Mystery Severe Eye Pain
Pain: Severe burning pain mostly in my right eye (on a scale from 1-10 it is about a 9.4, I’d know since I’ve gone under the blade for sugery twice and yes stick a needle in my eye also), I also have burning in my left eye too. The pain is generally like I’ve cut an onion or gotten juice from a pepper in my eyes, but several times; including yesterday my eyes went into full tilt and was about a 93 on the scale. I felt like I had glass in my right eye, of course I looked into my eye and was sure “This time I knew I had to have something in my eye”, but just like all of the other times, nothing. I used every eye drop known to man and got no relief.
About 7 years ago I went to the Dr. and had a pterygium removed from my right eye, before the surgery I don’t recall ever having eye pain, I did have the discomfort and vision problem with my eye, the pterygium had grown over more that 50% of my eye. After the surgery I started having massive eye pain, partially because of the stitches and the trauma to my eye during the surgery, but the Dr that performed the surgery said that I was experiencing way more pain that he expected or had ever seen. He is a well respected Dr and I was referred to him by ALL of the other Dr’s in town.
My pterygium had grown back completely within six months.
I went to four other Dr.’s (ophthalmologists) and all came up with the same thing, they didn’t think the eye pain was coming from my eyes; and that something else was causing the pain (like a referred pain?), but non had a suggestion of what I could do.
After eight weeks I was still having so much pain in my right eye that I couldn’t open it, and had a problem holding my left eye open (I would resort to holding my left eye open with my fingers so I could work or drive, etc.). The Dr that did the surgery was completely stumped about the pain, he brought in an associate Dr that kind of had the same response (they couldn’t figure out what was causing the pain).
About six months after the surgery my eye pain lessened, but did not stop, it became an aggravating 4-5 on the pain scale. I have since gone to see Dr’s that are for nerve pain, general practitioners throughout the Kaiser system and have had MRI’s, XRays, I’ve been poked and prodded at all over my body and still nothing. The Dr.’s have checked me for Lupus, AIDS, every immune disease they could think of, they’ve given me 20-25 different types of eye drops with prescriptions to put from 4 drops per day to 2 drops per hour and none have relieved the pain or even knock off the edge.
About a year and a half ago I made the leap and went through the surgery again, this time I started with a regiment of stuff leading up to the surgery, and using all kinds of eye drops for a lot longer after the surgery.
My pterygium grew back completely within about five months this time, which of course completely has mystified every eye Dr. that I’ve seen.
I recently got off of the Kaiser train and got on to Blue Cross/Blue Shield and got a new Dr. I’ve seen this Dr. three times and he is completely stumped. After the first visit to this Dr. I was still in so much pain and he didn’t know what to do, that I checked myself into an emergency clinic that afternoon; of course they had three Dr.’s looking at my eyes, then each other; completely mystified at the pain I was in. One of the Dr.’s suggested that I get a hold of the emergency center at Jules Stein center at UCLA, the following day I was standing in their emergency room (about a 2 hour drive away). The Dr. there stuck, pushed, pulled, shined bright lights of all kinds, looked under a microscope looking device, squirted stuff into my eyes, stuck paper in my eyes, and all other kinds of stuff and called in another Dr. to look at my eyes and said that everything looked fine (except for the pterygium that had grown back), but didn’t feel that the eye pain was related to the pterygium because the pain was in both of my eyes.
Yesterday’s episode got me looking around; at this point I’d take ANY suggestions. The pain is so severe that on the way home from work yesterday I had to pull over to the side of the road and sit until I could stand the pain.