Discussions By Condition: I cannot get a diagnosis.

severe malnutrition due to chronic diarrhea

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: Anonymous
  • November 13, 2007
  • 00:10 PM

I have been diagnoised with gluten allergies so I follow a very strict gluten free diet, however no matter what I eat I continue to have chronic diarrhea. I use Imodiom but that just plugs me up and the next day watch out. I have lost a significant amount of muscle mass and weight. I feel like I'm close to death. Anyone out there with any recommendations.

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16 Replies:

  • It sounds like you either still have an undiagnosed food allergy, Irritable bowel syndrome, or have missed something that still has gluten in your diet. Its not uncommon to have several food allergies at one time.I highly recommend going back to the allergy specialist that diagnosed you for further testing. If nothing pops up there, then id ask for a referral to a Gastroenterologist.
    CassAnn 25 Replies
    • November 14, 2007
    • 01:04 PM
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  • I agree... There could be alot of things going on that hasn't been looked into yet. Let your doctor know you are still having trouble. Kiera
    Anonymous 42789 Replies
    • November 14, 2007
    • 01:11 PM
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  • thanks for your response, however, I've had all the foods tested and have been seen by a Gastroenterologist with no luck.
    Anonymous 42789 Replies
    • November 18, 2007
    • 05:28 PM
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  • How often do you use the toilet, and when (right after meals?)?Do you have any other symtpoms besides diarrhea?
    Anonymous 42789 Replies
    • November 18, 2007
    • 07:26 PM
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  • Hi Sorry to hear your story. I too have lost an incredible amount of weight. I have been ill for 4 1/2 years now. I'm new to this site and I'm just getting to know my way around. I'm here to tell people my story. My first post is my history and what's been ailing me. I have had every test under the sun through my GP, hospital and they found nothing apart from the h-pylori bug. (You could check out my "4 1/2 years of suffering DISCOVERY" post, (UNDER GI), it's a long post and tells my entire story. I have been to ***l and back literally! My problem is parasite related! I had stool samples done by my GP (nothing found), I actually took in a worm and it was sent to the lab and they said it wasn't a worm. IT WAS!! I won't go into detail my history, it's too long, my first post tells my entire story. http://forums.wrongdiagnosis.com/showthread.php?t=23193 I'd be interested to know what other symptoms your suffering from. I wish you well. 2 Have Hope.:D
    2 Have Hope 22 Replies
    • November 18, 2007
    • 10:45 PM
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  • I have been diagnoised with gluten allergies so I follow a very strict gluten free diet, however no matter what I eat I continue to have chronic diarrhea. I use Imodiom but that just plugs me up and the next day watch out. I have lost a significant amount of muscle mass and weight. I feel like I'm close to death. Anyone out there with any recommendations. PLEASE find an acupuncturist to help you. Find a acupuncturist who is NCCAOM certified in Chinese Herbology, as this would be the best IMO. I had severe pseudomembranous colitis from a c. difficile bacterial infection after my son was born. I felt like I was going to die with watery diarrhea nearly 20 times a day!! My acupuncturist who is an expert herbalist cleared this up for me in two weeks. Please consider this form of medicine. Have they done a specific stool test for clostridium difficile - you need to specifically ask for this to be done as it isn't in a regular test. At the very least you should be taking a good quality PROBIOTIC, gluten free, to help your digestive flora. Look into Garden of Life products and read about Josh Rubin's story. Best wishesDOM
    acuann 3080 Replies
    • November 19, 2007
    • 08:53 PM
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  • My problem sounds similar - I have lost 40 lbs and no one seems to think this is a problem! I have no appetite, no energy, etc.I had my gallbladder tested and it was found to be non-functioning. That took care of the nausea. Still had digestive issues - had someone test for candida yeast and found my body was loaded with it. That helped the diarrhea. I also used apo-enterit drops. They are make by Pekana and you can find them at stores that sell homeopathic medicines, or find an accupuncturist to prescribe them for you. Although they are an over-the-counter medicine, you sometimes need a referral.Do not accept irritable bowel syndrome as an explanation. It is a catch-all term for "I don't know what's causing your diarrhea." Keep searching. My gastroenterologist didn't have a clue.Also, have your thyroid and parathyroid tested.Good luck! I am still suffering, but I haven't given up yet.
    Anonymous 42789 Replies
    • November 21, 2007
    • 07:41 PM
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  • I have celiac disease as well. Tell me exactly what you eat everyday. Also have you tried eating a Kiwi a day? I know people who have done this for their bowel habits and it's cured them. It's worth a shot.
    nogullie 28 Replies
    • November 22, 2007
    • 08:37 AM
    • 0
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  • while waiting for further diagnosis remember to keep up your electrolytes. Various drink crystals available at the pharmacy. That will give you back some of the energy you are losing.
    Anonymous 42789 Replies
    • December 7, 2007
    • 06:49 PM
    • 0
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  • I had a very very severe reaction to food some time ago. Apparently, and there is no exact science to what happened to me as the GastroDoctor had no answers other than the acid must've washed away the lining of your stomach so badly, and something else was brewing in there we just cannot diagnos in the time that we had. I lost all of my bodyfat and nearly all of my musclemass. And I ill for ages... Tons of Acid Medications and Tons of patience seemed to help... Even muscle relaxants. If something in what you're eating is killing you, it's hard to say. Might want to research further, is it a Stomach Illness? have you had Endoscopic investigation, I did, and several other probing surgeries. It is difficult to narrow down exactly what might be eating you. It could even be Nervous System or Mental... Best thing is not to get Nervous about what is up and to be very level headed and try EVERYTHING, find what works. Becareful about Doctors I've found that they are a little bit High and Mighty, some are great and some are just arrogant. They may or may not be capable of helping you, depending on their skill and what not. Good luck and do not give up. There is no way you cannot defeat what is facing you. Do not let yourself get too malnurished as I did, I nearly ate my own bones... Fight hard before that happens and ****h at everyone to get the answers you deserve. Your Stomach is as important as your Heart, Lungs, Kidneys, etc... and not to be overlooked!
    Liam123 48 Replies
    • December 10, 2007
    • 06:24 AM
    • 0
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  • I notice noone has mentioned parasites. I've had weight loss problems for a very long time and have been seriously ill. (You can check out my first post I made, (4 1/2 years of suffering ... DISCOVERY), it tells quite a story. I just want to hit home about parasites. Noone wants to think this but they do affect us all. They need keeping in check. I've had endoscopy and colonoscopy and nothing was found apart from h-pylori but and my symptoms didn't match this. I had private lab tests carried out and I got results at last. I'm fighting huge infections. And they're all parasite related, I also have co-factors too, which many people don't realise about, re: bacterial, fungi and mold etc. 2 Have Hope.
    2 Have Hope 22 Replies
    • December 20, 2007
    • 08:40 PM
    • 0
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  • Hope, you're totally right. Parasites are something that were discussed in my case. That or Chrones???Spelling You really REALLY have to be thorough with something of this nature if it's serious. H-pylora, I heard a great majority of the population will have run in with it in their lifetime, I have never...reason probably being is my stomach is so acidic that it could never grow in there. Parasites, or some sort of disease of the organs must be taken seriously. Must be treated... It's scary.. My boss had sections of his intenstines go bad, it was some sort of cavity in them that I cannot quite explain, they had to put him in the hospital often and he was going insane. Couldn't sleep, couldn't control his bowels, had him on a C-Bag. He thought he was going to die but they managed to save and he's alive and pretty much "okay" now. Difference was he was nearly 20 years older than me, why my Doctors were so in shock.
    Liam123 48 Replies
    • December 21, 2007
    • 01:21 AM
    • 0
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  • You need plenty of potassium, protein, and water. Get some rest and be careful not to overdue it. Good luck.Teresa
    TeresaC 41 Replies Flag this Response
  • Look into intestinal bacteria overgrowth (SIBO) , and other infectionstdwi http://en.wikipedia.org/wiki/Small_bowel_bacterial_overgrowth_syndrome http://www.medscape.com/viewarticle/544511 http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/article.htm http://www.regence.com/trgmedpol/lab/lab35.html I have been diagnoised with gluten allergies so I follow a very strict gluten free diet, however no matter what I eat I continue to have chronic diarrhea. I use Imodiom but that just plugs me up and the next day watch out. I have lost a significant amount of muscle mass and weight. I feel like I'm close to death. Anyone out there with any recommendations.
    TaylorDeelwithit 382 Replies Flag this Response
  • you should have a colonoscopy done to check for colon polyps...may be malignant.also an EGD. these are diagnostic tests that may help. i have been through simialr issues myself.find an exceptional and patient GI doctor.good luck.
    Anonymous 42789 Replies Flag this Response
  • FOOD ALLERGY DIET: try the following basic diet, and consult a(nother) dermatologist about allergies. Fill your body with the freshest organic fruits and vegetables available, with a strong emphasis on steamed, raw or juiced dark leafy greens, such as kale, collards, bok choy, pak choi, spinach, , swiss chard, or silverbeet. Enjoy broccoli, squash, tomatoes, avocados and all other seasonal produce options. Use lettuces of every color and shape to create salads of great variety and diversity. Eat generous quantities of both raw and lightly steamed vegetables and fresh salads every single day. Yams/sweet potato, or carrots should be included.Excellent organic vegetarian protein sources include legumes; beans, especially red lentils, French green lentils, and black, aduki and mung beans. When preparing beans for best flavor and easy digestion, we recommend soaking overnight in purified water, draining and then rinsing the beans before cooking. Handful sized servings of soaked and rinsed nuts and seeds, such as hemp, pumpkin and sunflower seeds are especially beneficial. Flax seeds make great additions to banana smoothies, and also can be ground and dehydrated, or low-heat baked, into delicious crackers.Complex CarbohydratesFor sustained energy, eat complex carbohydrates in the form of legumes, red potatoes, squash, yams, and whole grains such as brown rice, quinoa, buckwheat or millet. We suggest limiting your overall carbohydrate intake to 30 percent or less of the foods you eat at each meal. This means increasing your vegetables, legumes, and brown rice, to balance out the complex carbohydrates.How to prepare and season your foodSteam vegetables in purified water until slightly tender, or lightly sauteed in coconut oil, or water and shoyu. Enjoy homemade soups. Season veggies and whole cooked grains with fresh and dried herbs, sea salt, or organic soy sauce, also known as shoyu, or the wheat-free version, called tamari. Sea salt is an important addition to the diet, and should replace commercial or refined table salt. See http://www.mercola.com/ about salt. Additional seasonings include a wide variety of fresh or dried herbs, gomasio, powdered or chopped sea vegetables, such as dulse, as well as many other interesting powders and condiments found on health food store shelves. Garlic, ginger, cayenne pepper, chili peppers, and onions can be enjoyed regularly for their great flavor and immune-boosting properties.The preferred oil for cooking and/or baking is raw, organic coconut oil. Extra virgin olive oil, high lignin flax seed oil, or hemp seed oil can be drizzled on steamed vegetables, cooked whole grains, and used as the base for homemade salad dressings. Many health stores carry a raw nut butter called tahini, which is made up of pureed sesame seeds; tahini is a delicious healthy plant fat, and makes a great base for salad dressings, dips or spreads.Nutritional BoostsLive Cultured FoodsLive cultured foods are a delicious and valuable addition to your diet. Eat raw, live cultured vegetables such as unpasteurized sauerkraut, or kim chi. Vegetable JuicesFreshly made vegetable juices add a powerful nutritional boost to your food plan. Juices made from a wide variety of seasonal vegetables are delicious, and essential to healing, and a great preventative tool when used as an ongoing supplement to any diet.Sea Vegetables, Asian Foods and BrothsAsian foods such as miso, ume plum, and a wide array of sea vegetables are fantastic nutrient rich foods. Sea vegetables vary in flavor and texture, making them fun to experiment with; they also offer an abundance of natural iodine, which is of the utmost of importance to support our glandular systems, especially the thyroid. Miso makes a delicious flavoring in salad dressings, dips, sauces, spreads, and as the classic, miso soup.Homemade vegetable broth is packed with delicious life-giving giving minerals and can be sipped like tea or eaten as soup. Make your own delicious broth simply by cooking down an abundance of fresh organic vegetables in purified water. Healing broths are easy to digest, making them especially valuable for any digestive problems.WaterThroughout the day, drink plenty of pure, filtered water; drink at least 2 litres daily; more in warmer weather. Avoid drinking - as well as bathing and showering in - unfiltered tap water, as tap water contains heavy metals and pesticide residues that can settle in high concentrations in our organs. Only a reverse osmosis water filter will remove things like fluoride.Allergy TestingUndergo testing for potential food allergies and sensitivities, and avoid all foods to which you are allergic or sensitive. Common allergy-causing foods include milk and all dairy products (casein), soy, chocolate, corn, and wheat products, barley, and rye (gluten). Consider an elimination diet in order to further reduce the likelihood of food allergies, especially if you cannot get tested right away.What to AvoidRefined Sugar and Flour, Artificial Food, Soy FoodsEliminate all refined sugar and sugar products, along with empty carbohydrate foods such as commercial white flour, found in white breads, bagels, muffins, pastries, cookies and pastas. Also consider omitting whole grain wheat and wheat byproducts from your diet for several months. Wheat is a highly allergic food, and can be the root cause of a wide variety of digestive troubles. As the weeks go by, notice if you feel better; if you find you are feeling better, consider eliminating wheat for a year, giving your aggravated digestion a long deserved break. Choose to eat a minimum of processed soy products. By far, the best of all soy foods are fresh or frozen edame and tempeh, a fermented soy product that is less processed and easier to digest than other soy products. Stop eating all "junk" and commercially processed foods, as well as all foods containing artificial ingredients, additives, sweeteners, colorings, flavorings, and preservatives (such as MSG, or MonoSodium Glutamate, carrageenan, BHA, BHT, sodium nitrite, sulfites, saccharin, aspartame, and cyclamates).No Dairy, Caffeine or Alcohol, Hydrogenated FatsStay clear of inorganic milk and dairy products, including yogurt and cheese. Later, if you choose to continue consuming dairy, always choose organic dairy products and, if available, raw organic dairy products. Toxins are stored in fats, so choosing organic is especially important in the case of dairy and meat: keep this in mind for later on, when they are permitted foods.Eliminate your intake of coffee and other caffeine based products, such as soda and soft drinks spiked with caffeine. Avoid commercial non-herbal teas, and alcohol. Green or c(h)amomile tea is OK, with a little honey. Do not eat saturated, trans-, hydrogenated or partially-hydrogenated fats and oils. Margarine and shortening are made from these and are to be eliminated. Take a calcium supplement for 6 weeks, and see how you go. Then try reintroducing one food group at a time, for 2 weeks, and see how you react. First I'd go with whole tinned sardines, and abandon the calcium supplements. Then lean organic meat. Next, sourdough rye bread, with fish paste, or honey. Then dairy products, beginning with live cultured yoghurt, followed one at a time by other products, to try and pick the cause, if in fact, it is diet related, and not environmental. Finally, go to http://www.mercola.com and enter "nutritional type" & "probiotics" in the taskbar, and eat in accordance with yours in future, and sign up for the free email newsletter. You may have 'leaky gut syndrome". Try Yakult yoghurt, or similar.
    shaneris 46 Replies Flag this Response
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