Discussions By Condition: I cannot get a diagnosis.

Several symptoms and recently discovered adrenal adenoma

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • August 3, 2010
  • 06:04 AM

I am a 24 y/o female with multiple symptoms. I will try my best to make this easy to read.
Symptoms began in 2004:
Extreme hair loss
Fatigue
Menstrual period for 6 months straight (no anemia though)
Easy bruising
Brittle nails

I seen a dr. for this who ran test on my thyroid, which came back fine, and I never went back to this dr. Symptoms gradually got better, but still tired. I didn't see another dr. until I got pregnant with my first son in 2006, normal obgyn visits. I noticed my hair didn't fall out as much during pregnancy, but as soon as I gave birth the symptoms listed above came back with the exception of the prolonged period and brittle nails. I got pregnant again and gave birth in 2007, and again in 2009...everytime it was the same. Only in 2009 after the birth of my 3rd child I developed more symptoms. One day after we left the hospital I had horrible wrist pain (diagnosed dequervain's tendonitis). One month after that I got a kidney infection that landed me in the hospital where I got a ct scan to confirm. It cleared and I never went back to have a checkup.

2009:
Irritability/mood swings
Dequervain's Tendonitis (10 months straight on both wrists)
Extreme hair loss
Fatigue
Easy bruising

We moved late 2009 and I seen a different dr. about my current symptoms. She did a cbc and thyroid check but everything checked out fine. After months of pain I went back to see her again and she diagnosed me with anxiety, put me on anti-anxiety meds for one month and sent me on my way. I had never had a panic attack before, but those meds made me close to having one. Needless to say I finished my prescription and never went back to see her. In Feb. of 2010 I started with the nausea, vomitting, and diarrhea, headaches. I thought it would pass but after 3 months of bouts we moved back to our hometown and I saw the dr. who had done my ct. in 2009. After being diagnosed with anxiety from my previous dr. I thought it would be best to only tell this one about my nausea, vomiting and diarhea...so I did and she checked my gallbladder which was fine. Only after the abdominal ultrasound did I find out about the "spot" on my adrenal gland. This adenoma was discoverd in 2009 and was only 1.8 cm at that time. Last week after researching for myself I decided to bring this to her attention and she is going to be checking my thyroid again and running "some other tests" on Wednesday. If you have read all of this, do you have any advice for me? I am wondering if this adrenal adenoma could have been causing my hormonal symptoms? Also really curious about the nausea, it's getting pretty old after 6 months of it.

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9 Replies:

  • I am the original poster. I just had a few more questions, hoping for a reply this time. I got my bloodwork back, and it was all within the normal range. The doctor checked my ACTH level but not cortisol. It was taken at 10am, and was 8 pg/ml...but I am on birth control and not sure if that affected the results. From what I understand, the birth control would increase my ACTH level..so if it's at 8, and should be increased from b.c. and morning draw, maybe it is low? I think I should see an endocrinologist, but not sure if there is one in my area. Please, if anyone has some advice or a suggestion please respond. I'm tired of feeling crazy every time my tests come back normal, I just want to give up...but I know something isn't right.
    Anonymous 42789 Replies
    • August 12, 2010
    • 04:37 AM
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  • I have so many of these symptoms myself alongwith severe nausea, bad taste and smell in my mouth, burping, extreme fatigue, memory loss, hair fall, brittle nails etc. I hav been on thyroid medication for a couple of years and my endo doesnt seem to think I have any endo issues since he has done a full blood work.My fatigue, nausea and blurred vision is just getting worse day by day and now my PCP wants me to see a Shrink. BTW for some reason I have started noticing that my symptoms sometimes get better in the evenings, but no guarantees there.I am sick and tired of doctors just finding the easy way out and telling us to see a shrink when I am afraid that we could be suffering from a real, physical ailment.....Let me know what your diagnosis turns out to be.....
    dimps74 4 Replies
    • August 16, 2010
    • 02:12 AM
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  • Thanks for the reply. You said you're on thyroid medication, so I assume you do have a thyroid problem? Did you have any other tests ran at all? Do you mind sharing your lab results? Sorry they are telling you to see a shrink...that is the one thing I do not want to be told. My regular doctor sent me to an internal medical dr. for the nausea, vomiting....and he suggested a 30 day course of dexilant for GERD. I have been taking that for about 2 weeks now and I think it has helped. I had some nausea yesterday, but I'm not sure if it's another flare up or will subside..I guess that's why I'm doing a 30 day trial. :)I have a lot of things going on right now, so I've opted to wait six months and have another ct scan of my adrenal tumor. I can live with the symptoms now, nothing seems to be life threatening, just very annoying. I've been having pain behind my right rib cage, but it's not painful enough to make me go back to the dr. I will post again if I find out anything. Please let me know how it's going for you.
    Anonymous 42789 Replies
    • August 23, 2010
    • 07:35 PM
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  • You should see a endocrinologist that specializes in pituitary disorders. I am including a link to a site that is a support group for patients with pituitary disorders, the page I am sending a link from has videos, I would recommend watching "Pituitary Hormones and the role they play in our lives" Very informative. There is also a physician finder. I found this site through another site after watching a episode of "Mystery Diagnosis". Hope you find the answers you are looking for and you get a correct diagnosis. Here is the link to the site I spoke of:http://www.brain-tumor.org/88_What_When_How.html
    Anonymous 42789 Replies
    • August 24, 2010
    • 08:52 AM
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  • I will post my test results soon. Luckily the last 5 days every symptom was gone. i woke up feeling rested, no debilitating fatigue, no nausea or headache, no fogginess or blurred vision, active and very very productive. My OLD self. I am just keeping my fingers crossed. Couple of things I noticed:I have stopped taking nexium that my doctor gave me for nausea and vomitting and inspite of not taking that my nausea has disappeared. Which leads me to conclusion that my nausea was not related to GERD. I have been taking it easy in the gym for the last one week and no yoga which is making me think I could have vertigo or spondilities and limitted activity has made me better. Lets see if this good spell can last...... Get your vitamin D levels checked since I have doubled my vitamin D to approx 1500 units a day
    dimps74 4 Replies
    • August 24, 2010
    • 09:43 PM
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  • I'm glad you're having a good week. I hope it lasts for you too. I had a good few days myself, I was really enjoying having my energy back after getting off the birth control tri-nessa. One month on that and my fatigue was about ten times worse. I really don't know what to think about this pain on the right side behind my ribcage. Any ideas on that? I will be starting college on Monday, looking for a job as well and still taking care of my kids when I come home. I am hoping I can do everything as I've had it pretty easy the past three years being a stay at home mom, never had to deal with these symptoms away from home. Good luck to you, hope you can continue to feel like your old self!
    Anonymous 42789 Replies
    • August 25, 2010
    • 02:27 PM
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  • I just read through your threads and I wanted to share my experience as well. I am suffering from many of the same symptoms, extreme joint pain (shoulders, wrist, knees, hips), fatigue, posteural hypotension, back pain, frequent urination, depression, anxiety, headaches, dizzy spells, intolerance to cold, irritability, chest pains, palpatations, and irregular painful menstruation. My family and my doctors all think I'm crazy. I was in a bad accident six years ago and broke my back and several other bones. Everyone wants to blame the pains on the this accident. Also, I had a child last January and since then my symptoms have been getting worse. When I was in the accident, they accidentally found an adrenal adenoma that they said I shouldn't worry about. I recently did some research and found that all of my symptoms are similar to that of hypoadrenia. I also work a high stress job that requires me to be there random long hours (12 hour shifts as a medic in Oakland, ca). I brought all of this up to my doctor and he ordered some blood tests but really just blew me off and prescribed me some anti-depressants. I have not received the results yet, but I plan on forcing him to refer to an endocrinologist. Adrenal problems often go undiagnosed and can be serious. I am scared I am suffering from these problems and no one is going to figure it out. I think you should see an endocrinologist as well. Good luck and let me know what your final diagnosis is. As I will too.
    Anonymous 42789 Replies
    • November 24, 2010
    • 04:46 PM
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  • A lot of the symptoms that have been mentioned here are similar to those of food allergies. Maybe try getting tested for a gluten allergy and see if cutting it from your diet helps clear your symptoms at all.
    Anonymous 42789 Replies
    • November 26, 2010
    • 03:01 AM
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  • I have a 1.9cm adrenal adenoma that is producing high amounts of cortisol that was found in April this year after a severe bout of food poisoning I could not get better. My symptoms range from nausea to diarrhea vomiting, stomach aches, fatigue and bruising easily. Also takes a long time for cuts and stuff to heal. I have a difficult time sleeping and often wake up soaked in sweat. I have been waiting for a specialist for over a month and my symptoms are just getting worse. The hardest part for me is the mental aspect. Cortisol is the stress hormone and having an excess causes my body to be in panic mode often. I have days/nights of such bad anxiety nothing seems to help. I feel out of it often and just not right. I am on medication to keep my potassium up because the tumor decreases my potassium for some reason. It's been very hard both mentally and physically to the point where I feel like I am going crazy. Just want to feel normal. Anyone with a similar problem I wish you the best.
    Anonymous 1 Replies Flag this Response
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