look at the world. Cyclones, Earthquakes, Global Uprisings...things are not 'normal' on the planet today. There is an unveiling taking place, a consciousness shift that will reform our way of life. The origin of the word apocalypse (look it up) is just that...the unveiling, not doom, gloom and armagedon. Don't panic...flow with the shift, understand that when you need to know something, you will know it. Past present and future are illusions created by your brain and we are just deciding to reinvent this particular illusion. If you want scientific evidence and not just new age mumbo-jumbo...check out http://www.ted.com/talks/vs_ramachandran_the_neurons_that_shaped_civilization.html or Derek tastes like Earwax..http://www.realtor.ca/PropertyDetails.aspx?PropertyID=10226656&PidKey=-713365387 or Hugh Everett and the MWInterpretation and or David Eaglemans research on the brain's manufacturing of time...Time is a creation of our brains....our brains are in the process of rewiring. You are not alone, perhaps a little ahead of schedule from the majority of us...but we'll catch up! Even I, who understands the process somewhat have moments of anxiety...breathe deeeeeeply.
    Anonymous 42789 Replies Flag this Response
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