Discussions By Condition: I cannot get a diagnosis.

Rheumatologist can't diagnose me - help!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • February 6, 2009
  • 05:21 PM

I am a 57 yr old female who has fibromyalgia, hypothyroidism and severe DDD and DDJ disease along with spondylolisthesis. However, for years I've had night fevers, extreme chills, hair loss, itchy skin with red round sores on my forearms that don't fade, scratches or cut that don't heal and bruises that also don't heal very fast.

Blood tests in November showed positive ANA, high SED rate and high CRP. I have developed great pain in both hands/burning and numbness/ that wakes me up, a dry cough then at times I can hear mucous in my chest, inability to breathe which wakes me up at night, (I had pneumonia in 2006 and have an inhaler) and continued hair loss. I saw a Rheumatologist who said he doesn't know what I have.

Can anyone relate to these symptoms or know what all of this might be?

Thanks so much.

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4 Replies:

  • Maybe Lupus? It can cause alopecia, but I guess a rheumatoligist would have recognised it. There are some unusual ones out there that are related and so hard to diagnose- My uncle was in hospital for 6 weeks under observation before they found he had Churg Strauss Syndrome, and they only get a hand full of cases of that :confused:Best of luck to you getting a diagnosis
    ratsabout 11 Replies
    • February 6, 2009
    • 10:56 PM
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  • Please consider finding a good Oriental Medical practitioner to help you with your problems. I cannot tell you how many of my patients with autoimmune dysfunction have gone thru all the meds and allopathic "treatments" with no help in sight. Acupuncture can work wonders for autoimmune diseases. Also please look into nutritional deficiencies causing some of your problems. Ones to look at include vitamin D (very common with fibro symptoms), B12, essential fatty acids, vitamin C, Ca and Mg to name a few. Lastly your symptoms of alternating chills and fever lead me to think you may have a lingering virus/bacteria infection that is lodged deep inside of you. If you live in a Lyme area this is worth ruling out, as Blaze indicated. But there may be another type of infection that is contributing to your problems. Best wishesDOM
    acuann 3080 Replies
    • February 7, 2009
    • 03:07 AM
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  • How strongly positive was the ANA(What was the titer?)?How high was the sed rate and CRP?You obviously have an autoimmune disease of some kind and with the proper tests you should be able to get a diagnosis.That doesn't sound like much of a rheumatologist to me.
    richard wayne2b 1232 Replies
    • February 7, 2009
    • 03:01 PM
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  • Thanks to all of you for your help! You are so right about the rheumatologist - after I saw him twice and he said he didn't know what's wrong - I called his nurse and got a copy of his notes. He wrote that I had skin problems, alopecia and shortness of breath "IN THE PAST" and I also had no "cough or history of thyroid disease"! My ESR test was 55; CRP 5.0; ANA Direct 128. Also, my Vitamin D was high at 71.7 I just suffered a 101.3 fever and horrible chills overnight Saturday and have had these episodes for more than 7 years. (previous docs just answered 'I don't know" when I presented my symptoms) Then after a day in bed, it goes away. I will look into the lyme information but have little faith in doctors anymore. But thank you again.
    Kathy Trachsel 1 Replies
    • February 9, 2009
    • 10:17 PM
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