Does ANYONE have spasms in their joints ONLY when they try to go to sleep? I can't be the only one in the world with this. I just pray that someone who can help or relate will read this.
Just like most on this site, I'm reaching out in hopes that someone out there can relate to my situation or help with ideas. I am an almost 40 yr/f and have been suffering with joint spasms for almost 10 years. The only ONE consistant symptom is that they ONLY come on when I try to relax to go to sleep. This happens nightly and can keep me up hours stretching or taking super hot baths. Originally, the spasms started in my hip joints. Over the past years, they have "moved" to include my left shoulder, ELBOW, and left hip joint...rarely affecting the right side anymore. Stetching the joints helps, but severe spasms require severe stretching...which has led to pulled back muscles. Exercising can help, but does not assure relief. Spasms at their worst feel like bolts of electricity shooting through the joint causing spasm and sometimes pain. Past: one pretty severe car accident when I was 17 resulting in whiplash, migraines, permanent upper shoulder damage and lower back pain. 1 1/2 year in PT then released with little results. Docs say this is irrelevant.
I have been looked at for the beginning stages of MS (said no but no MRI was run), Lupus, vitamin and mineral deficiencies, diabetes. Fibromyalgia has been considered but the spasms are not consistant and I do not have them everywhere. Only results have been elevated white blood cell count for unknown reason and mild arthritis in the SI joints. Docs look at me like I'm crazy because I pass all of their tests (so far).
I have been given a slew of muscle and skeletal relaxers, all to no avail. Unfortunately, the only family of meds that give relief are in the Valium/ Diaziapam family. They stop the spasms. Since this is controlled, I usually have nothing to help me deal with this termoil.
Any help or someone to relate with would be appreciated beyond belief!