For almost 9 years my daughter (now 21) has been unable to walk as well as be touched in certain areas of her back and shoulders. One day a leaf from a tree fell on her shoulder and she came in crying, that is how painful it is for her. Her feet are also painful to the touch (bottoms). We have been everywhere literally to the best Doctor's and no one can find the cause. I was told she needed chelation so I spent ALL the money I had $10k on the treatments and vitamins and nothing changed. Lately watching the girls who have the "twitching disorder", I have come across the conversion disorder possibility. My daughter does have several organic problems in addition. (not to say this condition is not real). She has type 1 diabetes at age 5, severe gastro problems: (gallbladder removed, sphincter of oddi surgery, regular appendectomy which actually is when all this started, and a presacral neurectomy as well as dozens of "procedures" to diagnose some of these gastrointestinal problems. A few years ago, she had elevated liver enzymes and was very ill, also had low white blood count and almost died (they actually told me to prepare for the worst). She has terrible scoliosis over 55 degrees and kyphosis now, needs surgery but can't due to pain she has now could never wear a brace. She has a vision problem, no real diagnosis on that except she needs a high powered magnifier to see things written down and a lot of things are blurry. She never had a vision problem as a young child. This problem happened right after a spinal tap. She relies on colors and her excellent hearing. She has chronic fatigue, I think she also has depression. She is currently on simvastatin, synthryoid, novolog (insulin pump), norethindrone for menstrual pain, and probably a few others but I can't remember right now, she is in charge of her own meds. No pain meds have ever worked. Not even morphine or dylauded.
She is an excellent student almost all A's (teachers' come to our home) is taking college classes online and doing well. She almost has a photographic memory. Cannot handle a lot at once which is why it has taken so long for High School to be completed but she will be done in about 2 months. I know she hated living in the south so we moved back up north, though that might help her "mood".
We have done a lot of moving around, even been in a homeless shelter, but doing well now. She has goals and she is a precise logistical thinker. She is too smart and too good of a person to give up on. I will never stop trying to find what's wrong. I want to see my daughter walk again. This really is a medical mystery. Can anyone help us find how to make her better? Thank you. JK
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