Discussions By Condition: I cannot get a diagnosis.

severe headaches and inflammation

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: raven_lenore
  • June 11, 2009
  • 03:26 PM

Hi. I was hoping someone would have some ideas here.

I've been having a severe headache since December. This means non-stop, as in I wake up with it, and I go to bed with it. I've been seeing a neurologist, a rheumatologist, and an oncologist. Since there are so many causes of headaches, a diagnosis has been difficult.
Tests have indicated a elevated sedimentation rate- in the 50s. This indicates a high level of inflammation. This number keeps going up every time I get the test. When they started, the number was in the 30s, and the normal range for females is 0-20. The only medicine that has helped control the headache are very strong anti-inflammatory medications such as toradol or dicloflenac. So actually, the headache is a symptom of the inflammation.
I've had numerous blood tests for everything- ANA tests, vitamin deficiencies, HIV, c-reative protein, globulins, you name it. Everything else is normal.
I had a lumbar puncture that was normal for proteins and glucose and normal opening pressure.
I had a cerebral angiogram that was normal and showed no signs of vasculitis.
I've had an MRI that shows no tumors.
The doctors I've been seeing are kind of stuck- they are worried about starting me on steriods to treat the inflammation in case it is cancer. But I am very tired of having a headache for 6 months!
I take several medications: dicloflenac sodium: 150mg; topamax (migraines) 100 mg; singulair 10mg; zegerid (for severe acid reflux) 40/1100mg; and zoloft 150 mg.
I also have several gastrointestinal disorders that are probably unrelated but who knows: severe acid reflux, strictures in my esophagus that cause me to need dilation every 6 months, frequent h. pylori infections. I'm a 27 year old female.
Does anyone have any ideas? Thanks

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