Discussions By Condition: I cannot get a diagnosis.

segmental neurofibromatosis ?????????

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • December 9, 2010
  • 02:11 PM

My 6 year old son has been going back and forth to CHOP for the past year and a half or so... he started with REAL BAD MIGRAINS!!! then we noticed light brown spots on his neck spreading down his chest and now he has a few in his armpit.
His neurologist says he does not have neurofibromatosis but at the dermatologist yesterday they say it is most def segmental NF.......

This is such a rollercoaster ride>>> i dont know whom to believe!!!!

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.

Signs of a Psoriasis Flare

Know the five types of psoriasis and how to spot flares.

How Diabetes Medications Affect Your Appetite

Newer diabetes treatments can suppress appetite and aid weight loss.

What to Do For Dry Mouth

Try these tips to get your salivary glands back into action.

The Painkiller – Constipation Connection

Constipation is a common side effect of opioid and narcotic pain medicines.

9 Signs of Sensitive Skin

Is it sensitive skin or something else?