Discussions By Condition: I cannot get a diagnosis.

Severe Eye Pain

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • November 7, 2007
  • 06:10 PM

Mystery Severe Eye Pain

Pain: Severe burning pain mostly in my right eye (on a scale from 1-10 it is about a 9.4, I’d know since I’ve gone under the blade for sugery twice and yes stick a needle in my eye also), I also have burning in my left eye too. The pain is generally like I’ve cut an onion or gotten juice from a pepper in my eyes, but several times; including yesterday my eyes went into full tilt and was about a 93 on the scale. I felt like I had glass in my right eye, of course I looked into my eye and was sure “This time I knew I had to have something in my eye”, but just like all of the other times, nothing. I used every eye drop known to man and got no relief.

About 7 years ago I went to the Dr. and had a pterygium removed from my right eye, before the surgery I don’t recall ever having eye pain, I did have the discomfort and vision problem with my eye, the pterygium had grown over more that 50% of my eye. After the surgery I started having massive eye pain, partially because of the stitches and the trauma to my eye during the surgery, but the Dr that performed the surgery said that I was experiencing way more pain that he expected or had ever seen. He is a well respected Dr and I was referred to him by ALL of the other Dr’s in town.

My pterygium had grown back completely within six months.

I went to four other Dr.’s (ophthalmologists) and all came up with the same thing, they didn’t think the eye pain was coming from my eyes; and that something else was causing the pain (like a referred pain?), but non had a suggestion of what I could do.

After eight weeks I was still having so much pain in my right eye that I couldn’t open it, and had a problem holding my left eye open (I would resort to holding my left eye open with my fingers so I could work or drive, etc.). The Dr that did the surgery was completely stumped about the pain, he brought in an associate Dr that kind of had the same response (they couldn’t figure out what was causing the pain).

About six months after the surgery my eye pain lessened, but did not stop, it became an aggravating 4-5 on the pain scale. I have since gone to see Dr’s that are for nerve pain, general practitioners throughout the Kaiser system and have had MRI’s, XRays, I’ve been poked and prodded at all over my body and still nothing. The Dr.’s have checked me for Lupus, AIDS, every immune disease they could think of, they’ve given me 20-25 different types of eye drops with prescriptions to put from 4 drops per day to 2 drops per hour and none have relieved the pain or even knock off the edge.

About a year and a half ago I made the leap and went through the surgery again, this time I started with a regiment of stuff leading up to the surgery, and using all kinds of eye drops for a lot longer after the surgery.

My pterygium grew back completely within about five months this time, which of course completely has mystified every eye Dr. that I’ve seen.

I recently got off of the Kaiser train and got on to Blue Cross/Blue Shield and got a new Dr. I’ve seen this Dr. three times and he is completely stumped. After the first visit to this Dr. I was still in so much pain and he didn’t know what to do, that I checked myself into an emergency clinic that afternoon; of course they had three Dr.’s looking at my eyes, then each other; completely mystified at the pain I was in. One of the Dr.’s suggested that I get a hold of the emergency center at Jules Stein center at UCLA, the following day I was standing in their emergency room (about a 2 hour drive away). The Dr. there stuck, pushed, pulled, shined bright lights of all kinds, looked under a microscope looking device, squirted stuff into my eyes, stuck paper in my eyes, and all other kinds of stuff and called in another Dr. to look at my eyes and said that everything looked fine (except for the pterygium that had grown back), but didn’t feel that the eye pain was related to the pterygium because the pain was in both of my eyes.

Yesterday’s episode got me looking around; at this point I’d take ANY suggestions. The pain is so severe that on the way home from work yesterday I had to pull over to the side of the road and sit until I could stand the pain.

Please, anyone?



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7 Replies:

  • Has anyone ever tested the ph of your tears, and also whether you've become allergic to the proteins (and other stuff) in the tears. The paper in the eye might have been litmus, then again, it might have just been the dry eye test. I know this sounds odd, but every time I cry, my tears burn really badly..so I try to never cry. Have they checked for stones in the tear ducts? Have you tried a pain center? What are they saying about your optic nerve? This is from Dr. Koop's website and is about optic nerve pain.Alternative Names:Second cranial nerve atrophy Causes, incidence, and risk factors:There are many unrelated causes of optic atrophy. The most common cause is poor blood flow, called ischemic optic neuropathy, which most often affects the elderly. The optic nerve can also be damaged by shock, various toxic substances, radiation, and trauma.Various eye diseases, most commonly glaucoma, can also cause optic nerve atrophy. In addition, the condition can be caused by diseases of the brain and central nervous system, such as cranial arteritis (soemtimes called temporal arteritis), multiple sclerosis, brain tumor, and stroke.Are they giving you steroids? Are you getting enough B vitamins?Does your eye hurt with movement? I assume you don't have corneal abrasions. I also gave those a 9 on the pain-o-meter.
    rad-skw 1,605 Replies
    • November 9, 2007
    • 00:40 PM
    • 0
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  • Try here: http://healthgate.partners.org/browsing/LearningCenter.asp?fileName=96971.xml&title= They mention radiation to stop regrowth.
    aquila 1,263 Replies
    • November 9, 2007
    • 01:44 PM
    • 0
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  • Aquila, that was interesting. Radiation therapy to control growth that might have been caused by solar or medical radiation! But I guess they do that for skin cancer also.
    rad-skw 1,605 Replies
    • November 10, 2007
    • 11:42 AM
    • 0
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  • Eye doctors are just pretty useless. I would say something else but this is a public forum. Anyway, do you wear mascara? If you do, quit. You never know it might help. I use an eye liner now instead of mascara, and I have gotten rid of starbursts around lights. I believe there was something in the mascara that was poisoning my eyes. I was already using the chemical free, organic mascara too.I also read that some prescription and non-prescription eye drops make your eyes worse, so try not to use them or make sure you ask for those without preservatives. Also, there are some eye books on reversing eye disease on Amazon that might help. I cannot recommend any, because I haven't had the chance to buy any of them yet, but you would want one that mentions herbs and vitamins to help heal your eyes. My aunt has macular degeneration and is blind and the doctors told her to take an aspirin every day to thin her blood to prevent strokes, and we think that caused her to become blind. So pay attention to what you are doing and your environment to be sure you are not damaging your own eyes without being aware of it.Just some ideas......
    hayley3 11 Replies
    • November 10, 2007
    • 01:02 PM
    • 0
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  • Are your pupils normal? If not, you could have horner's syndrome or adies pupil. Both can be caused by other conditions or trauma. I have found eye doctors pretty useless too. I would suggest you see a reputable neurologist. Do a search on horner's syndrome and see if your symptoms match up.
    Anonymous 42,789 Replies
    • December 28, 2007
    • 04:56 AM
    • 0
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  • This is what has helped me after five years with a ptergium and eye pain. I take Rutin & vitamin C 3x a day. 1x a day Chronium, copper, Selenum, Zinc, b vitamin complex, iron. I have an eye pillow I bought several years ago made out of cloth and stuffed with lavender and something else. I heat it up for one minute in the microwave and put it over my eyes for at least 1/2 hour 2x a day. This has helped so much. I feel much of my eye pain comes from using the computer (I use it for work). There are special glasses called Zeiss Glasses you can get to help reduce problems from using the computer.:eek:
    suzenette 1 Replies
    • February 1, 2009
    • 09:28 PM
    • 0
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  • Don't know if you still look at this post but I want you to try something. Stop taking the iron pills and see if your eye pain lessens. It took me several months to realize the severe eye pain I had that had all doctors stumped was from my iron pills. I stopped them and the pain went away immediately. Then I restarted them and the pain was back so I stopped altogether. I then realized that 1 1/2 years before, when I had eye pain that was not as severe and felt more like pressure behind my eyes, was from when I was taking a birth control pill that contained iron. I looked this up everywhere on the internet but cannot find anything on this at all. But I know for a fact that my eye pain was from my iron pills. And that pain was so severe. Maybe this will help you also.
    Anonymous 42,789 Replies
    • February 23, 2009
    • 05:46 PM
    • 0
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