Discussions By Condition: I cannot get a diagnosis.

Ruled everything out and can't get a diagnosis

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • April 27, 2010
  • 11:28 PM

I need help with diagnosing my son. He was born full term, healthy and I breastfed him for the first 4 months and began supplementing formula at 3 months as my milk began to dry up. Suddenly at three months of age, he became tachypnic. He still presented as very happy and outwardly healthy. He was diagnosed as having bronchialitis after a chest x-ray and was considered to be asthmatic. He began nebulizer treatments at this time as well.
He is now 14 months old and continues to present with tachypnea. He was hospitalized for four days at the age of 9 months for exacerbated tachypnea and oxygen level of 86. He was put on steroids during his hospital stay. Since that time he has continued to shay tachypnea and has since been diagnosed as failing to thrive. His weight has fluxuated between 17 and 19 pounds for about four months now. He barely gains a pound only to lose it again. He has been seen by an allergist, a cardiologist, a pulmonologist, GI specialist and is scheduled to see a metabolic specialist next month. He has has numerous chest x-rays done, chest CT, bronchoscopy, Barium swallow, PH study, two CF tests, urine and fecal analysis as well as just about every blood test possible all with normal to near normal results. He was diagnosed as having bacteria in his lungs after the bronchoscopy and treated with antibiotics which did not result in any noticeable change. His PH levels are normal as well. Please, if anyone can help me to diagnose my baby, I would appreciate it SO much. He has been through so much and I don't want to continue to put him through more painful procedures only to hear that the results are normal. All of the doctors who have seen him agree that he is not a textbook case for asthma or anything they can immediately think of.

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1 Replies:

  • Your child's symptoms sound similar to my son's, but he is only two weeks old. Tachypnea began after two days. He is on oxygen. Taken every test you mentioned basically. Have you gotten any answers?
    Anonymous 42789 Replies
    • January 25, 2011
    • 08:46 PM
    • 0
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