Discussions By Condition: I cannot get a diagnosis.

scared and all tests keep coming back neg.

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: ssaundsavann
  • November 8, 2006
  • 06:28 PM

ok so here is a list of my symptoms that no doctors can figure out...
open red sores all over my body that itch from time to time sometimes they come and go but when they go they leave a white patch and then come back later inn the same spots. went to dermatology results just came back that my skin thickens in the area. nothing other then that.
i have mental confusion feels like my whole life is just a blur. i had a MRI recently and only came back that i have an enlarged penial cyst in the middle of my brain but they dont think its that. I also have mood swings so horrible that i cant even stand it i have to sit in my room just so i dont hurt my family. they gave me zoloft to try to fix this.
I also get bruises from no where.... i get shakey sometimes..... i panic im losing it... i get sooo tired sometime i pass out where ever i am even if its in class. I also have pains in my stomach sometime that hurts so bad my whole body cringes.
gosh i know those are alot of symptoms to put out but maybe someone is going through the same thing as me and could really help me out because its just getting me more scared.:confused:

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18 Replies:

  • From your symptoms I can understand that you must be very scared. Is the mood swings caused by the fact that you are worried? If you think it might be, you have to try and relax a bit more. I know it's hard, but maybe get a cool hobby so that you feel you are doing something productive. It might also be a good idea to find a doctor who really cares. This is difficult, I know, but if you have medical insurance it might be good to go private. Some doctors just do the tests to try and keep you quiet. They are not interested in finding the problem. Have you tried allergy tests? Could it perhaps be your washing powder? Does it help when you take anti allergy tablets & creams? The pains you are getting might be a result of stressing about your condition. You would be surprised how sick stress can make you. I hope you get better soon :)
    Sunflower 1 Replies
    • November 9, 2006
    • 02:57 PM
    • 0
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  • 1. Sores - Soriasis, eczema ? Dermatologist/Primary Physician/D.O. 2. Moodiness - ADHD, Bipolar, depression, anxiety disorder, social disorder, high levels of testosterone ? Primary Care physician, Therapist, Psychologist, or Psychiatrist. 3. Bruises/Tiredness - Anemia/Low Iron, low blood platelettes/Idiopathic Thromboplacentia Purpura - Bleed easily if cut/surgery performed, etc. when platelettes are low, Hemophelia, etc. Blood disorders - Hematologist. Have you been tested for all these ? warmangel67@yahoo.com ok so here is a list of my symptoms that no doctors can figure out...open red sores all over my body that itch from time to time sometimes they come and go but when they go they leave a white patch and then come back later inn the same spots. went to dermatology results just came back that my skin thickens in the area. nothing other then that.i have mental confusion feels like my whole life is just a blur. i had a MRI recently and only came back that i have an enlarged penial cyst in the middle of my brain but they dont think its that. I also have mood swings so horrible that i cant even stand it i have to sit in my room just so i dont hurt my family. they gave me zoloft to try to fix this.I also get bruises from no where.... i get shakey sometimes..... i panic im losing it... i get sooo tired sometime i pass out where ever i am even if its in class. I also have pains in my stomach sometime that hurts so bad my whole body cringes. gosh i know those are alot of symptoms to put out but maybe someone is going through the same thing as me and could really help me out because its just getting me more scared.:confused:
    warmangel67 1 Replies
    • November 9, 2006
    • 06:08 PM
    • 0
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  • umm.I had some of those symptoms and I ended up having a severe mold allergy. You may want to see an allergist... and ur not crazy, the doctors will tell you that but dont fall into their trap. if I would havestopped looking for answers and would have not figure ot what was wrong with me recently my doc said I what have been dead before this christmas. keep strong! I know its hard. My symptoms were..1. coughing attacks2. Rapid breathing3. seizures4. joint pain/swelling5. back pain6. nausea7. headaches8. I had mood swings cause deep down I was afraid, I agreed to go on anxiet meds just to help me relax about the fact no doctor knew and everyone was calling me crazy9. such a litle thing and 30 doctors couldnt figure it out.. If even have the slightest allergey to mold it can still harm u! so even if the doctors disagree have someone get all of the mold out of ur house for u.. my mom did for me and I am feeling better and get to go home tomorrow! I barely made it but i did.. I get to have another christmas.. hey i am 13 I like those.
    Anonymous 42,789 Replies
    • November 12, 2006
    • 02:18 AM
    • 0
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  • wow thanks i havnt been to an allergy doctor but i will schedule an appointment as soon as possible. thank you guys so much for responding back!!
    Anonymous 42,789 Replies
    • November 13, 2006
    • 06:42 PM
    • 0
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  • Hi Ssaundsavann,The doctors may have dismissed an enlarged paneal cyst, but I don’t think that is something you should do. I just had a squiz on the net about the paneal gland. It produces melatonin which regulates sleep and may also help with the immune system. Your tiredness and skin rash may be linked to the cyst. And if you aren’t getting enough sleep you are going to be moody. It might be a good move to have your melatonin levels checked. Zoloft is a wonderful medication, but you need to get to the cause or you are only going to get worse. I can’t see how a cyst on such an important gland cant’ be causing at least some grief with you. Go to sites where people who have paneal cyst discuss what is happening to them. Do some research of the paneal and see what you think is relevant to you.Once you sort out any possible link with the cyst and your health you can then deal with what may be causing your other problems if they aren’t connected. And don’t be scared, or this will increase you anxiety. In the meantime lie down and take some deep breaths when you are feeling anxious or moody. Breathe in through your nose and exhale through your nose, keep your mouth closed and breath like this normally and in a relaxed manner.Stress can cause pain in the stomach as the bowls can spasm, and this can lead to constipation and the runs.And as warmangel67 suggested, get your iron checked as low levels cause some of what you describe.Keep us postedAgape,searchingsam
    Anonymous 42,789 Replies
    • November 14, 2006
    • 03:54 PM
    • 0
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  • I read all of your symptoms and the first thing I thought of is SLE (lupus.) Lupus is a disease that is extremely difficult to diagnose as it has such a wide variety of symptoms. I have read that it is not uncommon for people to go 8 years before being properly diagnosed because it is something doctors don't think of. (BTW, I am currently experiencing your symptoms exactly, plus several more. I am going through the same frusteration, but am seeing every doc possible and getting test after test.) One of the responses to your question mentioned that the cyst in your brain is located in an area that has to due with your immune system, which makes absolute perfect sense to me! Lupus is kind of the opposite of AIDS. Instead of not having enough antibodies, your body is overly aggressive in this area and creates antibodies that actually begin to fight your body's healthy cells. (Hence, it's an auto-immunalogical disorder.) There is a very specific blood test they can do to test for these antibodies, called an "ANA" test. 95% of people with lupus test positive for ANA. Although a positive ANA test doesn't necessarilly mean that you have lupus, it will direct the doc in the right direction and you will be on your way to the right diagnosis. I hope this is helpful to you. Good luck!
    Anonymous 42,789 Replies
    • November 15, 2006
    • 01:56 AM
    • 0
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  • Have you had your thyroid levels tested? I have the exact symptoms, and just recently been diagnosed. If you haven't had that tested, might not be a bad idea.
    Anonymous 42,789 Replies
    • November 15, 2006
    • 04:37 AM
    • 0
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  • The skin problem alone sounds like herpes. I have very itchy raised bumps that go away only to return in the same location. Mine is aggravated by tannning beds and scratching. If you can handle not touching it at all, it'll go away much quicker. If it is herpes, it is for life. Don't feel alone, one in four Americans have herpes.
    Anonymous 42,789 Replies
    • November 15, 2006
    • 10:59 PM
    • 0
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  • my thoughts on reading your post were allergies along with something else..as allergies dont match up to all your symptoms thou tiredness, mood swings, feeling shaky, mental confusion, stomach pain etc can be allergies. ok so here is a list of my symptoms that no doctors can figure out...open red sores all over my body that itch from time to time sometimes they come and go but when they go they leave a white patch and then come back later inn the same spots. went to dermatology results just came back that my skin thickens in the area. nothing other then that.i have mental confusion feels like my whole life is just a blur. i had a MRI recently and only came back that i have an enlarged penial cyst in the middle of my brain but they dont think its that. I also have mood swings so horrible that i cant even stand it i have to sit in my room just so i dont hurt my family. they gave me zoloft to try to fix this.I also get bruises from no where.... i get shakey sometimes..... i panic im losing it... i get sooo tired sometime i pass out where ever i am even if its in class. I also have pains in my stomach sometime that hurts so bad my whole body cringes. gosh i know those are alot of symptoms to put out but maybe someone is going through the same thing as me and could really help me out because its just getting me more scared.:confused:
    taniaaust1 2,267 Replies
    • November 18, 2006
    • 00:54 PM
    • 0
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  • Don't be so sure, allergy to wheat can cause "Dermatitis Herpetiformis" that is, in English: "A skin inflamation that looks & acts like herpes." The cysts could be a storage dump for the body's spent anti-bodies, since they can take up to two years to process in individuals who show skin-rash related symptoms to allergy/intolerence. (I think this is because the body attempts to process the used up antibody "trash" through the skin's pores via sweating. Do the open sores start as small bumps that are easily scratched off? If so, that is your anti-body trash gathering up next to the edge of the skin, waiting to slowly ooze out.)I say, look for the solution that explains ALL the problems at once, and allergy/food intolerence DOES cover all the bases.Here's the full list of symptoms proven to be associated with and/or cured with dietary elimination of allergens (courtesy of http://www.healthrecipes.com/allergy_symptoms.htm):Abdominal pain Aching muscles and joints Acne Addictions Arthritis Asthma Athlete's foot Bad breath Bed wetting Blackouts Bloating Blood sugar problems Blurred vision Breast pain Catarrh Chronic Fatigue Syndrome Coated tongue Colitis Constant hunger Constipation Crawling sensation on skin Diarrhea Difficulty in swallowing Dizziness Eczema Excessive thirst Excessive or no sweating Fatigue Feeling drained Flushes Food cravings Frequent need to urinate Gall bladder problems Gritty feeling in eyes Headaches Heavy body odor High/low blood pressure Hives Indigestion - recurring Insomnia Irritable Bowel Syndrome Itching Itchy and red earsJoint pain, stiffness and swelling Lethargy Menstrual problems Metallic taste Migraine Mouth ulcers Muscle aches and cramps Muscle tremors Muscle weakness Nausea Palpitations Persistent cough Poor balance Post-nasal drip Pre-menstrual problems Racing pulse Rashes Recurring ear infections Restless legs syndrome Sensitivity to light and noise Sinusitis Sleep disturbances Sore tongue Sore, itching, puffy or burning eyes Stiff neck Sties Temperature fluctuations Thrush Tics Tinnitus Urticaria Vertigo Watering eyes Weight problems Wheezing Mind, emotions and behaviourAccident prone Anxiety Anger for no apparent reason Attention deficit disorder Behavioral problems Blankness Brain fogging Changes in handwriting Clumsiness Confusion Delusions Depression Detached or unreal feeling Difficulty waking up Disorientation Dyslexia Feelings of dissociation Fidgeting Hallucinations Hearing without comprehension Hyperactivity Inability to think clearlyIndifference Irritability Math and spelling errors Memory loss Mental exhaustion Mood swings Panic attacks Phobias Poor concentration Poor self image Poor memory Reading problems Restlessness Slow processing information Slurred speech Stammering Suicidal feelings Tenseness Uncontrollable rage Weepiness WithdrawnUntreated, and this list looks like a list of minor annoyances, as the "end-game" of a food allergy is usually Lupus, rhuemetoid arthritis, dementia, thyroid failure, gallbladder/kidney/liver disfunction and an overall doubled mortality rate.
    Azaral 152 Replies
    • November 18, 2006
    • 02:13 PM
    • 0
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  • stevens-johnson syndrome?maybe?There are diff levels to the syndrome. Sometimes hangs around for years sometimes turns into something deadly.Just a thought. But please Get a new doctor to help youYou may have to devote some time to switching doctors until you land on the one that can and will help.good luck!!!!
    Anonymous 42,789 Replies
    • December 20, 2006
    • 07:24 PM
    • 0
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  • thanks Azaral for explaining how even that cyst could fit with allergy stuff. Don't be so sure, allergy to wheat can cause "Dermatitis Herpetiformis" that is, in English: "A skin inflamation that looks & acts like herpes." The cysts could be a storage dump for the body's spent anti-bodies, since they can take up to two years to process in individuals who show skin-rash related symptoms to allergy/intolerence. (I think this is because the body attempts to process the used up antibody "trash" through the skin's pores via sweating. Do the open sores start as small bumps that are easily scratched off? If so, that is your anti-body trash gathering up next to the edge of the skin, waiting to slowly ooze out.) I say, look for the solution that explains ALL the problems at once, and allergy/food intolerence DOES cover all the bases. Here's the full list of symptoms proven to be associated with and/or cured with dietary elimination of allergens (courtesy of http://www.healthrecipes.com/allergy_symptoms.htm): Abdominal painAching muscles and jointsAcneAddictionsArthritisAsthmaAthlete's footBad breathBed wettingBlackoutsBloatingBlood sugar problemsBlurred visionBreast painCatarrhChronic Fatigue SyndromeCoated tongueColitisConstant hungerConstipationCrawling sensation on skinDiarrheaDifficulty in swallowingDizzinessEczemaExcessive thirstExcessive or no sweatingFatigueFeeling drainedFlushesFood cravingsFrequent need to urinateGall bladder problemsGritty feeling in eyesHeadachesHeavy body odorHigh/low blood pressureHivesIndigestion - recurringInsomniaIrritable Bowel SyndromeItchingItchy and red earsJoint pain, stiffness and swellingLethargyMenstrual problemsMetallic tasteMigraineMouth ulcersMuscle aches and crampsMuscle tremorsMuscle weaknessNauseaPalpitationsPersistent coughPoor balancePost-nasal dripPre-menstrual problemsRacing pulseRashesRecurring ear infectionsRestless legs syndromeSensitivity to light and noiseSinusitisSleep disturbancesSore tongueSore, itching, puffy or burning eyesStiff neckStiesTemperature fluctuationsThrushTicsTinnitusUrticariaVertigoWatering eyesWeight problemsWheezing Mind, emotions and behaviourAccident proneAnxietyAnger for no apparent reasonAttention deficit disorderBehavioral problemsBlanknessBrain foggingChanges in handwritingClumsinessConfusionDelusionsDepressionDetached or unreal feelingDifficulty waking upDisorientationDyslexiaFeelings of dissociationFidgetingHallucinationsHearing without comprehensionHyperactivityInability to think clearlyIndifferenceIrritabilityMath and spelling errorsMemory lossMental exhaustionMood swingsPanic attacksPhobiasPoor concentrationPoor self imagePoor memoryReading problemsRestlessnessSlow processing informationSlurred speechStammeringSuicidal feelingsTensenessUncontrollable rageWeepinessWithdrawnUntreated, and this list looks like a list of minor annoyances, as the "end-game" of a food allergy is usually Lupus, rhuemetoid arthritis, dementia, thyroid failure, gallbladder/kidney/liver disfunction and an overall doubled mortality rate.
    taniaaust1 2,267 Replies
    • December 20, 2006
    • 11:12 PM
    • 0
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  • If you are female it probably would also be a good idea to be charting your menstral cycle and moods, to see if your moods are worst at all at certain times of the month, make sure that part of your problem (the moods) isnt hormonal. Hormones can affect females mood wise at different times of the month and some females can be majorally affected. IF you are female and get missed or irregular periods too.. major mood problems could be caused hormonally by something like PCOS.
    taniaaust1 2,267 Replies
    • December 20, 2006
    • 11:22 PM
    • 0
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  • I did a little research myself & I agree with searchingsam on this. You need to do your own research on the net about the pineal gland. That could be causing most of your problems (if not one of them).
    Anonymous 42,789 Replies
    • December 21, 2006
    • 04:54 AM
    • 0
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  • Mold allergies are a possibility. Any chance that your home has mold? I have numerous symptoms and multiple fungal infections due to exposure to toxic mold and mycotoxins. I have an infection in my hypothalamus which causes many CNS issues: The hypothalamus is part of the brain structure that serves to activate, control, and integrate th peripheral autonomic mechanisms, endocrine activities and many somatic functions. Good luck!
    jeff88 15 Replies
    • January 4, 2007
    • 05:21 AM
    • 0
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  • I understand how you feel my symptoms are different but in the same boat, i have had so many tests done and i feel worse every year have you been tested for all autoimmune diseases? the ana test?
    erin23 19 Replies
    • January 7, 2007
    • 06:21 AM
    • 0
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  • Prior to diagnosis, I was tested for everything. Final diagnosis was partly due to positive testing of our home for high levels of Asp., Stachy., Fusarium and others. When you say you feel worse every year do you notice an onset during Spring with increasing severity until winter?
    jeff88 15 Replies
    • January 7, 2007
    • 09:18 PM
    • 0
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  • I have mycotoxins from mold...my IGE levels are 1987...I couldn't drive for months...where to go to detox?
    Anonymous 42,789 Replies Flag this Response
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