Discussions By Condition: I cannot get a diagnosis.

Sandifer's Syndrome

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • February 7, 2011
  • 02:24 AM

My daughter is 3.5 years old and has been "cramping up" (that is what our family has adopted as a name to the condition) since she was 2-3 months old. After many doctor visits, specialist visits, and test we were told she has Sandifer's Syndrome, which a condition that children with acid reflux get. Now that she is older our doctor tells us it has become a "learned behavior" and it is her way to deal with situations that cause her anxiety. I do not know how much of that I believe because the times and situations the episodes occur are not always stressful or exciting. I am very concerned that it may be a bowel issue, and after reading about the boy that was backed up, even though he was having regular bowel movements, makes me want to find out if it is indeed a bowel issue. I highly doubt that a baby is trying to stimulate themselves. And those of us that go through this everyday with our children know they are in some sort of pain or discomfort. Just know that there are others out there that are going through the same ordeal. As hard as it is for parents to understand, it is harder for the children that are going through it. IF ANYONE HAS AN ANSWER OR POSSIBLE DIAGNOSIS, PLEASE, PLEASE, PLEASE SHARE IT WITH THE REST OF US.

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