My wife has been suffering from Edema since February 2009. It has become severe, and our collection of "so called" specialists seem to be throwing up there hands, and almost admitting they don't know why.
When this started she weighed 108 pounds, and is now 160! She has been hospitalizied twice in May and has been tested for the big 3 culprets, Heart, Liver and Kidney. She has had extensive blood tests over this peroid to exclude common problems, and as far as testing for Lupus. Ultra sounds were done on all 3 organs, EKG, and a liver biopsy to disclude autoimmune hepititus. All proved negitive. The Nephrologist wanted a kidney biopsy when her creatinine showed 1.6, but sice has dropped to 1.1. My wife was only given one kidney at birth and therefore falls into a Huge risk area for a kidney biopsy.
We just went to a teaching hospital for help and the Nephro said her kidney was fine by recent blood tests, and come back in a month! This girl is gaining about a pound a day now and doesn't have that kind of time.
Any leads or info is appreciated as we are at the end of our rope!