Discussions By Condition: I cannot get a diagnosis.

Red eyes, all year around.

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: OcaOla
  • November 1, 2009
  • 11:11 PM

For the past 4-5 years I have had red eyes all year around. I don't know how it started, I was like 14 years old then and didn't notice or cared about it.

Now I'm 19 years old and it literally destroys my social life. I always think about it and avoid eye contact with people. I know that steroids drops and "clear eyes" exist. I started using that when I was like 17, then I had perfect vision. Now 2 years with steroids (with prescription) and "clear eyes" I don't have perfect vision, I need glasses when I'm driving but can do fine else.
So no more with this, I rather have red eyes than going blind when I'm 30.

So I have to find the cause! I have talked to 3 all-around doctors and 2 eye-doctors. Everyone except one told me that I'm allergic to something, that was it. I told them that I suspect that but can't find out what and need help. They told me that I have to do that myself.

But one eye doctor was good, listen to me, looked for rare eye visual defects, asked questions and really tried to help me. Without any luck. So I guess it's not any Visual defect at least...

I'm allergic to (blood test):

Dogs
My parents have a dog, We had it since I was 8. I live alone now
Never, ever in my life felt allergic when I get in contact with dogs.
Cats
Never, ever in my life felt allergic when I get in contact with cats. I dont have any cat, never had.
Grass
Only in the summer, when I take any histamine antagonist it goes away without a trace.
Little itchy eyes, but most sneeze.
Some pollen
Same as above
Mites
Never felt anything, washing bed sheets every day at 90 degree C for a week don't help my eyes. "Dust Mite protection sheets" don' help.


Nothing more that I know of.

---


Winter vacation in a mountain in the middle of the winter, -10 C outside and snowing
Outside an entire day in the middle of the summer with histamine antagonist
Outside an entire day at spring before I get a little allergic, without histamine antagonist
Sitting at my computer from 08:00 when I wake up to 02:00 when I go to sleep (24h clock)


These are 4 different locations/settings, but nothing is worse or better for my eyes. They are still red as usually.

---

However, I know 2 things that makes it worse.

The Night
Sleeping

Let me explain, my eyes gets a little more red at 00:00, little more at 01:00 and so on. At about 04:00 it's worst. Then it gets better and at about 08:00 it's like it was a 00:00. :confused:

The other thing, sleeping. If I lay down in my bed watching a movie from 20:00 to 00:00 my eyes are like they always are.
If I lay down in the same bed the next day watching a movie and fell asleep at 22:00 and wake up at 00:00 my eyes are usually really really red. :confused:

And it's often a little worse when I wake up, then gets a little better after an half hour or something. (still gets better if I lay down in my bed, so it has nothing to do with me leaving the bed)

Maybe it has something to do with the light? :confused:

---

It's not mold in my apartment that I know of. And this problem is the same in every home I visit. I have lived in 5 locations since this started, same **** everywhere.

---

I have tested "moisture" drops with no luck.

---

I live healthy, workout 3-4 times a week. Not fat in any way. No other disease. Try to eat healthy but my mom still thinks that I should eat a little more vegetable.
However I do sometimes have eczema in my armpits.

---

It's not chronic / permanent! Read below.

About a year ago, I found 100% clean NaCl in my parents medicine cabinet. I have tested eye moisture before but not plain simple NaCl. I toke 1 or 2 drops in each eye before I went to sleep.
When I woke up the next morning I had forgot the NaCl because I was pretty sure it wouldn't help.
I put some clothes on and went to the toilet, when I was about to leave the bathroom I toke a look in the mirror.
:eek:
For the first time in 4 years my eyes where completely white! I just stood there for minutes, I pulled down my eyelids and even far away from my pupil they where white! There's no words to explain how ****ing happy I was, it was the best day of my life. NaCl was the cure, so I thought...

The next day it was the same (little, little, little worse but nothing I cared about). Third day a little worse, so I toke more NaCl. Fourth day worse again, I toke even more NaCl. Fifth day worse, so I get a new NaCl bottle, maybe it needs to be fresh?. Sixth day worse again...
So after a week I understand that NaCl had nothing to do with it?

But at that point I couldn't figure out if I did anything unusually the day before, maybe I ate something? Maybe I didn't do anything I usually do 365 times each year?

---

So this is where the Internet comes into my life, I really need help. Maybe someone can think of something, have you tried "x"? Maybe "y" cause the problem? Possible it could be a lack of vitamin "xyz"?
Anything will help, any clue would be helpful.

/OcaOla

(English is my second language, sorry if I don't make myself clear at any point)

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13 Replies:

  • :pHI YOU DO NOT SAY HOW YOU ARE HEALTH WISE? YOUR EYES MAYBE TELLING YOU THAT THERE IS SOMTHING ELS WRONG. ARE YOU TIRED ALL THE TIME?????---ANY PAIN ?????--------ANY HEAD AKES?????? AND SO ON .-------DO U GO INTO A SANER AT A JUM???????????
    charmaine petzer 176 Replies
    • November 14, 2009
    • 08:24 AM
    • 0
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  • :pHI YOU DO NOT SAY HOW YOU ARE HEALTH WISE? YOUR EYES MAYBE TELLING YOU THAT THERE IS SOMTHING ELS WRONG. ARE YOU TIRED ALL THE TIME?????---ANY PAIN ?????--------ANY HEAD AKES?????? AND SO ON .-------DO U GO INTO A SANER AT A JUM???????????Thanks for the reply!No I'm not tired, well only when I haven't got enough sleep (8 hours is enough and I don't feel tired the whole day.)Not any pain anywhere.Almost never headaches, can probably count all headaches on a year on one hand.No diarrhea.Healthy enough to donate blood. (They made some blood test)Normal blood pressure.That's what I can remember off hand. I have visited the local hospital for 3 things, back x-ray (just to see if it's OK, which is was), lung x-ray when I had pneumonia. And to get a pearl sucked out my noose when I was like 5 years old... :pSo nothing serious.So no known diseases. No other strange pains or something. However I do highly suspect that I have ADD/ADHD.And no medicines of any kind.Well I do get eye infections maybe once a year, the good eye doctor said that was 'normal' because my eyes are irritated. They are not as well protected from infections then.Any information I have forgot? Please tell then!PS. What do you mean with "go into a saner at a jum?"/OcaOla
    OcaOla 7 Replies
    • November 14, 2009
    • 07:31 PM
    • 0
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  • Thanks for the reply! No I'm not tired, well only when I haven't got enough sleep (8 hours is enough and I don't feel tired the whole day.)Not any pain anywhere.Almost never headaches, can probably count all headaches on a year on one hand.No diarrhea.Healthy enough to donate blood. (They made some blood test)Normal blood pressure. That's what I can remember off hand. I have visited the local hospital for 3 things, back x-ray (just to see if it's OK, which is was), lung x-ray when I had pneumonia. And to get a pearl sucked out my noose when I was like 5 years old... :p So nothing serious. So no known diseases. No other strange pains or something. However I do highly suspect that I have ADD/ADHD.And no medicines of any kind. Well I do get eye infections maybe once a year, the good eye doctor said that was 'normal' because my eyes are irritated. They are not as well protected from infections then. Any information I have forgot? Please tell then! PS. What do you mean with "go into a saner at a jum?" /OcaOla hi glad to hear you ok health wise .i do know in some saners they do pour diffrent stuff on the heating elements ,we use eucalyptus and at times it does burn my chest .so i am sure it can have a effect on ones eyes .:o if you do go -------what do they use to wash the floors with ,-the benchers and so on .with the heat in the saner the fumes of what ever they use can burn your eyes.gee of all things a pearl :o you must have a eye for good things
    charmaine petzer 176 Replies
    • November 15, 2009
    • 00:41 PM
    • 0
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  • hi glad to hear you ok health wise .i do know in some saners they do pour diffrent stuff on the heating elements ,we use eucalyptus and at times it does burn my chest .so i am sure it can have a effect on ones eyes .:o if you do go -------what do they use to wash the floors with ,-the benchers and so on .with the heat in the saner the fumes of what ever they use can burn your eyes.gee of all things a pearl :o you must have a eye for good thingsThanks again for a reply.That thing with heating elements don't sound reasonable. And cleaning or not doesn't affect it at all what I can notice.I have tried different shampoos, perfumes, dental paste with no luck. I can go weeks without perfumes so that's not the cause. Harder to not use shampoos and dental paste. But different brands doesn't matter.And I get no local reaction from it so I guess it's not that.I guess many people will read this but without any idea what it could be. I don't blame you but please write a line if you think about something, even if it's stupid. Maybe I haven't thought about it?/OcaOla
    OcaOla 7 Replies
    • November 15, 2009
    • 08:45 PM
    • 0
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  • Hi,It's possible to be allergic to the preservatives in eye drops, and in fact this is very common in people who regularly take eye drops of any kind. Are you regularly using any eye drops at the moment? If so then maybe try stopping all drops for the next few weeks and see what happens. If you're not taking regular eye drops then...Have you tried antihistamine (sodium cromoglycate) eye drops? They help some people with allergic eye problems.If your eyes feel scratchy/dry, then you might have dry eyes. (You eye doc may have tested for this with litmus paper put into each bottom eyelid?). If so then you could try eye drops for dry eyes e.g. hypromellose drops. Like the other poster said, sometimes red eyes can be associated with systemic diseases, but if you're generally otherwise healthy then this is likely. Also, the type of red eyes assoc with other diseases is a bit different to allergic-red eyes, so if your eye doc tested you with a slit lamp etc and didn't find anything wrong with the inside of your eyes (as oppose to the allergic reaction of the conjuctiva outer layer of the eye that you decribe), then again it would be v unlikely to be due to other diseases.Main thing is - DON'T USE STEROID EYE DROPS (unless prescribed by an ophthalmologist). They cause you to have premature cataracts, and also glaucoma, and put you at risk of going blind. You're very sensible to have stopped using them.Hope that helpsjellyspoons(junior dr on a night shift trying to use google to help me with a patient and came across this instead!)
    Anonymous 42789 Replies
    • November 15, 2009
    • 11:37 PM
    • 0
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  • RATHER STOP ALL THE MAY BE THIS MAY BE THAT AND GET MEDICAL ADVICE. Anyone who experiences vision changes, marked redness or cloudiness in the eye, or pain in the eyes should see a doctor, preferably as soon as possible. Conditions which involve the eye can turn dangerous very quickly if they are not addressed, and in addition to potentially causing vision damage, such conditions can also indicate the presence of a serious underlying medical issue which needs to be addressed.
    charmaine petzer 176 Replies
    • November 16, 2009
    • 07:21 AM
    • 0
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  • Apparently I made 2 threads and missed the answers in this one...Other one: http://forums.wrongdiagnosis.com/showthread.php?t=65155Causes of chronic red eyes-Perennial Allergic conjunctivits seems very likely (role for an allergist here?).- You might have lid disease: chronic blepharitis, molluscum contagiosum or tear drainage issues: canniculitis/dacryocystitis-Or dry eyes w/o lid disease- Could be systemic: telenagiectasia? - Syndromes.. any other problems with your body? Hearing? Sight? -Growths (lumps and bumps): inflammed pterygium/pingueculum? Kaposi's sarcoma (unlikely)I googled those names and can't say that any of them seems fit for me. No visible lumps/bumps anywhere on my body. But some are hard for me to know I guess, like tear drainage. I don't "cry" for nothing and if I cry I get a runny nose.No other problem, my hearing is perfect. Sight OK, need glasses when I'm driving. Tip: STOP EVERYTHING you've been using, STOP putting drops into your eyes.. may be toxicity or sensitivity to drops or its vehicle (preservative). Cease contact lens wear if u do. Stay clean for 2 weeks.I have tested that with no luck.Attach a photo of ur eye..A while ago I took 3 pictures, I had to use a flash and it's like the flash cancel out all the small bloodveins and makes them invisible. So that's why I haven't posted them before, I don't think they capture the problem correctly.(Flash is located far from lens, else I do get "red eyes" in photograph so I bet I don't have cancer. And I made my pupil b/w because I'm paranoid... :) )Like I said, 3 pictures, one at 17:56 when I decided to take a naphttp://img682.imageshack.us/i/1756r.jpg/Then another picture 1 hour later when I woke up, 19:06http://img109.imageshack.us/i/1906e.jpg/And third picture after another 1 hour, 20:55http://img691.imageshack.us/i/2055.jpg/A pink eye is the most obvious symptom of conjunctivitis, so the term "pink eye" often is used for this common eye problem that can have many different causes. Contagious forms of pink eye are usually linked to bacterial or viral infections. All of which involve inflammation of the conjunctiva on the sclera. You mention that your pink eye spread to others, your case must be the viral conjunctivitis. The viral conjunctivitis is highly contagious by the spread of airborne viruses through sneezing and coughing.Ehh, I didn't? If I did it's just a typo or a cause of my bad English. To clarify, It does not spread to others.hi are you stil suffering Yep, still destroying my social life. take a look here ::: http://www.arthritis-treatment-and-relief.com/rheumatoid-arthritis-and-eyes.htmlOk... As far as I know I dont have Rheumatoid arthritis. Or is it possible that I have RA without knowing it and then be one of those 1% that got eyeproblem? But I will read more on that site.Thanks for the link! and the next you must look into is::: heart and red eyeshttp://symptoms.wrongdiagnosis.com/cosymptoms/heart-attack/red-eye.htmHeart attack?! I have had this problem since I was like 13. Even if I have had one I dont have any of these problems:Results: Causes of Heart attack AND Red eye 1. Chemical burn - ingestion2. Chemical poisoning3. Crystal meth addiction4. Kawasaki disease
    OcaOla 7 Replies
    • January 30, 2010
    • 00:29 PM
    • 0
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  • HAVE YOU BEEN TO SEE A DOCTOR LATELY?DONT JUST SEE ONE DOCTOR .GO TO THE HOSPITAL AND ASK THEM .THAY WILL NOT CHARGE.IS NOTHING HELPING/ http://www.webmd.com/eye-health/tc/eye-problems-noninjury-topic-
    charmaine petzer 176 Replies
    • February 1, 2010
    • 04:09 AM
    • 0
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  • HAVE YOU BEEN TO SEE A DOCTOR LATELY?DONT JUST SEE ONE DOCTOR .GO TO THE HOSPITAL AND ASK THEM .THAY WILL NOT CHARGE.IS NOTHING HELPING/ http://www.webmd.com/eye-health/tc/eye-problems-noninjury-topic- FORGOT TO SAY LOOK INTO :) The Eye in Systemic Disease
    charmaine petzer 176 Replies
    • February 1, 2010
    • 04:25 AM
    • 0
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  • Hey Charmaine,I am not a doctor, and I have no idea what causes your red eyes. What I do know, is that EFT often helps in cases where nothing else helped. It principally sorts out your system, so that your body can clear it's problems. It's free, there is a downloadable manual.I use EFT now since 2 years as a therapist for chronic pain - and the results are amazing. The motto is "Try it on everything", and on the emofree website you will find a huge amount of articles.If you want help with getting started, please send me a message - I just love to help people (probably something to be diagnosed as helper syndrom :))My own website is for parents with children with symptoms of ADD and ADHD - so not really for you :)I would love to hear how you do with the tapping, it normally reacts within moments, and again, if you want help to get started, I'm here.Charlotte
    charkamman 2 Replies
    • February 2, 2010
    • 10:33 AM
    • 0
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  • [hi! I work for an ophthalmologist where i live..did you ask your eye doctor to insert punctal plugs into your tear ducts? they are tiny silicone plugs that help keep the moisture on your eyes 24/7...also, if you do feel the need for moisturizing drogs, they help those drops to be more effective..I have them in my ducts and I love them. ( before them, my eyes were so dry and red i wanted to rip them out of my face :) they are easy to insert and if you dont like them, they are easy to remove. hope you feel better
    jerzmom114 1 Replies
    • February 2, 2010
    • 06:04 PM
    • 0
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  • hey i have the same problems as you. maybe we can help each other out with some things.my email isjune0188@yahoo.com my name is louis im 21 and i have been dealing with this crap too since i was 12.so email me and we can try to tip each other off on some things
    Anonymous 42789 Replies Flag this Response
  • Me again, something I have noticed is that if I stand in a dark room and light a flashlight on my eye it won't maintain the contraction. At first it immediately contract but after ~1 sec it dilate and then is like "unstable".Kinda like http://www.youtube.com/watch?v=OAkftY6BZS0I don't really care if my pupils pulsate, but maybe this cause my eyes to be tired/strained?They talk about "low aldosterone", is that something you should look into?
    OcaOla 7 Replies Flag this Response
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