Discussions By Condition: I cannot get a diagnosis.

Seeing the 18th Doctor Tomorrow, still fatter...

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: ratmando
  • January 29, 2007
  • 06:33 AM

:confused:
I've been to endicrinologists, internal medicine professionals, gynos, shrinks, nutritionists, dieticians, and joined diet boards.

Here's the VERY short version-- I eat 1000 to 1200 calories a day, of healthy, well balanced meals. One nutritionist was so sure that I was lying on my food diary that she offered to STAY at my home for a week. Eight days later, after her supervised approach, she nearly fell over when she saw I GAINED six lbs. (She had me eat two meals more a day than I usually do.)

Since the start of last year, I went from 140 to 198. The year before, I went from 119 to 140. I had been 119 for six years. Before that I was 139 for four years, and then 123 for 13 years.

See the problem? Neither does the forum of doctors. No one has an answer. Every one TRIES to toss answers out.
"Oh it's cushings for sure.." tests come back, "Nope not at all."
"HEY, it's got to be thyroid!" tests come back, "Not even close."
"Oh wait a minute, fibroids, PCOS, or how about estrogen?" another parade of tests go by, "Well geez, not even menopausal."

I'm only 5' 2.5", and despite the fact I keep getting heavier, I get told, "Oh you don't look fat, its got to be muscle weight." Well, no, I'm disabled, and I use bands, and housecleaning as my only form of exercise. "You must be eating when people aren't looking." Not a chance..I have to be reminded to eat. I don't do it except by scheduled meals.

I don't drink. I don't smoke. I take medications, for depression, (went through 11 formularies just to find ONE that wasn't putting on 4 to 10 lbs a week.) When I was put on steroids after a sinus infection, I BEGGED the doctor not to put me on prednisone. The very first weight gain happened after a bout of these meds after I dislocated my shoulder. Although I LOOKED like I had cushings, no tests indicated that as the truth.

I am visiting Dr. 18 tomorrow. This is the first doctor to look at me and ask me when I had my baby. I have NEVER been pregant. Never plan to be. She said, "you have breasts like a woman nursing." Yes, and I have been complaining about having milk issues, too, but alas, my prolactin says nothing of the sort is happening. In fact, I've gone from a 33a to a 40C in less than four months. (Doctor 17 was the gyno who found no cysts, no abnormal hormones, and despite my decreased libido, decided I had no reason to have any lack of a sex drive.)

She sent me to a shrink after our first appt. He put me on Lamictal. And he had the nerve to say, "You probably like those breads, though, right?" As if he wanted to trick me into telling him that all of those tests were a waste of time, and I was on the couch wolfing down bon bons or something. I was sent to him for a very poor body image issue. Unreal.

Is there ANYTHING doctor 18 will find? I am just gaining weight, and in the last two weeks since our first visit, it's been 8 lbs. This is faster than when I was on prednisone. I'm just beyond depressed, and am I really beyond help? Is there no way to stop this from happening over and over???

I hope someone here can point me to something that isn't "OH try green tea" or, "did you try hoodia?" That's not the issue. I have to fight to be hungry, not fight not to be. I'm even embarrassed to be seen in public.

Help?
Ratmando

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5 Replies:

  • OMG girl, my heart goes out to you!!!! Doctor number 18??? holy smokes!! You really should try to see some type of alternative doctor. Acupuncturist, homeopathy, something other then medical doctors if they are not helping you. What makes me so sad in this world today is that our health care is failing us! We live in the richest country in the world and we have the best technology, yet we are getting sicker and sicker. I wish I had the answers for you!! I seen something like this on discovery health channel called mystery diagnosis. That show always *****s me off so bad watching those poor patients suffer so much and most of the doctors don't even seem to care :( I don't remember what the girls diagnosis in the end was. I just now wrote to the discovery health channel site to see if they could help me out. Being female and how we live in a world that puts such pressure on being thin and seeing how thin you were for so long really makes my heart go out to you girl!!I really hope you get better soon!!!!!Stacy
    HappyHealthyGirl 26 Replies
    • February 2, 2007
    • 04:58 AM
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  • That was Cushings. I was on the board with Char for a year. and went through every test for that, too. In fact, after my appt the other day, the new doctor gave me two tests the other doctors failed to even try...an MRI for a pituitary tumor, and an estrogen sensitivity test. The MRI showed a mild swelling in the area, showing a minor infection which may be the cause, or it may be a symptom. It's the closest thing I have to any diagnosis to date. I have a genetic disorder, so I may go to see a geneticist to see if I was misdiagnosed there. I don't know. I do have some problems with some of the alternative therapies. My husband works for some world renown skeptics so I've read and seen some pretty shady stuff done in those worlds too. I'm putting myself up for some medicine tests.The new doc did start me on Topomax. Here's a shocker? I lost two pounds since Monday. Maybe it's the drug I'm looking for.thanks so much for your support, it means more than you know.ratmando
    ratmando 2 Replies
    • February 2, 2007
    • 06:19 AM
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  • All that matters is that you feel better and that you get healthy and happy. What can I say about skeptics?? To me they are either scared, jelous, or have some connection with greedy field of pharmacuticals. Who does your husband work for if you don't mind me asking. If you feel more comfortable emailing me, please feel free, my email address is mistatetrooperwife@hotmail.com I am glad to hear you are feeling better!! I hope you are 100% healed soon :0) Stacy
    HappyHealthyGirl 26 Replies
    • February 2, 2007
    • 06:35 AM
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  • I found this site about topamax http://www.crazymeds.org/topamax.html But if its working for you,that is awesome :)One book I would really recommend is Dr Weils book Spontaneous Healing : How to Discover and Embrace Your Body's Natural Ability to Maintain and Heal Itself this book is amazing in every way. Its easy and fun to read, you can find it cheap on ebay or amazon, or your library for free. More healing thoughts to you...Stacy
    HappyHealthyGirl 26 Replies
    • February 2, 2007
    • 06:43 AM
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  • Hi,Have you been informed of and looked into food intolerences? They are rarely diagnosed, and ALMOST NEVER DIAGNOSED in patients who gain weight. Unfortunately, weight gain is one of the more common symptoms of a food intolerence. As the intestines break down, your body could enter famine-mode and store every bit of nutrition it can. But doctors are usually looking for people in the other end of famine mode, people who eat a ton and constantly lose weight. Its the same cause, it just has so many diametrically opposed possibilities for symptoms that its rarely caught. Personally, I was eating about 1 meal a day and I weighed about 200 pounds. The doctors basically never believed me and disregarded any pains, rashes, or other symptoms I complained about. At best, they would suggest some depression medication or some steroids to treat areas that weren't growing and regenerating correctly (skin, nails, hair).Physically, the bloating caused by intolerence can cause the face and abdomen to puff up into a rounder shape. I've heard it looks similar to Cushing's. Once I stopped eating gluten (protein found in wheat, rye, barley), I found my appetite AND lost 40 pounds. Sounds weird huh? For gluten, its called Celiac's Disease. People have reported the same result from milk protein, potatos, tomato (and this includes a larger group of foods with a certain trigger chemical) soy, corn, rice, and a whole list of additives and man-made chemicals. Unfortunately, the western medical establishment doesn't really recognize non-gluten food intolerences as a serious condition. (I always wonder if this has something to do with not being able to prescribe a cure)Your body doesn't want to eat - but you're gaining weight. Your body is telling you that the food you're getting isn't good and its scared that good enough food isn't going to arrive in time.
    Azaral 152 Replies
    • February 2, 2007
    • 00:55 PM
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