Discussions By Condition: I cannot get a diagnosis.

Severe Lower Right Quadrant pain-no diagnosis

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Meljoken
  • October 15, 2010
  • 07:54 PM

I am a 26 yr old female in reasonable good health. I have been suffering from pain in my lower right abdomen/groin area for two years. It began as occasional cramping, so I assumed must be something gyneacological. My OBGYN performed an exploratory laparoscopy in Feb '09, during which he removed a small ovarian cyst and untwisted my right fallopian tube/ovary. However, the pain continued and I was referred to a Urologist for possible Interstitial Cystitis-this was ruled out after several months. In May of this year, the pain suddenly got much worse, to the point that I was removed from work. A second laparoscopy was performed in July, during which my appendix was removed as well. The laparoscopy showed no abnormalities, and my appendix was normal except for a few minor adhesions; there was some vascular congestion, but nothing extreme. The pain continued however, and actually increased after the surgery. I was then sent to a Physical Medicine physician who conducted an EMG to test nerves and muscles-everything came back as normal. I have had several ultrasounds, a full body bone scan, several X-rays of back and pelvis, along with MRIs of back and pelvis. No tests have showed any abnormalities. The pain is a burning, stabbing pain located specifically in the right side of my groin/pelvic area, in between the pubic bone and the leg crease. However, it has begun to radiate into my hip and down my thigh into my knee, with occasional short, sharp pain streaks;it has also radiated into my lower back with a dull aching pain. Then several weeks ago, I experienced parasthesia in the entire right side. it began in my right foot and lower leg, and eventually into my hand, arm, shoulder, and the right side of my face. I went to the ER where a head scan was conducted which showed no clots, etc. However, because of the other issues I have been experiencing, the ER Dr recommended I see a neurologist. I have continued to experience mild parasthesia in my right foot and leg, mostly when I am laying down. The pelvic pain increases when I am sitting in an upright position or laying on my right side, back or stomach. I have tried many different things in an attempt to alleviate the pain, including pain medication, but nothing has seemed to work.The only thing I have found to handle the pain is remaining standing (although too much extended standing also increases the pain), or laying on my left side with a pillow for support.
I found out from my aunt that Lupus, along with a clotting disorder, runs in my father's family, but all blood tests came back normal.
I am scheduled to see the neurologist next week, and I have an appt with a rheumatologist in November. My Physical Med Dr as well as my OB also suggested seeing a vascular surgeon about the congestion that was noticed during the laparoscopy, to see if Pelvic Congestion Syndrome is a possibility.
I am almost at my wit's end and desperate to diagnose this issue, and deal with the pain. In addition, I have missed so much work that I am stressed about the possibility of losing my job and insurance. The company that handles leave and disability for my employer has refused payment and/or approved leave so far due to not having a diagnosis.
I am just posting in the hope that someone here has possibly has the same issue and HAS received a diagnosis and treatment plan that works, or at least can guide me in the right direction. This has almost completely taken over my life and I am getting somewhat desperate to find a solution....

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7 Replies:

  • I forgot to mention: I haven't had any nausea, vomiting, etc. There's no tenderness to touch anywhere in the area. All pain "feels" internal, if that makes sense. I also had gallbladder testing done, which came back normal, so that was ruled out as well.
    Meljoken 3 Replies
    • October 15, 2010
    • 07:58 PM
    • 0
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  • I forgot to mention: I haven't had any nausea, vomiting, etc. There's no tenderness to touch anywhere in the area. All pain "feels" internal, if that makes sense. I also had gallbladder testing done, which came back normal, so that was ruled out as well.There are several tests they can run to check a gall bladder, and they dont always run them all. Id double check to make sure they did because it really does sound like that.Rule out appendix, check for autoimmune things like chrones and ulcerative colitis, stomach ulcers. Going to want to rule out liver and pancreas as well.Ive had the same pain for years and it hasnt gone away. I just gave up on it.
    Ropeandladder 1 Replies
    • October 17, 2010
    • 03:17 AM
    • 0
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  • See a gyn specialist to rule out endometriosis. Especially if you are having adhesions as they are sometimes related to endometriosis and can cause this type of pain. Go to some endometriosis forums to find out. Also have your uterus checked for fibroids. If a large one is pressing on a nerve it can increase as it grows. Does it come and go with your cycle?
    Anonymous 42789 Replies
    • October 17, 2010
    • 09:28 PM
    • 0
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  • I am a 26 yr old female in reasonable good health. I have been suffering from pain in my lower right abdomen/groin area for two years. It began as occasional cramping, so I assumed must be something gyneacological. My OBGYN performed an exploratory laparoscopy in Feb '09, during which he removed a small ovarian cyst and untwisted my right fallopian tube/ovary. However, the pain continued and I was referred to a Urologist for possible Interstitial Cystitis-this was ruled out after several months. In May of this year, the pain suddenly got much worse, to the point that I was removed from work. A second laparoscopy was performed in July, during which my appendix was removed as well. The laparoscopy showed no abnormalities, and my appendix was normal except for a few minor adhesions; there was some vascular congestion, but nothing extreme. The pain continued however, and actually increased after the surgery. I was then sent to a Physical Medicine physician who conducted an EMG to test nerves and muscles-everything came back as normal. I have had several ultrasounds, a full body bone scan, several X-rays of back and pelvis, along with MRIs of back and pelvis. No tests have showed any abnormalities. The pain is a burning, stabbing pain located specifically in the right side of my groin/pelvic area, in between the pubic bone and the leg crease. However, it has begun to radiate into my hip and down my thigh into my knee, with occasional short, sharp pain streaks;it has also radiated into my lower back with a dull aching pain. Then several weeks ago, I experienced parasthesia in the entire right side. it began in my right foot and lower leg, and eventually into my hand, arm, shoulder, and the right side of my face. I went to the ER where a head scan was conducted which showed no clots, etc. However, because of the other issues I have been experiencing, the ER Dr recommended I see a neurologist. I have continued to experience mild parasthesia in my right foot and leg, mostly when I am laying down. The pelvic pain increases when I am sitting in an upright position or laying on my right side, back or stomach. I have tried many different things in an attempt to alleviate the pain, including pain medication, but nothing has seemed to work.The only thing I have found to handle the pain is remaining standing (although too much extended standing also increases the pain), or laying on my left side with a pillow for support.I found out from my aunt that Lupus, along with a clotting disorder, runs in my father's family, but all blood tests came back normal.I am scheduled to see the neurologist next week, and I have an appt with a rheumatologist in November. My Physical Med Dr as well as my OB also suggested seeing a vascular surgeon about the congestion that was noticed during the laparoscopy, to see if Pelvic Congestion Syndrome is a possibility.I am almost at my wit's end and desperate to diagnose this issue, and deal with the pain. In addition, I have missed so much work that I am stressed about the possibility of losing my job and insurance. The company that handles leave and disability for my employer has refused payment and/or approved leave so far due to not having a diagnosis.I am just posting in the hope that someone here has possibly has the same issue and HAS received a diagnosis and treatment plan that works, or at least can guide me in the right direction. This has almost completely taken over my life and I am getting somewhat desperate to find a solution....What you are describing sounds like you are talking about me!!!! I have been battling pain in my lower right side for months now. I've had Xrays, Ultrasounds, CT scans, bloodwork, everything is normal. They can't find what's causing my pain! I am now off work because the pain at times is quited debilatating. I too am stressed that I may lose my job because of all the time I'm missing. I have been to the emergency dept. too many times to count, lately all the do is give me morphine or demerol and send me home. I am out of my mind with worry....but cannot get a difinative answer. What are you supposed to to? Live with the pain?Hope you feel better soonWalking in your shoes!
    Anonymous 42789 Replies
    • October 23, 2010
    • 08:51 PM
    • 0
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  • See a gyn specialist to rule out endometriosis. Especially if you are having adhesions as they are sometimes related to endometriosis and can cause this type of pain. Go to some endometriosis forums to find out. Also have your uterus checked for fibroids. If a large one is pressing on a nerve it can increase as it grows. Does it come and go with your cycle?Yeah, my OB was the first Dr I saw. He did 2 extensive laparoscopies and ruled out endo or any gyno related issues
    Meljoken 3 Replies
    • October 26, 2010
    • 05:57 AM
    • 0
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  • What you are describing sounds like you are talking about me!!!! I have been battling pain in my lower right side for months now. I've had Xrays, Ultrasounds, CT scans, bloodwork, everything is normal. They can't find what's causing my pain! I am now off work because the pain at times is quited debilatating. I too am stressed that I may lose my job because of all the time I'm missing. I have been to the emergency dept. too many times to count, lately all the do is give me morphine or demerol and send me home. I am out of my mind with worry....but cannot get a difinative answer. What are you supposed to to? Live with the pain?Hope you feel better soonWalking in your shoes!So far, my primary Dr has started me on Savella for fibromyalgia-it doesn't kill the pain, but it does dull the really sharp ones...so that's been helping a little. I just yet another Dr, a neurologist this time-he ordered a brain MRI and a couple other tests in order to check for Multiple Sclerosis. Took 12 vials of blood, as well as 2 urine samples to check for other things as well, such as Lyme disease, etc.Still waiting to finish some tests and get results from others...
    Meljoken 3 Replies
    • October 26, 2010
    • 06:01 AM
    • 0
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  • Your problem is EXACTLY what I have been going thru for YEARS. I too have had numerous tests and nothing. You posted this Oct 2010 and I am wondering if you have found out anything? Pls respond. I too am desperate and I am at my wits end!!!
    jennbob 1 Replies
    • November 13, 2011
    • 10:30 PM
    • 0
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