Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 4, 2010
  • 02:32 AM

I was treated for epilepsy for about seven years; some medications worked and some didn't but the side effects were awful enough that eventually I stopped taking anything. I was fine for a couple of years but over the past month I've been having episodes. They go like this:
At first, I usually feel panicked and dizzy. Sometimes I'll get a sensation like I'm being pulled out of my body. I usually start to shake a little.

After about a minute of this, my right arm and sometimes my leg muscles start to clench. Occasionally my entire body will spasm to the point that I hit my head on things, but not often. I can hear a ringing in my head and sometimes I start to choke. I've been told this lasted a minute or two the times my friends have been there to see one, although I have a hard time keeping track of time.

After that ends, I get angry, tired and confused. I can remember what's just happened, where I am and who I am, but I have a hard time processing things.

I moved a while ago, and the neurologist where I live now has told me these new episodes must be pseudoseizures since I can remember them. I went to another nearby neurologist to get a second opinion and was told they're probably being caused by a heart murmur of some kind. I described them to my primary care doc and was told that to her they sound like seizures. Does anybody have any ideas that might help? Please, I need to take care of this. I'm scared.

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