Discussions By Condition: I cannot get a diagnosis.

Reoccuring Pyelonephritis

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • December 12, 2007
  • 04:00 PM

I am 17 years old and have been suffering from recurrent pyelonephritis. It all started in May 2007, I experienced extremely painful lower back pain and was taken to the ER. There I was diagnosed with a kidney infection and was given antibiotics to take for a week. While I was taking the antibiotics all symptoms subsided and I was feeling better. Once I had finished the course of antibiotics about a day after I got worse than I did the previous time. Once again I found myself in the ER where I was admitted to hospital for 4 days. I had a very high fever, severe nausea, blood in my urine, and the constant urge to urinate. During my stay in hospital I had numerous blood and urine tests, an x-ray and an ultrasound. The urine tests showed signs of infection and blood, yet the x-ray and ultrasound apparently showed that everything was fine.
Almost 7 months on and I have had about 6 kidney infections since then, I have not been admitted to hospital since but I have been seeking medical advice. I have been to many GPs and two have suggested that I may have reflux. This basically means that as I pass urine, some of it is pushed up from the bladder up the ureter and eventually gets to my kidney - which allows the infection to breed.
I have been scheduled for a micturating cystogram for next Wednesday and have just been referred to a consultant surgeon, I am waiting for his reply.
I am wondering if anybody else has had this problem? I understand that UTIs are a fairly common thing, and may lead to kidney infections but doctors seem to be baffled by my problem. I would also like to know of any treatments that may be available.

Thank you for your help in advance.

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  • I don't know what to tell you, except that I've got a similar thing going on, only it's just starting.Your's very well could be from ureteroreflux, and there are surgeries that can help with that, depending on what exactly is the source (anatomical, nerves, etc.)Mine could be that, but I suspect it's from a slightly different cause. I had many chronic UTIs as a child, but didn't know to tell anyone because I had no idea what it meant when my pee burnt! My mom sure feels embarrassed now, because she's a nurse, but I keep telling her it's not her fault... Anyway, after a few years, when those stopped, I had bedwetting issues for years, then incontinence until now. My suspicion is, and I told my doctor and he thinks I may be right, the infections MIGHT possibly have caused some sort of nerve damage in my urethra, because I don't feel anything anymore ever. I have no sensation of when to "go". And 3 months ago I had cloudy urine for a month without any burning urination before I realized it could be a UTI and made an appointment, but by then it had spread to my kidney, and I could feel burning in my bladder.But I think if your doctor(s) is correct in his/her diagnosis of reflux, then it can be fixed quite often and successfully, and the infections tend to stop, or at least not make it all the way up to the kidneys, and any kidney damage stops and kidney function is spared if it's caught in time.Have you done any research on it? It might make you feel better. It's not a scary or dangerous condition, I promise. I know people who don't do research on their conditions because they don't want to be anxious, so I'm just letting you know, this isn't one of those conditions, the vesicouretero reflux.I wish you the best! (And I hope all goes well with your cystogram... that's gonna be FUN, I'm sure http://forums.wrongdiagnosis.com/images/icons/icon7.gif)Carley
    Anonymous 42,789 Replies
    • January 16, 2010
    • 03:57 PM
    • 0
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