Discussions By Condition: I cannot get a diagnosis.

Right eye ptosis,tearing,ear,jaw and neck pain

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: guardian
  • January 10, 2007
  • 07:38 PM

My problam started about 3 years ago with constant neck pain for no apparent reason. (No injuries) Then I stared having pain on the left side of my jaw behind my ear (felt like a constant ear infection but it wasnt) I always felt like something was aching just on the left side,( the title should be left eye not right) soon i started to notice in photos when i smiled the left side looked more swollen than the right side ( no a wisdom theeth problam either) like a mild chipmonk look. The next symtopm was the left eye tearing constantly so I went to the eye doc he said eveything is fine and couldnt find a reason for the tearnig which was intermient. It wolud tear 4 about 2 weeks then nothing then about a month later it would start again, later it would start producing mucous. The next symptom was the left upper eyelid drooping. In the morning it was fine by the end of the day it would droop. Some days the eyelid was fine the next day no so much but no noticible pattern. However when i got a cold everthing on the left side would bother me more. I went to an ent and oral surgeon because they thought it was paratitis (my father and aunt have it) but after MRI and CT scan of the head, neck and jaw they saw NOTHING. MY newest symptom started about 3 months agowhen i chew my temples get very sore and achy ( feels like i chewed about 5 packs of gum the previous day and my temples are sore) I have also stared to get headaches on the left temple are which come and go throughout the day. I have been taking Motrin every day which seems to help with the pain and drooping in the first couple of months but now it seems when i get up in the morning my lid droops then after i massage my face (upward motion) it seems to get better but will droops off and on throughout the day. when i come off the motrin my symptoms get worse so inflamation i would think. Went to a neurologist he said maybe MG or SUNCT but not sure even after more MRIs and MRAs. Dont no what to do now. If anyone out there has anything like this or have an idea of what it is PLEASE let me no.

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8 Replies:

  • Look up mysthenia gravis, don't know if I spelled it right.
    Anonymous 42,789 Replies
    • January 26, 2007
    • 06:31 AM
    • 0
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  • Have they ever told you about TMJ (temporomandibular joint)? Never know. Look it up.
    Anonymous 42,789 Replies
    • January 26, 2007
    • 07:02 PM
    • 0
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  • yes, TMJ or TMD! look it up!
    nosmartyr 40 Replies
    • February 1, 2007
    • 06:19 AM
    • 0
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  • could be Bell's Palsy?
    Anonymous 42,789 Replies Flag this Response
  • hello, there's a thing called arteritis - giant cell arteritis - which is auto immune, which affects your temples, and which can be treated. The problem chewing is sometimes part of another auto immune called polymyalgia rheumatica, and they go together these two, if you have one you could also have the other. hope you feel better soon
    Anonymous 42,789 Replies Flag this Response
  • I am having similar issues. Have you come across any answers?
    Anonymous 42,789 Replies Flag this Response
  • I haven't gotten any answers yet, no. I see a doctor but it's a reduced rate since I have no money and I can't afford to be referred to anyone right now. My headaches have gotten better since I stopped consuming any MSG. It's kinda tough to cut it and you have to look at labels really really carefully, but since stopping it completely for months I've had some chips with MSG on a couple of occasions(cuz I'm weak) and got one of these headaches shortly after. I'm also drinking a whole lot of water now adn eating greens more often. I'd suggest doing what I did and see if it improves. It's really improved a lot for me. I was getting this pain for 3 days at a time maybe 7 times a month and now I get them for a day, maybe two just a couple of times, so laying off the snacks has made a huge difference for me. I hope that helps you. Take care.love and light to you
    nosmartyr 40 Replies Flag this Response
  • Hemi crania contunia
    Anonymous 42,789 Replies Flag this Response
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