Discussions By Condition: I cannot get a diagnosis.

recurring meningitis

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: xarmyangel26
  • November 25, 2008
  • 04:11 AM

My main question is does anyone know anything that would cause a person to get viral meningitis more than once?

Ok, let me elaborate, I am a 26 year old female. I first got viral meningitis in July 2007. Ever since then I have had horrible headaches (constant headache, never goes away). Since then I have also had several issues with what some thought to have been mini strokes: weakness and tingling in left side of body (started with leg), confusion, vision problems. There was no evidence of stroke and doctors do not know why I am having these problems. Now my left leg is very weak and will just give out on me while I am walking. I have fallen down the stairs twice in the past 2 months. I have started using a cane to try and prevent serious injury. Now last week I went to the doctor again because my headaches have increased and wanted to know if something else was going on. They did another lumbar puncture and found out that I again have viral meningitis. My doctor is not sure why I would get meningitis again within a year and a half of already having it. I was wondering if with all the problems I have listed above anyone has any ideas of what could be wrong, or any other testing I could have done to see what was wrong. I have had many many MRI's and CT's of the brain, and an MRI of the lower back. The only thing that has shown up is a bulging disk in my lower back and a small cyst on my brain, but the radiologist believes that they are both of no clinical significance to what is wrong with me. Any ideas would be greatly appreciated, because I am out of ideas of what to do, and so is my doctor, he is also researching why i might have meningitis again. Thanks for taking the time to read my post.

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5 Replies:

  • Try here: http://yourtotalhealth.ivillage.com/overcoming-recurrent-meningitis.html
    aquila 1263 Replies
    • November 25, 2008
    • 09:05 PM
    • 0
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  • My main question is does anyone know anything that would cause a person to get viral meningitis more than once? Ok, let me elaborate, I am a 26 year old female. I first got viral meningitis in July 2007. Ever since then I have had horrible headaches (constant headache, never goes away). Since then I have also had several issues with what some thought to have been mini strokes: weakness and tingling in left side of body (started with leg), confusion, vision problems. There was no evidence of stroke and doctors do not know why I am having these problems. Now my left leg is very weak and will just give out on me while I am walking. I have fallen down the stairs twice in the past 2 months. I have started using a cane to try and prevent serious injury. Now last week I went to the doctor again because my headaches have increased and wanted to know if something else was going on. They did another lumbar puncture and found out that I again have viral meningitis. My doctor is not sure why I would get meningitis again within a year and a half of already having it. I was wondering if with all the problems I have listed above anyone has any ideas of what could be wrong, or any other testing I could have done to see what was wrong. I have had many many MRI's and CT's of the brain, and an MRI of the lower back. The only thing that has shown up is a bulging disk in my lower back and a small cyst on my brain, but the radiologist believes that they are both of no clinical significance to what is wrong with me. Any ideas would be greatly appreciated, because I am out of ideas of what to do, and so is my doctor, he is also researching why i might have meningitis again. Thanks for taking the time to read my post. Just to let you know, you are not alone. I'm in the process of my 3rd. First was July 07,second 9 months later in April and then again about 9 months after that, now in December.I was researching when I saw your request for info on reoccurance.They do not know why. You would think our body would grow a immunity to it.I did have tingling in my ankles. Didn't have the headache problems. This bought is a bitdifferent as they gave me a medication to take at the first signs of the disease. It's AcYCLOVIR 800 mg. It's actually a drug used to treat shingles, chickenpox or genital herpes. So the pharmacist had a very caring look on her face (like I had genital herpes) and asked if I know how to use this drug... I think it's helping easy my symptoms - especially my headache.This is getting to be a bit crazy, I can't live life very well getting this every 9 months with a 3 week to 6 month recovery. My eyes are taking the biggest toll.I also have a bulging disk.Just wanted to let you know you're not alone.... hope you find some answers.
    Altendorfer 2 Replies
    • December 15, 2008
    • 02:53 PM
    • 0
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  • Just to let you know, you are not alone. I'm in the process of my 3rd. First was July 07,second 9 months later in April and then again about 9 months after that, now in December.I was researching when I saw your request for info on reoccurance.They do not know why. You would think our body would grow a immunity to it.I did have tingling in my ankles. Didn't have the headache problems. This bought is a bitdifferent as they gave me a medication to take at the first signs of the disease. It's AcYCLOVIR 800 mg. It's actually a drug used to treat shingles, chickenpox or genital herpes. So the pharmacist had a very caring look on her face (like I had genital herpes) and asked if I know how to use this drug... I think it's helping easy my symptoms - especially my headache.This is getting to be a bit crazy, I can't live life very well getting this every 9 months with a 3 week to 6 month recovery. My eyes are taking the biggest toll.I also have a bulging disk.Just wanted to let you know you're not alone.... hope you find some answers.
    Altendorfer 2 Replies
    • December 15, 2008
    • 02:54 PM
    • 0
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  • The article on''Electrical Sensitivity and Hypersensitivity'' is a joke!There is absolutely nothing scientific about it.It is just an editorial with no references or bibliography.
    richard wayne2b 1232 Replies
    • December 15, 2008
    • 03:47 PM
    • 0
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  • Do you know what tests were run on your spinal fluid?The doctor should have run a PCR(polymerase chain reaction) on it.Find out if he did that or not.Next,you might have Mollaret's meningitis,which is recurrent.
    richard wayne2b 1232 Replies
    • December 15, 2008
    • 04:19 PM
    • 0
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