Discussions By Condition: I cannot get a diagnosis.

Right flank pain since last year and no dianosis.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: kra3690
  • January 19, 2008
  • 06:02 AM

There is no short way of putting my entire story, so here it goes. And i will tell you all my problems and symptoms because i do not know if they have anything to do with the pain of my right side.

I will start off by saying that ever since i was a baby i have had troubles with my stomach and bowel movements. I have been hospitalized way too many times for constipation. Ive tried all kinds of medication, fiber pills, metamucil, softeners, mineral oil and milk of magnesia when i was younger, dulcolax pills, and miralax. The only thing that seems to help with constipation is if i take laxatives...which is not always healthy...and to be honest they are quite painful, all of them, be it pills or liquid or powder. I was finally told that i have IBS. To be truthful, i think the doc only told me that because he didn't know what else it could be.
So first question, is he right?

I had a Laparoscopic Fundoplication done in January of last year. I had extreme acid reflux and had it since i was in the 7th grade (i am now 20 years old). I had tried all kinds of medication and they would help but eventually wore off faster and faster. Had every test done and showed that i had GERD. So thats why they did the surgery.
Since the surgery i have been non stop burping. It doesnt' matter what i eat or drink, i am constatnly burping....and was never really able to burp before the surgery. My doctor doesn't know why because on all the people that he's done the surgery on, they can't burp or throw up at all. With my consitpation problems, ive gotten so sick from taking laxatives that it makes me throw up a little....with this surgery i thought i wasn't suppose to be able to throw up.
Second question, why do i still burp, throw up a little when i get sick, and still have heart burn?

After the surgery, around the end of March, i started getting pain on my right side (flank pain). Certain foods/drinks nor different daily actions contributed to this pain. The pain is quite hard to explain, its just severe and breath taking when it comes. There is also no certain length that it lasts. The only thing that seems to help is laying down, or sitting down. When it first came, i couldn't walk around for long or do anything for a lenthy period of time before the pain. I would have to stop what i am doing and sit/lay down. If i was not able to sit or lay i woul have to deal with it until i was able to, which would make me dizzy, lightheaded, sweaty, and sick to my stomach. I finally went to the doctors, which actually was my surgeon doctor, and i went through just about every test that he could think to do that would be able to find out what it is. (CT scans, X-rays, Ultrasounds, blood tests, urine tests, endoscopies, colonoscopies, IVP, etc..) He tried giving me pain medications: Vicodin, Darvocet, Percocet, Valium, and extra strength tylenol, and none of these worked. Although the only one that seem to have some affect was Valium, and i think thats only because it made me sleepy, and when im sleepy i don't think about the pain. But he thought that was weird because he said there is no muscle there, only my liver, kidneys, and gallbladder.
We finally talked about having my gallbladder removed. I looked it up on the internet and i had all of the symptoms, plus my doc and everyone else thought that it was the issue. So, i had that removed in July of last year. Right after i healed from the surgery the pain was still there. He then had me go through the same tests that i had already been through and everything was the same. I got so frustrated and it got so bad that i would go to the ER and they wouldn't do anything for me, but tell me that i had a bladder infection, or UTI. I began to think that something was wrong being that "had" about 5 UTI's within about 4 months.
I finally went to a regular doctor, not my surgeon doc, and he finally began to go on the right track of something. He told me that they have found blood in my urine everytime ive had a urine test done. None of the ER docs/nurses ever told me this, they just said i had an infection and gave me antibiotics. He had me do two more UTI's spread apart and in between the two i took a different antibiotic. They still came back with blood in it. (wasn't just a little bit of blood. it was an extreme amount everytime) He sent me to a Urologist, and that was when i had the cystoscopy done. Supposidly that came back fine. Reason why i say that is because all the nurses and the doc said that i wouldn't feel anything during this but pressure. I literally screamed at the top of my lungs, and couldn't pee afterwards, and when i did it hurt extremely bad and it took me forever. He was at a dead end because he said no other test would have anything to do with my side pain.
Also: An hour after i had the Cystoscopy, i started having a stomach ache. Thought it was a regular stomach ache, so i went to the bathroom to try and go. I started getting really bad pains and cramps, got hot/sweaty, dizzy/lightheaded, and pale. I screamed for doctors, and a bunch of people came in to get me. I ended up passing out (don't know for how long), but when i faintly woke up i realized that i couldn't lay still at all because the pains were so sharp and i was screaming. They couldn't even get an IV in me. The pain would go away for like 10 min then come back at full force, then go away and so on. They took X-rays, and nothing. Finally gave me some medicine that slowly knocked me out. They had no idea what happened. Doc said only thing he could think of was bladder spasms. I never had the pain again after that day.
Since the Cystoscopy i have had bladder issues. I used to be able to hold my bladder for a while and all through the night. Now, when i have to go, i HAVE to go. If i don't and try to hold it longer, it starts hurting and sending pain to my side. And when i go, if i have tried to hold it longer than i can, it will kind of hurt, send sharp shooting pains to my bladder and my side and upper leg will have small cramps.
Third question: Why do i have bladder issues now? And why does it send pain to my side? Do you think this has anything to do with my pain??

This side pain was so bad that i had to quit my job as a sales associate because i couldn't do the standing, walking, and getting up and down thing. I have no money to pay my bills, and am becoming very frustrated at all of this. I have been trying to get a sit down job of some sort but no one seems to want to hire me. I am only 20 years old and cannot seem to have a life anymore.

During the holidays, i went up to MI for about a week. My side pain only came twice while i was there. When i came back, and as days passed, i began to realize that my pain hasn't came at all. I began to do things again, like shopping, walking, and just try to stay a little busy. Until the other day, my pain came back and at full force. Since last Monday when it came, it has came back here and there but not as strong, but still gets bad enough to where i have to sit down. Since i have been jobless, i haven't been doing anythning but getting rest everyday. If you heard my daily routine you would think im lazy, but im only doing nothing because everytime i go to do something the pain comes and i have to stop.
So, what do i do about this? Every doctor that i see does the same tests and they all come back fine. They're all at a dead end. ( I will say that the doctors that i see are all on base...Wright Patterson Medical Base - Ohio.) And to me, they just seem like they don't know what they're doing. There is no way that the tests are coming back fine and i still have this going on.

**Some important facts:
Ever since i have lived in the this house with my dad we have been sick. He is also very ill and hasn't worked in over a year because of whatever is wrong. They can't find out what is wrong with him either....he has other issues than mine though. We have lived here for abour 5 years. We live right behind a trucking company (fedX). We came to realize that we might have been living with mold in our house the entire time. Our air conditiong went out over this past summer, and it was completely filled with mold....which means our air ducts in our house are filled with it too. We got the air conditiong replaced, but don't have the money to replace anything else.
Could any of this have anything to do with my problems?? (or why my dad is sick too?)

Thank you for your time and reading this. Im sorry it is very, very long, but if i don't tell all the details now, after reading it i would've been asked for details. Hopefully you can guide me in some sort of direction. Please.

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5 Replies:

  • hire a cleaning compn a clean your house from top to bottom my mum had to do that years ago when my younger sister developed asthma and it was found to be triggered by mould a couple of months after my mother did it my sister was fine. Mould isnt good even if it isnt what is causing your illness so have it done.
    s240185 9 Replies
    • February 3, 2008
    • 06:29 AM
    • 0
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  • OH MY GOD!I am 23 and i have been suffering through almost every single thing that you have mentioned, okay so here goes, it all started about four years ago now, when i had my first kidney stone attack, that went horrible and i ended up getting a kidney infection and lots and lots of uti's. after my first stone attack i started to get a horrible horrilbe pain in my my right flank. it was as if someone was trying to tear me into pieces. i was in the hospital in the town where i went to college for about two weeks. i sucked it up and they put me on demerol to get me throught the last few weeks of school and graduation, tah worked fine for a while, then when i came home, everything went to ***l. the pain in my side got so severe i ended up in the emergency department five times in three days, the y thought i was having renal colic so they put me in the hospital and pumped me with demerol and morphine. that was fine, after a few days the pain went down long enough for me to say that i was feeling fine and they sent me home with some antibiotics and said taht it was just a kidney infection brought on by the blockage the stones caused. so a few weeks went by and i felt fine untill one day at work, boom out on the back room floor puking my guts up with a fever and severe cramps, sweating and shivering, one of the guys that i worked with was an EMT so he looked at me and said i had food poisioning, he brought me to the hospital did a urinaylisis and there was copious amounts of blood, so they thought, of course kidney stones, same thing, addmitted, fluids, drugs. this has been going on ever since, i finally found a doctor who was good enough to take my complaints serious ( hmmm...maybe it's not kidney stones?) so he set me up with all the tests, cat, mri, blood pee, poo, x-rays ...you get the drift. so NOTHING came back on any of these tests except for the stones. so he sent me to the urologist, he said that the stones shouldn't be causing me pain, but he would crack me open and take a look, that has yet to happen but hopefully soon! i have to get the thingy (where the stick the light down your throat?,sorry to be so technical) and i am accepted to a chronic pain clinic and there isa doctor who is going to figure out what kinds of medications i should be on (no more morphine!!) seriously, if you are having pain anything like mine, make them give you the narcotics and don't give a **** about becoming addicted untill they figure out what's wrong with you. i highly suggest going to a pain clinic and the medication doctor. they will help immensly. i totally know what you mean. it's like you have no life (maybe that's why i'm writing you 12 on a friday night perhaps?) you lose contact with your friends becasue you are either in pain or you don't have the energy, i lost my job too, and i had to apply for finacial assistance(welfare, but that way just sounds better) no worries about being accpeted, the reason the system is there is for people who really cant work and really need the help. they have great people who really understand, just look up the human resources and labour department and you should be able to find out where to apply. it's a little bit of help but it goes a long way when you don't have to worry about paying bills and being able to concentrate on getting better.i've only recently started being hospitalized for constiaption, which i think is mostly from the morphin and such. but you should also see about getting on a anti-depressant too because i know that everyone has there bad days but the really bad days you need help going through, and going to a counsler in case you don't want to bring a pregnant sister, or a sick father into your ****. and it always helps to have someone with an outside view to give you fresh ideas on what to try. well sorry about the rambbling and i hope you picked out something helpful in this note, at the least to know Our pain is real, it’s not in our heads. It will probably never go away completely. We have to help ourselves to cope with our pain. Pain can destroy us, if we let it. The Medical profession is there to help us, whether we believe it or not, and it super helps to look up chronic pain and other symptoms on the internet and DON'T FORGET TO LAUGH!!!here i'll get you started!For all of you who occasionally have a really bad day when you just need to take it out on someone, don't take that bad day out on someone you know. Instead, take it out on someone unfriendly who you don't know!Now get this. I was sitting at my desk, when I remembered a phone call I had to make. I found the number and dialed it.A man answered nicely saying, "Hello?"I politely said, "This is * and could I please speak to *?"Suddenly, the phone was slammed down on me! I couldn't believe that anyone could be that rude.I tracked down *'s correct number and called her. I had transposed the last two digits incorrectly.After I hung up with Robin, I spotted the wrong number still lying there on my desk. I decided to call it again.When the same person once more answered, I yelled "You're a ******s!" and hung up.Next to his phone number I wrote the word "******s," and put it in my desk drawer.Every couple of weeks, when I was paying bills or had a really bad day, I'd call him up.He'd answer, and I'd yell, "You're a ******s!"It would always cheer me up.Later in the year, the phone company introduced caller ID.This was a real disappointment for me; I would have to stop calling the ******s.Then, one day, I had an idea.I dialed his number, then heard his voice, "Hello."I made up a name. "Hi, this is * with the sales office of the telephone company and I'm just calling to see if you're familiar with our caller ID program?"He went, "No!" and slammed the phone down.I quickly called him back and said, "That's because you're a ******s!"The reason I took the time to tell you this story is to show you how if there's ever anything really bothering you, you can do something about it -- just dial my good ol' friend, the ******s, at *.An old lady at the mall really took her time pulling out of the parking place. I didn't think she was ever going to leave.Finally, she got the car in reverse and she began to move ... very slowly backing out of the slot.I backed up a little more to give her plenty of room to pull out.Great, I thought, she's finally leaving.All of a sudden this black Camaro comes flying up the parking aisle in the wrong direction and pulls into her space.I started honking my horn and yelling, "You can't just do that, Buddy. I was here first!"The guy climbed out of his Camaro completely ignoring me. He walked toward the mall as if he didn't even hear me.I thought to myself, "This guy's a ******s!" There sure a lot of jackasses in this world.Then I noticed he had a "For Sale" sign in the back window of his car. I wrote down the number then hunted for another place to park.A couple of days later, I'm at home sitting at my desk. I had just gotten off the phone after calling * and yelling, "You're a ******s!" (It's really easy to call him now since I have his number on speed dial.)I noticed the phone number of the guy with the black Camaro lying on my desk and thought I'd better call this guy, too.After a couple rings, someone answered the phone and said, "Hello."I said, "Is this the man with the black Camaro for sale?""Yes, it is.""Can you tell me where I can see it?""Yes, I live at *. It's a yellow house and the car's parked right out front."I said, "What's your name?""My name is *.""When's a good time to catch you, *?""I'm home in the evenings.""Listen *, can I tell you something?""Yes.""*, you're a ******s!" And I slammed the phone down.After I hung up, I added Don Hansen's number to my speed dialer.For a while, things seemed to be going better for me.Now, when I had a problem, I had two jackasses to call.Then, after several weeks of calling the jackasses and hanging up on them, it just wasn't as enjoyable as it used to be.I gave the problem some serious thought and came up with a solution.First, I had my phone dial ******s #1.A man answered nicely saying, "Hello."I yelled "You're a ******s!", but I didn't hang up.The ******s said, "Are you still there?"I said, "Yeah."He said, "Stop calling me."I said, "No."He said, "What's your name, Pal?"I said, "*."He said "Where do you live?""*. It's a yellow house and my black Camaro's parked out front.""I'm coming over right now, Don. You'd better start saying your prayers.""Yeah, like I'm really scared, ******s!" and I hung up.Then I called ******s #2.He answered, "Hello."I said, "Hello, ******s!"He said, "If I ever find out who you are...""You'll what?""I'll kick your butt.""Well, here's your chance. I'm coming over right now, ******s!" And I hung up.Then I picked up the phone and called the police. I told them I was at * and that I was going to kill my brother-in-law as soon as he got home.I made another quick call to Channel 13 about the gang war going down on West 34th Street.After that, I climbed into my car and headed over to * to watch the whole thing.Glorious! Watching two Jackasses throwing punches and kicking one another in front of 6 squad cars, a police helicopter, and channel 13 news cameras!!!It was one of the greatest experiences of my life!http://forums.wrongdiagnosis.com/images/icons/icon7.gif
    phish_54 1 Replies Flag this Response
  • Hello, I am 21 years old and the flank pains you are describing are very similar to mine. You sound like you have had some pretty extreme cases though. Anyway, i am a pretty active person; i work at a camp ground in the summer which keeps me very active and i play disc golf which also entails lots of walking. During the winters i came kept pretty active walking to school and to my classes. I have these flank pains since i was about 12-13. But it has made certain activities a living ***l. I had to quit several jobs due to the pain, i frequently have to sit down, and some times the pain will not go away when i am just laying in bed to sleep and it keeps me up for many hours. Like you, i have been in and out of the doctors trying to diagnose this. I have had test after test (no surgery though... since there has been no apparent need for it) they have found nothing time and time again. I have tried suggestion after suggestion given to me by the doctor. Nothing has worked. I have since then, given up, am thinking ill just have to buck up and deal with it. But the pain tends to stay on my right side (flank area). The pain almost seems to pulsate, what i mean is the pain will barely be noticable then it will slowly build up and peak the dissapate into barely noticeable pain (all happening within about a 45 sec time span) and the process repeats itself. Sometimes the pain is in the left flank and sometimes it is on both. The pain can range from irratating to nauseating and i cant even talk. As you mentioned the pain is usually brought on by physical activity, but i have suffered this pain while just laying in bed or something not physical at all. As of now, the doctors have told me nothing that has worked. Im not sure if your problem is the same as mine, but they do sound somewhat similar. If you happen to find a solution or anyone who comes across this has a solution my flanks will be happy to hear from you. Thanks alotPS. It is good to know i am not the only one suffering from these ***n flank pains!
    Anonymous 42789 Replies Flag this Response
  • Hi I am sorry to hear you are having such a rought time. I'm not a Dr so I may be way off track with the following suggestions, but I would consider the following causes of your symptoms.1. Acute intermittent porphyria - a rare metabolic disorder2. Dobriner syndrome 3. Familial visceral myopathy 4. HELLP syndrome 5. Porphyria, hereditary coproporphyria You will be able to find more info on the internet on all of these conditions and this should tell you whether you think they are worth investigating with the Dr's. Good luck.
    ruth40 55 Replies Flag this Response
  • I Have been having right flank pain for over 3 years now. It started with blood in urine Doctor thought it was a bladder infection (3 times). About a month later I ended up in the ER with excruciating right flank pain. I had a 7mm Kidney stone in my uriter, The urologist done ESWL (lithotripsy), twice before it was suposedly crushed. I did not have insurance at the time. The pain did not go away, and I could not afford to persue it. I worked in much pain for a year when I got insurance I went to the Doctor, CT showed a 14mm stone in uriter. When they tried to do ESWL it was too infected had to put a stent in and put me on antibiotics to reduce th inflamation before proceeding. I ended up in the ER again, with excruciating pain, my right kidney was stopped up by the stone. I spent a week in the hospital on IV fluids, and medicine. The Doctor did the ESWL to a supposed sucess.The pain did not supside (the pain is and has always been in the same place,it is not as intense as the pain that lands me in the ER). My Doctors ran all the tests to try to find the source of the pain (gallbladder,liver,upper&lower intestine,renal, and gynological). The only thing that they found is a 5mm stone in the kidney. All the doctors say that a stone in the kidney does not cause pain. I have been going to see a pain management Doctor for about 5 months now. I also had to quit work. I found a urologist who would do ESWL on the stone in my kidney, although he does not think it is the source of my pain. With my past history it would have gotton bigger and got stuck in my uriter. I had the surgery last week so far it has not worked. I go back in a week to get a follow up X-ray. One of my past Doctors said I had IBS, I disagreed I think he wanted to put a name to my pain (he was a Gastranologist). I think my Doctors do not take me seriosly, I know something is wrong and it is scary and frustraiting. I am 33, and have two boys (8 & 12) who need me. I still do my housework, supper and help with thier homework. Some days less gets done than others do to all of this. I am blessed with an understanding and helpful boyfriend. I can only hope that someday they will find the problem. I know it is not all in my head. I know what pain is (I have a high talerance) both boys were delivered without any medicine, I did not take any medicine after thier birth, and the stones that got stuck were large ones and I worked a long time without pain meds bfore they were dissolved. Just know you are not the only one.
    Anonymous 42789 Replies Flag this Response
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