Hi everybody, I am new here. I was very recently diagnosed with the following three conditions; I believe them to be secondary and perhaps other unseen/undetected conditions are what actually led up to them:
Swollen Lymph Nodes (found by chance on MRI of brain and spine)
The purpose of the blood work and MRI was to finally, definitively, and conclusively rule out Multiple Sclerosis and find out what, exactly, it is that I do have.
The three conditions above have been diagnosed, however, the difficulty is in finding the "core cause" or the underlying condition(s) that provoked the onset of the above disorders.
Going through the Multiple Sclerosis testing, testing, testing ... processes of elimination ... and now having the very unexpected, but conclusive and definitive answer: I do not have Multiple Sclerosis, but I do have the above three conditions.
Does anyone know what could be looked at next, may have been overlooked, or have may since changed and developed resulting in a different result? I've been looking over the lymphomas/cancers/leukemias, etc. Also, the many different viral/bacterial possibilities and it appears that everything is covered. The only possible exception I can find is in the cancers, given that some form may have developed later (those tests were thoroughly conducted in 2005, perhaps since, that has changed). Or perhaps with others ... results did not reflect accurately or developments occurred following these tests that made them "pass" perhaps like Lyme Disease, Lupus, and similar (again, just repeated). Many of them have already been repeated (some multiple times over the years) to confirm; any ideas?
Perhaps tests are available that are more rare, not usually done, or perhaps non-traditional in "atypical" cases when/where everything "appears" to have been ruled out and left only the three listed above? Any ideas? I see, remaining, cancers (as mentioned above) and PML; it's lookin' a bit grim.
All feedback immensely appreciated; thank you for taking the time!! I will be posting more information; I'm very sick and it's "time out" for me.
Thanks so much!
~ Cindy :eek:
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