Discussions By Condition: I cannot get a diagnosis.

Serious Women's Health Help Needed!

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • March 4, 2008
  • 09:43 PM

I have been experiencing years (5-8) of symptoms that have been misdiagnosed or totally ignored by doctors and specialists. I have been hauled into the Dr. after Dr. and as I arrived I was told I was misdiagnosed, so any and all help would be appreciated. Please, read my story and help point me in the right direction, I need help.

The Big Problem: I have experienced extreme pain in the lower abdomen/pelvis area during, and after, intercourse (the pain is less if I am on my side). The pain will go from mild, to moderate, to stabbing, and then a pleasant numbness. After intercourse, a mild to moderate bleeding will occur followed by a clear, but sticky and thick, vaginal discharge. This discharge can last for a day or two and is then followed by a slightly heavier and darker discharge that can last for several more days (up to a week and a half). The abdominal/pelvis pain will come and go during this time. Then, I have horrible periods during my cycle that are either heavy, cause pain, or mood swings, so intercourse is rare with the multitude of symptoms that last almost a combined month between it all.

Medical History: 26 y/o f with irregular periods (taking Lo Estrin) and a history of thyroid problems (.88 Levoxly). Currently experiencing, premenopausal-like symptoms of: hot flashes/night sweats, depression, headaches, irritability/mood swings, tender breasts (mild breast tenderness with extreme nipple tenderness OR I can not feel contact with breasts/nipples at all; quick and severely changes), change in hunger, irregular heart beat, trouble sleeping, exhaustion/fatigue w/ aching, lack of desire. I am a high stress person and have been experiencing more backpain as well.

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8 Replies:

  • hi check out pelvic floor dysfunction which can cause pelvic pain (bascally your pelvic floor muscles are in a spasm and are like a brick, rather than being relaxed and sex can evoke more pain) i no cause i have had/got PFD and have been treated with botox injections into pelvic floor muscles and now feel good...........not sure if the discharge is linked thou..........have you ever tried coming of your medication? it could be a reaction to that considering its treating the pelvic area (periods).did you have pelvic pain/discharge before medication? also sounds like you have got a whole hormaonl inbalance going on........have you ever considered seeing an alternative therapist? they have saved my life.............and although i have still got health issues they have helped me tremedoulsly.......... take care
    nessie01 5 Replies Flag this Response
  • See a physician who specializes in bioidentical hormones who will check all your levels of hormones and then prescribe accordingly and monitor you to see how you are doing. You can find a name in your area thru lifeextension.com. This is not covered by insurance, but is well worth it. Birth control pills are synthetic and not individually tailored to you. It sounds as though you might have endometriosis. It's very common and very underdiagnosed.
    Anonymous 42,789 Replies Flag this Response
  • http://www.lef.org/doctors/directoryofdoctors01.htm Their site is a little difficult to navigate so I posted a link directly to their page of doctors.
    Anonymous 42,789 Replies Flag this Response
  • Thanks everyone for all of the suggestions. I have looked into all of them and think that my best bet it to see someone about hormone therapy and perhaps even endometriosis. (I have been looked at for endometriosis before but test were never done, so I am switching my gyn and asking for a full work up!) I can not thank you enough for the help! I am still doing loads of research, so if anyone thinks of anything else that I should look into, please post as.
    Anonymous 42,789 Replies Flag this Response
  • make your boyfriend get checked for chlamydia, along with yourself...and other stds..
    Monsterlove 2,921 Replies Flag this Response
  • One of the reasons that endometriosis is so widely underdiagnosed is because it is only diagnosed through examination of tissue biopsied during laparoscopy. For an immediate over the counter remedy, give natural progesterone cream a try. There are many supportive endo groups on yahoogroups.com that I would check out as well. Just do a search there for endometriosis.
    Anonymous 42,789 Replies Flag this Response
  • The following adverse reactions have been reported in patients receiving oral contraceptives and are believed to be drug related: NauseaVomitingGastrointestinal symptoms (such as abdominal pain, cramps and bloating)Breakthrough bleedingSpottingChange in menstrual flowAmenorrheaTemporary infertility after discontinuation of treatmentEdema/fluid retentionMelasma/chloasma which may persistBreast changes: tenderness, pain, enlargement, and secretionChange in weight or appetite (increase or decrease)Change in cervical ectropion and secretionPossible diminution in lactation when given immediately postpartumCholestatic jaundiceMigraine headacheRash (allergic)Mood changes, including depressionVaginitis, including candidiasisChange in corneal curvature (steepening)Intolerance to contact lensesDecrease in serum folate levelsExacerbation of systemic lupus erythematosusExacerbation of porphyriaExacerbation of choreaAggravation of varicose veinsAnaphylactic/anaphylactoid reactions, including urticaria, angioedema, and severe reactions with respiratory and circulatory symptomsThe following adverse reactions have been reported in users of oral contraceptives, and a causal association has been neither confirmed nor refuted: AcneBudd-Chiari syndromeCataractsColitisChanges in libidoCystitis-like syndromeDizzinessDysmenorrheaErythema multiformeErythema nodosumHeadacheHemorrhagic eruptionHemolytic uremic syndromeHirsutismImpaired renal functionLoss of scalp hairNervousnessOptic neuritis, which may lead to partial or complete loss of visionPancreatitisPremenstrual syndromeThe above is from rxlist.com. I agree with Fauve - you need to get off of the synthetic hormones and get some tailor made and compounded at a compound pharmacy...saliva hormone testing may be more accurate than blood. Consider acupuncture and a good Chinese herbalist to help get your periods back on track. It is also fantastic for endometriosis. I assume you have had a full lower abdominal and vaginal ultrasounds? Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • FYI I wouldn't suggest any plant hormones without a dx.... some diseases can be made worse by natural progesterone. Please get a dx first before trying a supplement like that. You could get sicker with some natural hormones such as plantestrogens. One of the reasons that endometriosis is so widely underdiagnosed is because it is only diagnosed through examination of tissue biopsied during laparoscopy. For an immediate over the counter remedy, give natural progesterone cream a try. There are many supportive endo groups on yahoogroups.com that I would check out as well. Just do a search there for endometriosis.
    TaylorDeelwithit 382 Replies Flag this Response
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