Discussions By Condition: I cannot get a diagnosis.

Several enlarged, reactive lymph nodes in my neck

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Writer75
  • September 1, 2009
  • 11:29 PM

Hi there,
I am a 30 year old woman with several enlarged, reactive lymph nodes in my neck, on both sides. I have one on each side in the parotid gland. In January of this year my tear duct began swelling. The doctors tried me on every antibiotic and eye drop/ointments (turns out I am very allergic to ointments). After much debate, they did a biopsy of my tear duct, which came back inconclusive. During this time I also had an enlarged lymph node on the same side (in the parotid gland). After surgery I was injected with prednisone (steroids) and the swelling all went down (including the lymph nodes). After going off steroids, the lymph node grew, as did several others on both sides. Two months ago, the doctors finally became worried and did an ultrasound, followed by a needle biopsy, which was followed by a biopsy where they removed four enlarged, reactive lymph nodes. The results were that it was not lymphoma, but lymphoma can be masked by the steroids I took earlier in the year. I have since had several more enlarged lymph nodes and now am being sent to a haematologist and infectious disease clinic for further testing. When I had my ultrasound today the technician found several more enlarged lymph nodes. The doctor in charge came in to check my spleen (normal size) and my aeorta (no lymph nodes present). Apparently, if your spleen is enlarged it's very bad. There is also talk of having another biopsy in a month's time to remove and test the growing lymph nodes. Any thoughts, suggestions or information are welcome!

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2 Replies:

  • Are the lumps painful ? Really not sure if your symptoms suit or even if Doctors have mentioned it but do some research on "Dercums Disease"Best of luck in your searchxxxSamanthahttp://www.undiagnosedillness.org
    Anonymous 42,789 Replies
    • September 2, 2009
    • 07:36 AM
    • 0
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  • I am actually having this same problem and yet to find a cause or any relief of symptoms. What did yours end up being and/or what did you find to help your symptoms?
    Anonymous 1 Replies Flag this Response
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