Discussions By Condition: I cannot get a diagnosis.

Sarcoidosis treatment failing, kidneystones

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • October 2, 2009
  • 09:07 PM

Help! I was diagnosed with Sarcoidosis in the lymph system last year after a biopsy. All treatment has failed. It has seemed to spread to my brain and now my kidneys are showing signs of stones and failure! I'm too young for this and have kids to finish raising! We've tried steroids and methotrexate to no avail. My doctors don't know how to proceed. Any ideas?

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  • Help! I was diagnosed with Sarcoidosis in the lymph system last year after a biopsy. All treatment has failed. It has seemed to spread to my brain and now my kidneys are showing signs of stones and failure! I'm too young for this and have kids to finish raising! We've tried steroids and methotrexate to no avail. My doctors don't know how to proceed. Any ideas?steroids is really all i can tell you prolong them start off with a high dose probably 30mg for a while and wean off depending how bad you are.... i feel for you ... i suffer kidney stones urinating blood seriously in so much pain for years now and my liver is growing a granduloma now, needless to say my lungs i belive is in the 3rd stage ... hang in there god bless you and i wish u the best many blessings... i too am a mother of 2 beautiful girls and i pray i am here to watch them grow up....
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