Discussions By Condition: I cannot get a diagnosis.

Red larynx, but all docs baffled

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: wiener_bur
  • July 26, 2007
  • 06:42 PM

My symptoms started around a year ago. I had a sensation that something is in the back of my throat really bugging me and I always pulled my tongue back to move my uvula back side to side. My other symptom was that around my adam's apple I had like a small piece of slime sticking there and that made me clear my throat backwards and swallow a 100 times a day but it would never go down.

After about 3 months I went to an ENT he did a laryngoscopy and said it's reflux because my larynx was very red and swollen. So I began 40mg Nexium a day. Great! After about a month my symptoms got a whole lot better. The second month I was doing great too but around the third month I saw I'm just stuck at a improvement stage but not going further. So month 4 I got Zantac 150mg in addition to the Nexium. That didn't do a thing. Month 5 I stopped the Zantac and started doing Nexium 80mg a day. During that whole month I was suddenly almost symptoms free. Ever since month 6, 1-2 weeks I'm symptom free and 1-2 weeks I have symptoms. My ENT did a laryngoscopy and still saw redness in my larynx but not as bad as before.

So to rule out everything I went to get a catscan of my sinuses, to an allergist all good. I went to a GI to do a 24hr ph and impedence test but couldn't handle it for more then 1 hour. Because one of my symptoms is always to swallow and it made my throat really painful. So my GI gave me now Zantac 300mg in addition to the Nexium 80mg and try it for a few months and then do a endoscopy and pass a capsule in my esophagus to measure acid but since I have only throat problems, it may not be very useful but it's my next best thing.

What the heck is going on? I'm sick and tired going from one doc to another. Everybody is baffled but since the Nexium worked in the first place everybody assumes it's reflux but still nobody knows for sure. Please help, these symptoms are killing me. Although ever since being on the meds I never went back to pre-treatment symptoms.

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14 Replies:

  • Laryngo-pharyngeal reflux produces many of the symptoms you have. There are many mechanical things you can do to slow down the erosion. Lose weight, small meals, elevate head of bed,stop smoking,chew gum, sleep on the left side etc. Proton pump inhibitors (your meds) work best 30 minutes before the main meal. No eating 3 hours before bedtime. No spicy foods. Try these and see if you can heal your red larynx. Stop lifting weights. Worst case scenario, fundoplication, a surgery to tighten the lower esophageal sphincter. Also get checked for Barrett's esophagus.
    rad-skw 1605 Replies Flag this Response
  • I have been recently diagnosed with possible LPR.Here is a good website to check out:http://jaapa.com/issues/j20050801/articles/lpr0805.htm
    Anonymous 42789 Replies Flag this Response
  • Laryngo-pharyngeal reflux produces many of the symptoms you have. There are many mechanical things you can do to slow down the erosion. Lose weight, small meals, elevate head of bed,stop smoking,chew gum, sleep on the left side etc. Proton pump inhibitors (your meds) work best 30 minutes before the main meal. No eating 3 hours before bedtime. No spicy foods. Try these and see if you can heal your red larynx. Stop lifting weights. Worst case scenario, fundoplication, a surgery to tighten the lower esophageal sphincter. Also get checked for Barrett's esophagus. I'm a 20 year old male in good shape, never smoke or drink, eat ok, I always wait at least 3 hrs before I go to sleep if I ate something, and I don't lift weights. And I hate spicy foods. It's highly unlikely I have Barrett's especially at my age and on top it's nearly impossible because I NEVER have heartburn or any other symptoms besides my throat this is why I went to the ENT first! So what am I still doing wrong?? This is why the docs are baffled! Fundoplication is a really tough surgery, god forbid anybody gotta do it but I can't even do something like that since I don't have a confirmation of reflux since I wasn't able to handle the 24ph study.
    wiener_bur 5 Replies Flag this Response
  • You seem to be really on top of your symptoms. Maybe restrict dairy as it is a known mucus producer?
    rad-skw 1605 Replies Flag this Response
  • Consider trying NAET (Nambudripad Allergy Elimination Technique). Western allergy testing turned up nothing for me, but NAET has helped me tremendously. I think your symptoms sound allergy related, or at least point to a food intolerance. Sure you can cut out dairy and see if it helps. But a NAET practitioner will be able to pinpoint EXACTLY what is causing your problem, and clear it from your system. It sounds crazy, but it really works! BEst wishesDOM
    acuann 3080 Replies Flag this Response
  • You seem to be really on top of your symptoms. Maybe restrict dairy as it is a known mucus producer? Actually I don't have any mucous and diary relieves my symptoms and anthing that is kinda like mucous you know diary, fried foods etc. smoothes me out but I just eat that stuff here and there but it's funny how many times I eat bad food and rarely saw aggravation in my symptoms.
    wiener_bur 5 Replies Flag this Response
  • Hi,I don't have heartburn either but they still think I might have LPR. It is different than Gerd where you feel the burn.Check out this website:http://jaapa.com/issues/j20050801/articles/lpr0805.htmI have already been to an ENT and had throat surgery to biopsy to make sure it wasn't cancer because of all of the inflamation and trouble swallowing. I am also going to see and allergist. I currently getting speech rehabilitation and she was the one who brought up LPR. It is worth a shot because you just need to take nexium 30 min before your largest meal. The tissue should heal in 3-6 months. I willing to try anything at this point. Please check out that website and see what you think.
    Anonymous 42789 Replies Flag this Response
  • Hi, I don't have heartburn either but they still think I might have LPR. It is different than Gerd where you feel the burn.Check out this website: http://jaapa.com/issues/j20050801/articles/lpr0805.htm I have already been to an ENT and had throat surgery to biopsy to make sure it wasn't cancer because of all of the inflamation and trouble swallowing. I am also going to see and allergist. I currently getting speech rehabilitation and she was the one who brought up LPR. It is worth a shot because you just need to take nexium 30 min before your largest meal. The tissue should heal in 3-6 months. I willing to try anything at this point. Please check out that website and see what you think. One thing I'll tell you, NEVER research LPR on the net! They write a bunch of bull crap! They say that some people need to take a PPI 4x daily while 2x daily is the most you can take. And they say many people don't respond to medication. That is wrong, you won't respond unless you are resistant which is rare or the second scenorio is you most likely don't have LPR!
    wiener_bur 5 Replies Flag this Response
  • And forgot to mention, do a 24ph test if you can, I wasn't able to handle it.
    wiener_bur 5 Replies Flag this Response
  • My symptoms started around a year ago. I had a sensation that something is in the back of my throat really bugging me and I always pulled my tongue back to move my uvula back side to side. My other symptom was that around my adam's apple I had like a small piece of slime sticking there and that made me clear my throat backwards and swallow a 100 times a day but it would never go down. After about 3 months I went to an ENT he did a laryngoscopy and said it's reflux because my larynx was very red and swollen. So I began 40mg Nexium a day. Great! After about a month my symptoms got a whole lot better. The second month I was doing great too but around the third month I saw I'm just stuck at a improvement stage but not going further. So month 4 I got Zantac 150mg in addition to the Nexium. That didn't do a thing. Month 5 I stopped the Zantac and started doing Nexium 80mg a day. During that whole month I was suddenly almost symptoms free. Ever since month 6, 1-2 weeks I'm symptom free and 1-2 weeks I have symptoms. My ENT did a laryngoscopy and still saw redness in my larynx but not as bad as before. So to rule out everything I went to get a catscan of my sinuses, to an allergist all good. I went to a GI to do a 24hr ph and impedence test but couldn't handle it for more then 1 hour. Because one of my symptoms is always to swallow and it made my throat really painful. So my GI gave me now Zantac 300mg in addition to the Nexium 80mg and try it for a few months and then do a endoscopy and pass a capsule in my esophagus to measure acid but since I have only throat problems, it may not be very useful but it's my next best thing. What the heck is going on? I'm sick and tired going from one doc to another. Everybody is baffled but since the Nexium worked in the first place everybody assumes it's reflux but still nobody knows for sure. Please help, these symptoms are killing me. Although ever since being on the meds I never went back to pre-treatment symptoms.It is your immune system- acting up, you might have a silent and active infection on top of a chronic allergy or intolerance.Visit a Doctor of Oriental Medicine, Naturopath and a NAET doctor. naet.comps: do you get flu shots? did you feel like you had the flu right before this started? Any fatigue?:cool:
    Eatafruit78 960 Replies Flag this Response
  • Laryngo-pharyngeal reflux produces many of the symptoms you have. There are many mechanical things you can do to slow down the erosion. Lose weight, small meals, elevate head of bed,stop smoking,chew gum, sleep on the left side etc. Proton pump inhibitors (your meds) work best 30 minutes before the main meal. No eating 3 hours before bedtime. No spicy foods. Try these and see if you can heal your red larynx. Stop lifting weights. Worst case scenario, fundoplication, a surgery to tighten the lower esophageal sphincter. Also get checked for Barrett's esophagus.What causes that? Allopathic medicine hardly explains what is causing the disease- it only 'describes the disease'.What's the underlying cause to that?I wonder because I had it, I had it for years, and it got bad at times- and one day I went for NAET, and after 4 treatments I no longer have it. I have not had it in 5 months and I eat Chiles de Arbol, thai chiles and the whole Mexican or Indian Join- in fact after 5 NAET treatment I can eat all Indian food as well.Spices would not be the cause, but the intolerance to them points at a neurotransmitter/immune system disorder.Frui.NAET.comps: My reflux and immune disorders started in 1997 when I was given the MMR vaccine and the Hepatitis B vaccine. I suffered with meningitis and after 2 months sick I had those disorders with reflux and motion sickness as well.
    Eatafruit78 960 Replies Flag this Response
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  • It is your immune system- acting up, you might have a silent and active infection on top of a chronic allergy or intolerance.Visit a Doctor of Oriental Medicine, Naturopath and a NAET doctor. naet.comps: do you get flu shots? did you feel like you had the flu right before this started? Any fatigue?:cool: I sincerely doubt it's all of that. First of all I had a blood test all fine and my symptoms just suddenly began! About fatigue I did have some for a few months a few months ago, but that started like a several months after my throat symptoms that's why I got a blood test but it's most likely depression, since I'm going through a ton right now not just the throat! My allergist did a skin test and an intradermal test and said it's definitely not the allergies.
    wiener_bur 5 Replies Flag this Response
  • those allergy tests are 50% effective and they only target certain substances- if you dind't get test for the allergen, there is no way for them to deny it. for example: you can be allergic to ink, formaldehyde, polyester, petrochemicals- they dind't test you for any of it- you dind't test for your toothpaste, or soda.depression is a symptom. depression comes from your central nervous system and your neurotransmitter network. in fact, there is no way to divide the immune system from the nervous system, so the depression and the throat problem have the same root. You see, smoke and fire come together, but smoke is not the cause of fire.Blood test can't track any of these neurotransmitters that I am talking about. Even if your doctor test you for cytokines he might not be able to 'see patterns' because all of this research is pretty new and only people who read molecular biology research papers weekly is on top of it.Did you test for mold?Sorry if all of this info is overwhelming- Allopathic medicine is due for a make-over since they can't help people like us.I know something in your brain is blocking everything I am saying, like it is some sort of gimmick. I am aware of that reaction. This is the reason why I live surrounded by sick people with money who can't buy themselves a descent solution to their quality of life issues. You can't buy things that you don't know exist.I accepted this bs of reflux and discomfort for nearly a decade- the moment I was ready to try something safe but different I found it. I was not worried to feel embarrased if it did not work out. I welcomed it as an honest attemp to improve my quality of life.All in its due time.Best,Frui/
    Eatafruit78 960 Replies Flag this Response
  • My allergist did a skin test and an intradermal test and said it's definitely not the allergies. Sorry, just because an "allergist" does a clear intradermal skin test doesn't mean you don't have allergies. They are not accurate IMO. I had a complete skin test done, found to have no allergies at all, even when I would have an acute asthmatic attack from just being near juniper! Your post title reads "all docs baffled"...allopathic is not the only form of medicine to explore and allopathic docs just don't have ALL the answers. Why not try an alternative/CAM approach? Best wishesDOM
    acuann 3080 Replies Flag this Response
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