Discussions By Condition: I cannot get a diagnosis.

Severe birth defects

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: ivy123
  • December 31, 2012
  • 10:32 PM

A little baby was born almost a month ago with deformed arms (both sides), a condition known as ulnar hemimelia. This is very painful for our family. As it appears to be a very rare case, the doctors in my country have no experience in this. I'm so worried of the baby and dont know what to do. I don know if there's any treatment or cure to help the baby to get through this. I was wondering if arms transplantation would help in this case because the baby was born this way (lack of certain muscles and nerves that help in connection). My biggest concern here is the development and growing stage of the baby. The upper limb deficiencies will certainly affect its functionality and also activities of daily living.

On the other hand, the baby's mom (Jac) is very depressed and negative about this. She cries every single day and has the thought of ending her life together with the baby. I am afraid that she might get severe depression. What can I do? I've never felt so much pain in my life before, this is hard for my family and I.

I'm clueless please help. I'd give in anything just for the baby.

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