Discussions By Condition: I cannot get a diagnosis.

seizures, hyporeflexia, progressive loss of sensation

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: hydraastra
  • February 18, 2009
  • 03:27 AM


I'm a medical graduate student in my early 20's. I was recently forced to go on medical leave (and consequentially lost my medical insurance) following a seizure that took place while in my doctor's office (lasting approx 5 minutes + with motor involvement, but without complete loss of consciousness). Following an interview, my neurologist suspected epilepsy.

While an MRI and CT came back clean, 2 EEG tests showed abnormal patterns: one "unknown" to the neurologists on staff at the hospital; and the second, sleep deprived scan showed epileptiform patterns. Both the referring physician and my neurologist noted hyporeflexia.

I've progressively lost sensation in my hands over a period of 4 - 6 months, starting on the right ulnar side and then spreading radially. The same pattern of numbness began in my left hand shortly after the right. I now routinely blister my fingers because of unwitting contact with hot materials.

In the past month and with increasing frequency, I'm experiencing intermittent loss of perception of my arms... they feel disconnected from my body.

Other symptoms I've experienced frequently include muscle soreness (usually worst in the morning), migrating joint pain, fatigue, nausea and vomiting.

I'm very concerned about the severity and progression of these signs/symptoms. I'm still waiting for nerve conduction tests and consultation with an epilepsy specialist. As the wait time between appointments with my neurologist is ~ 3 months, I'd like to have as many ideas as possible when I speak with her next.

Also, how worried should I be?

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