Discussions By Condition: I cannot get a diagnosis.

recurring staph infection?

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: searay
  • November 23, 2008
  • 06:55 PM

For years I have had a recurring staph infection. The pattern is this:

A small, painful bump will appear somewhere in my scalp hairline, usually at the left/right temple, or at the back of the head. Within two or three days, this becomes a rash which eventually becomes large, swollen, extremely painful raw/red bumps in these locations. At about this time, my sinuses become infected. If I do not begin antibiotocs soon, I become morbidly ill, with a high fever. The eyes will eventually become infected, swollen nearly shut, and unbearably painful. The painful bumps will now start to appear in different parts of my body.

Within 12 hours of starting a course of anti-biotics, I feel a lot better, and the symptoms begin to subside. So I know that it is a bacterial infection.

There is very little or no seepage from the sores, so the doctors have not been able,as yet, to culture the infection.

I have been to Internists, Immunoligists, Allergists, and Infectious Disease specialists. My immune system appears to be bullit-proof, I have NO allergies, CBC and all other blood tests are normal, etc., etc.
I have been given bactoban to apply to the inside of the nostrils as a preventative - no help. Eventually, I was told to eat more honey and to drink green tea. At this point, I knew that the docs were out of ideas.

The only thing close to a diagnosis that I have been able to get is that I have a recurring staph infection.

I hope this sounds familier to someone out ther. HELP!!!!

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8 Replies:

  • It could be recurring shingles..
    Monsterlove 2921 Replies
    • November 24, 2008
    • 07:16 AM
    • 0
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  • Thanks, Monsterlove. Very good observation. This had occurred to me also, and I had mentioned this to my Internist some time ago. He poo-pooed it, flatly telling me that I did NOT have shingles. But I did talk him into writing a prescription for the shingles vaccine Zoster Vax. The vaccine is very difficult to find, and most doctors' offices will not order it - too much paperwork, my Internist tells me! But Rite Aid in Michigan will have it soon, and I will try it. It is supposed to be 60 - 80% effective. I will keep in touch with the results. Thanks,Searay
    searay 3 Replies
    • November 24, 2008
    • 01:14 PM
    • 0
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  • I may have a positive update on my condition. I have been to see many MD's and specialists over several years, and the result has always been the same - they could find nothing wrong with me medically. I have been sick Nearly every day of at least the last 20 years, but a cause could not be found - very depressing! Then, my dental plan changed with the new year, and I found a provider who was a subscriber to my new dental plan. He looked at my x-rays, and immediately referred me to a periodontist for a periodontal exam. Seems I have an advanced case of periodontitis, which has to be dealt with ASAP. No sore, bleeding gums. No loose teeth. No dental problems of any kind to indicate periodontis! But I had lost a lot of bone from around my teeth.The dentist thought that, since my teeth appear to be abnormally long, other dentists might not have called my attention to the bone loss - my teeth would not become loose no matter how much bone was lost. The periodontist said I had such a huge load of bacteria in my jaw, that it would take several cleanings before surgery could be done. He also put me on antibiotics for the duration. Surgery on my lower jaw was done recently. I am waiting for it to heal before the upper jaw can be done. But I have had just one sinus infection since the surgery, which was cured with a Z-pack and, for the first time in years, I feel really GOOD every day. I know it's too early to come to conclusions, and I'm interjecting some of my own hopeful thoughts, but this looks very promising. I will send another update later in the year, and hope to be able to give a final thumbs-up on a cure for my mysterious condition. Best Regards,SEARAY
    searay 3 Replies Flag this Response
  • My 24 year old daughter has been dealing with a recurring staph infection for about 2 years and going through the same diagnosis loop: doctor to doctor and they just put her on antibiotics and say "Good Luck. And expect to get these once a month." Thank you for the info and please keep me updated on your diagnosis! I hope it gets resolved for you!
    Anonymous 42789 Replies Flag this Response
  • I have had the same problem with recurring infections. My 2 year old son also has the same infectiong over and over only his affect his eyes, ears and private areas along with other areas of the skin. Everytime I take him to the doctor, he puts him on an antibiotic and it goes away, but within a month or two, it is back. I saw a dermatologist for my infections and he gave me Clindamycin which I have to take everyday for three months. He said that it is the best way to get rid of every last bit in and on my body. He reccommended also that I inform my sons pediatritian of what I am taking because he thinks that the same action should be taken for him.Doe snaybody have any experiance with this?
    Anonymous 42789 Replies
    • October 11, 2009
    • 01:09 AM
    • 0
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  • My 24 year old daughter has been dealing with a recurring staph infection for about 2 years and going through the same diagnosis loop: doctor to doctor and they just put her on antibiotics and say "Good Luck. And expect to get these once a month." Thank you for the info and please keep me updated on your diagnosis! I hope it gets resolved for you!my 2 sons always get these also,they are terrible very painful.
    Anonymous 42789 Replies
    • October 15, 2009
    • 06:35 PM
    • 0
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  • my 2 sons always get these also,they are terrible very painful.MANUKA HONEY IS THE ONLY TREATMENT FOR STAPH TO WORK 100% I just wish more people knew this. I am a carrier of staph and my son has eczema so often has open wounds and unfortunately I reinfect sometimes :( You must get manuka honey with a high UMF factor (the package saying it is Active honey does not mean it is the right one)Antibiotics are not effective as it is often resistant.
    Anonymous 42789 Replies
    • October 17, 2009
    • 04:15 AM
    • 0
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  • For years I have had a recurring staph infection. The pattern is this: A small, painful bump will appear somewhere in my scalp hairline, usually at the left/right temple, or at the back of the head. Within two or three days, this becomes a rash which eventually becomes large, swollen, extremely painful raw/red bumps in these locations. At about this time, my sinuses become infected. If I do not begin antibiotocs soon, I become morbidly ill, with a high fever. The eyes will eventually become infected, swollen nearly shut, and unbearably painful. The painful bumps will now start to appear in different parts of my body. Within 12 hours of starting a course of anti-biotics, I feel a lot better, and the symptoms begin to subside. So I know that it is a bacterial infection. There is very little or no seepage from the sores, so the doctors have not been able,as yet, to culture the infection. I have been to Internists, Immunoligists, Allergists, and Infectious Disease specialists. My immune system appears to be bullit-proof, I have NO allergies, CBC and all other blood tests are normal, etc., etc.I have been given bactoban to apply to the inside of the nostrils as a preventative - no help. Eventually, I was told to eat more honey and to drink green tea. At this point, I knew that the docs were out of ideas. The only thing close to a diagnosis that I have been able to get is that I have a recurring staph infection. I hope this sounds familier to someone out ther. HELP!!!!What you are describing sounds exactly like what I am going through. I had a small cyst removed from my forehead last year, and now the site continually gets infected with the same symptoms of: rash which eventually becomes large, swollen, extremely painful and raw. My eyes then become infected and swollen nearly shut. Bumps start to appear in different parts of my body. I go on antibiotics and it almost clears up for a couple weeks then comes back again. Right now I am on home IV antibiotics for 2 weeks, but like you, no swabs have come back positive for anything specific, so the doctors are still just trying different things. Have you stayed infection free since your dental surgery? Hopefully you are all well and cured since you have not posted in awhile! If not, did anything else help with your symtoms or did you find a doctor that could get it under control?
    Anonymous 42789 Replies Flag this Response
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