I am a 26 yr old female in reasonable good health. I have been suffering from pain in my lower right abdomen/groin area for two years. It began as occasional cramping, so I assumed must be something gyneacological. My OBGYN performed an exploratory laparoscopy in Feb '09, during which he removed a small ovarian cyst and untwisted my right fallopian tube/ovary. However, the pain continued and I was referred to a Urologist for possible Interstitial Cystitis-this was ruled out after several months. In May of this year, the pain suddenly got much worse, to the point that I was removed from work. A second laparoscopy was performed in July, during which my appendix was removed as well. The laparoscopy showed no abnormalities, and my appendix was normal except for a few minor adhesions; there was some vascular congestion, but nothing extreme. The pain continued however, and actually increased after the surgery. I was then sent to a Physical Medicine physician who conducted an EMG to test nerves and muscles-everything came back as normal. I have had several ultrasounds, a full body bone scan, several X-rays of back and pelvis, along with MRIs of back and pelvis. No tests have showed any abnormalities. The pain is a burning, stabbing pain located specifically in the right side of my groin/pelvic area, in between the pubic bone and the leg crease. However, it has begun to radiate into my hip and down my thigh into my knee, with occasional short, sharp pain streaks;it has also radiated into my lower back with a dull aching pain. Then several weeks ago, I experienced parasthesia in the entire right side. it began in my right foot and lower leg, and eventually into my hand, arm, shoulder, and the right side of my face. I went to the ER where a head scan was conducted which showed no clots, etc. However, because of the other issues I have been experiencing, the ER Dr recommended I see a neurologist. I have continued to experience mild parasthesia in my right foot and leg, mostly when I am laying down. The pelvic pain increases when I am sitting in an upright position or laying on my right side, back or stomach. I have tried many different things in an attempt to alleviate the pain, including pain medication, but nothing has seemed to work.The only thing I have found to handle the pain is remaining standing (although too much extended standing also increases the pain), or laying on my left side with a pillow for support.
I found out from my aunt that Lupus, along with a clotting disorder, runs in my father's family, but all blood tests came back normal.
I am scheduled to see the neurologist next week, and I have an appt with a rheumatologist in November. My Physical Med Dr as well as my OB also suggested seeing a vascular surgeon about the congestion that was noticed during the laparoscopy, to see if Pelvic Congestion Syndrome is a possibility.
I am almost at my wit's end and desperate to diagnose this issue, and deal with the pain. In addition, I have missed so much work that I am stressed about the possibility of losing my job and insurance. The company that handles leave and disability for my employer has refused payment and/or approved leave so far due to not having a diagnosis.
I am just posting in the hope that someone here has possibly has the same issue and HAS received a diagnosis and treatment plan that works, or at least can guide me in the right direction. This has almost completely taken over my life and I am getting somewhat desperate to find a solution....