My story is a tad long, but kinda interesting, so here goes!
I was born by planned c-section and stopped breathing soon after. I was incubated for a long time. My left side was also limp but all the experts in the town couldn't for the life of them figure out why. Everything eventually got normal and I was sent home with my parents.
When I was about four years old, I got investigated for falling over a lot. My parents thought I might have been flat footed, which I wasn't, however they found I had no reflexes anywhere. After some blood tests that came back really strange I had many investigations. They called in experts from all around Europe and it was a massive hullaballoo. Eventually they decided I had Charcot-Marie Tooth disease and pseudohypoparathyroidism, along with central hypothyroidism. It's strange that I have both, there is no reason why I should, and having one makes the other worse. My hypothyroidism kind of just stopped not too long ago.
In 2010 I had a massive problem with my ankle, and it was a problem so rare that they thought I was either lying about the unbearable pain I was in, or it was just extreme juvenile arthritis (I was 13 at the time). To make it worse I was only given panadol because of my age. They found out after about a year that I'd been born with a bipartite talus and it had now come apart. I had literally been walking on a broken foot for a year and I'd been given PANADOL. Even after they discovered it I only got tramadol which is an absolute joke and didn't cover the pain at all.
Anyway now I'm 16 and I also have the type of iron deficiency that makes the doctors wonder how you stay alive, crazy low blood pressure, and for some reason my periods won't go regular even though I got put on the pill and all my hormone levels are regular.
To make it worse, all DNA tests for all my diseases have turned up negative.
What is going on? Is there an underlying syndrome or something that would explain all of this? Any ideas are appreciated!!
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