Discussions By Condition: I cannot get a diagnosis.

rheumatology????

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: kinyeah
  • January 30, 2009
  • 02:01 PM

My primary reccomended that I go to a rheumotologist to see what is going on. Ihad been to one in APril of 07 and She said it was all due to to much surgery. The primary says that she can check for that systemic inflammatory thing as well as other stuff...am I wasting my time ? SHould I be going to someone different?

Reply Flag this Discussion

17 Replies:

  • How can I answer that with no information;like what is wrong with you?By the way,it's too much surgery,not to.
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 02:28 PM
    • 0
    Flag this Response
  • How old are you and how far did you go in school?
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 02:29 PM
    • 0
    Flag this Response
  • I am sorry, I assumed I would be remembered from all my other posts, this is really a continuation of my previous threads. (sepsis over a year and a half ago)As far as my age and schooling, I am 43 and really much more intelligent then I appear, I am guilty of not proof reading and as I have stated in previous threads, very intimidated by medical terms etc. since all of this accidental colon cutting, also since this I have been very scattered brained and have some difficulty remembering the words I want to use. I apologize for not being much clearer then I have been and am embarrassed by my seeming lack of intelligence. I assure you I have a high iq and am really no where near as "stupid" as I seem.
    kinyeah 31 Replies
    • January 30, 2009
    • 03:09 PM
    • 0
    Flag this Response
  • yes I said "all this colon cutting"....not stupidity..just a silly way of phrasing it!! Much easier then saying since the only doctor I have trusted in 30 years almost accidentally killed me! I generally refer to it as:the accidentwhen I got hurtDr. so and so's lil slipor the day my colon didnt want to be left out of a minor surgery that had Nothing to do with it!
    kinyeah 31 Replies
    • January 30, 2009
    • 03:17 PM
    • 0
    Flag this Response
  • My original question should have been, do you think that a rheumatologist might be able to diagnos Systemic inflammatory response syndrome or should I look for an immunologist. I am not sure that I have SIRS but it seems to make sense. I am still lost on what is wrong with me and was wondering if rheumatology was the right place to start. I have already been tested for Lupus and other Rheumatological ( is that a word) diseases and am sure that whatever I have relates to the sepsis or subsequent surgeries. I was sent to this doctor once early on after the colostomy reversal and her opinion then was that I was just worn out from all the surgery, I do not think over a year later that this is still the case.I would also like to apologize for not taking the time to make my posts clearer, you people are taking the time to help me, I should take the time to articulate what I mean, this is just very hard for me. current symptoms:exhaustion, beyond fatigue, there comes a point after an hour on my feet that I "just can not" stand anymore and have to lay down dizziness muscle spasms scatterbrain syndrome :) pain in my scars that the pain center has called entrapped nerves and said was not related to all the other symptoms, except that the pain may cause the tiredness and worn out feeling. general flu like feeling over all fevers of approx. 100.3-101 at night white count of 10.3, 6 weeks ago gradually rising up to 11.8 three weeks ago have not had it tested since then. elevated sed rate and c ractive protein on and off this whole time high cholesterol red itchy rash that comes and goes on limbs only muscle weakness To be clear, this all started when I woke up in the icu after they found the cut and has never cleared up since then. Being I am at a new primary care doctor he seems to not understand no matter how clear I am (and I have actually bought my fiance with me to explain because I know that I get nervous and sound like an idiot) that this has never stopped, he actually wanted to blame this on a current sinus infection, that was not there three weeks ago when I went to him for this.:confused: but was there this past week. Thank you again and please bear with me.
    kinyeah 31 Replies
    • January 30, 2009
    • 04:01 PM
    • 0
    Flag this Response
  • Again,what is wrong with you that you need a rheumatologist?
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 05:06 PM
    • 0
    Flag this Response
  • I do not know what is wrong with me, I am giving my symptoms and asking if a rheumatologist might be the way to go. Someone has suggested systemic inflammatory response syndrome might be what is wrong, my primary care doctor never heard of it and thinks that I should try a rheumatologist, I am asking if I should try an immunologist instead. Or who I should go to that mightbe able to help with these symptoms if it is not SIRS. I am unable to function in my day to day life due to the symptoms I have listed and am not sure what is wrong. That is why I am here...I am at wits end, stressed and confused.
    kinyeah 31 Replies
    • January 30, 2009
    • 05:14 PM
    • 0
    Flag this Response
  • I think if your primary is thinking rheumatology, go with it. S/he is probably thinking of something called SIRS, which you can read about here although it's pretty technical: http://emedicine.medscape.com/article/168943-overview Your doctor's recommendation may be because s/he knows that the rheum doctor has some experience with the problem. Ask if in doubt. I'm so sorry this happened to you!
    aquila 1263 Replies
    • January 30, 2009
    • 05:14 PM
    • 0
    Flag this Response
  • aquila Thank you. The only reason my primary is thinking SIRS is because it was suggested to me here and when I mentioned it to my primary he was clueless and said try a rheum. because he had no idea how to test for it.sigh.
    kinyeah 31 Replies
    • January 30, 2009
    • 05:17 PM
    • 0
    Flag this Response
  • If you've already been to this rheumatologist and weren't satisfied,then go to an immunologist.(I remember you now.)
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 05:20 PM
    • 0
    Flag this Response
  • See if there's not some topical med that you can put on your scar.
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 05:23 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • I went to her about 3 weeks after the last surgery, we were only looking to rule out lupus etc. in caase there was anything additional going on. I guess I can just pull an immunologist off my insurance web site and try there. I was also wondering if the infectious disease doctor would be of help, I know they came to see me several times while I was in the hospital. I do not know what they have to do with sepsis but she was there a lot. I just do not know what type of doctor to go to, the surgeon who did this to me was my only doctor for everything for years ....
    kinyeah 31 Replies
    • January 30, 2009
    • 05:24 PM
    • 0
    Flag this Response
  • they gave me lydocaine patches. I only use them when the pain is unbearable, because of the inscision leaking and bursting open for 7 months I constantly had gauze and tape on me and was covered in blisters for months straight (if anyone ever has a reacion to tape milk of magnesia works great) so I do not want to get in the habit of having any adhesive on me for to long. The pain I can handle I just have a hard time dealing with not having answers, when I know what something is I can deal with it. They want to put something in my spine (they compared it to a pace maker) with a remote to stimulate the nerves when it is bad, I refused that.
    kinyeah 31 Replies
    • January 30, 2009
    • 05:28 PM
    • 0
    Flag this Response
  • Sounds like you have been thru alot.:( Could you please list all medications you have been on in the past year, including any antibiotics you are prescribed and if you are on any bc? In addition to a rheumy and any other tests that you may need, I suggest finding a good naturopathic or other holistic doc to help get you back on your feet. They may be able to offer some insight and often look at things differently. If I had relied solely on allopathic medicine to help me heal from my emergency C section and subsequent complications (long story, but lost 2 liters of blood and had blood clots and other comps), I feel very strongly that I would still be suffering today. As an acupuncturist myself, I began acupuncture treatments within weeks of my surgery to help with my exhaustion and pain. It can really help! Best wishesDOM
    acuann 3080 Replies
    • January 30, 2009
    • 05:33 PM
    • 0
    Flag this Response
  • I have been on several rounds of Levequin. Amox. and Cipro.I have been prescribed Oxycontin and Oxycodone but have taken very few of them. (I took them immediatly following the surgeries.)I had been on some cough med. with codeine in it during one of the bouts of bronchitis/pleuracy.Thats about it.
    kinyeah 31 Replies
    • January 30, 2009
    • 05:53 PM
    • 0
    Flag this Response
  • I have an appointment with the immunologist on Wednesday....
    kinyeah 31 Replies
    • January 31, 2009
    • 00:17 PM
    • 0
    Flag this Response
  • Good for you.
    richard wayne2b 1232 Replies
    • January 31, 2009
    • 02:12 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.