Discussions By Condition: I cannot get a diagnosis.

Recurring anxiety, fatigue, shaky, achy, restlessness, insomnia, sinus

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: de49152
  • March 17, 2008
  • 01:30 AM

I am a 33 year old male, active and otherwise in good health. I keep having these recurring symptoms, often start feeling this way in the middle of the night. So far my doctors do not have any answers. I've had many blood tests and all are normal. This is really starting to reduce my quality of life. It has happened to me off and on for a few years. Now it happens more often. Does anyone have any suggestions for additional tests or possible diagnosis? I am leaning toward some sort of allergy or immune response.

SYMPTOMS: Anxiety, fatigue, shakiness, achy joints/muscles, muscle weakness, restlessness, insomnia, sinus congestion, flu-like feeling, but NO fever, chills or rashes

TESTS: Allergic to mold, dust mites. Adrenal function is low-normal. Auto antibody is normal. Thyroid is normal.

POSSIBLE DIAGNOSIS: Adrenal insufficiency, environmental allergy, food allergy, auto-immune disease, hormone imbalance, neurotransmitter imbalance, nutritional deficiency, candida infection, unknown pathogen

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12 Replies:

  • I have very similar symptoms on and off and it has been increasing in frequency. Not sure what to do about it as I am not always sick and it is sometimes difficult to pin down the wide array of symptoms. I would be interested to hear about any progress you make.
    MSaint 1 Replies Flag this Response
  • I have Adrenal Insufenciency, Hypothyroidism, Chronic Fatigue Immune Dificiency Syndrome. Not to mentions a list of other issues. Too many to list. Mine was first diagnosed as Fibromyalgia. Which simply means muscle pain. Then it followed up with flu like symptoms and joint pain. I was the epitomy of the active person. I was active duty Army. Before that I fought Wildland Fires for two Seasons on the Angles Nat. Forest. I rock climed, rapelled, roller bladed, played softball, mountain biked and was even in charge of physical training in my clinic while in Germany. Just to name a few. Then things just progressively worsened upon my return to Ft. Bragg,NC. Then after having to be medically discharged from the Army after 6yrs. I finally got a proper diagnosis after 15 yrs of suffering from a civilian doc. After years of being told I was seeking attention, it was psychiatric, psyholigic in nature or somotaform in nature. I have Chronic Lyme Disease. I am not suggesting you have it or would NEVER diagnose anyone here. I would howere suggest you have an ELISA and a WB (Western Blot) ran. Do NOT let them do just the ELISA by itself. As it is not a definative test. The WB is more standard as a follow up. The body's immune system can be so far down that it will just give up. It can NO longer produce enough antibodies to fight off the Lyme. Which was in my case. The ELISA was neg and my WB was Pos. So the VA said I did not have it. I had to go to an outside doc to get the test redone. Also if you do get a doc to run it. Make SURE it goes to IgeneX lab in Palo Alto,Ca. If not, it is not worth the paper it is written on. They specialize in Lyme Disease. Also there are coinfections that the Lyme Disease carries.Babesia, Erhilichia, Bartonella and Rickitesia (PCR). You can have Lyme and have any of these other coinfections. For further info go to www.lymenet.orgJust to be on the safe side. Get tested. Bartontella ALONE can cause 10-15 injuries per ORGAN! :eek:
    zephyr 10 Replies Flag this Response
  • Maybe celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1,263 Replies Flag this Response
  • You really should research OI (orthostatic Intollerence) here is a list of SOME of the symptoms The symptoms for these conditions may include the following:Excessive FatigueExercise IntoleranceRecurrent Syncope or Near SyncopeDizzinessNauseaAnxietyTachycardiaPalpitationsVisual DisturbancesBlurred Vision Tunnel VisionGraying OutTremulusnessWeakness - most noticeable in the legsChest DiscomfortShortness of BreathMood SwingsMigraines and Other HeadachesGastrointestinal Problems
    aliceanna 41 Replies Flag this Response
  • Hi. Just came accross your post. I have similer symptoms from time to time and found that blood tests showed epstein barr traces in my blood. AKA, chronic fatigue syndrome.
    Anonymous 42,789 Replies
    • November 17, 2008
    • 02:20 AM
    • 0
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  • I just added G Monster Sleeping aid to my supplements Program; it has helped me sleep and has been helping me recover my muscles from the brutal training that I put on my self. It gives me a little buzz before bed and that is good for me because I do not drink, since alcohol weakens athletic performance.6 Perfect meals a dayWork 6 hours a day; 7 days a weekSleep 8 hours a day; 7 days a weekTrain 6 hours a day; 5 days a week1 heaping tablespoon of G Monster 30 minutes before bed. Wake up: 2 tablespoons of Metamucil (this is to remove the bi-products and soreness from my body brutal trainingImmediately drop a deuce, and then have first meal.Late Morning1.5 hours: Boxing; Muay Thai; Jui-Jitsu30 minutes circuit weights 3 times a week; mixing it up every time1 hour: stretchPost meal replacement while sitting in an ice bathLate After Noon1 hour: Boxing; Muay Thai; Jui-Jitsu; Wrestling90 Minutes: Bikram Yoga or Power Yoga or Gimnastics30 minutes: stretchPost meal replacements while sitting in an ice bath30 Minutes before bed I take G Monster to help me sleep; when training like this, my body is tired but my mind does not want to shut off; I was sitting in bed thinking and thinking. G Monster has the ability to help me relax and get the REM sleep plus the GH response to rest and recover for my next brutal day ahead of me.
    Anonymous 42,789 Replies Flag this Response
  • Your thoughts are good and there are some good comments.Have a quick look at this web sitehttp://www.drlam.com/articles/adrenal_fatigue.aspThe low GI diet may have a noticeable effect.The web site may corelate with other comments or help you look further.All the bestTerry
    Anonymous 42,789 Replies Flag this Response
  • Have you stepped up the intensity in your workouts lately!
    Maseco63 7 Replies Flag this Response
  • Hi, I have had similar problems, usually they begin in early morning or afternoon. Eventually dr's figured out my viral load of oral herpes is just way larger than is usual. Stress sets it off, and I am always stressed. Now I am on suppressive therapy, 500 mg acyclovir/day so I don't get breakouts. Totally took care of fatigue, shakiness, restless legs at night and anxiety. But I had to go through quite a few doctors to get them to listen. Before that I bought the antivirals online. If I couldn't get antivirals (and valtrex always worked best for me), which i usually got a 4rx.com, gargling with salt water several times a day and excercising regularly (yeah, I didn't feel like it either) helped.
    Anonymous 42,789 Replies Flag this Response
  • Hi. Just came accross your post. I have similer symptoms from time to time and found that blood tests showed epstein barr traces in my blood. AKA, chronic fatigue syndrome.I was diagnosed with epstein barr (CFS) some 20+ years ago: overwhelming fatigue, pain in joints with no swelling, etc. The doctors prescribed anti-depressants. I've had tried plenty. The did seem to help with the pain and I would only have flare-ups occassionally and they only lasted a day or so. These flare-ups were usually triggered by staying up too late, being too cold or emotional stress. I never really liked the diagnosis because its a syndrome, not a touchable curable illness. Kind of made me feel like "OK, you're crazy, here's antidepressant!" One doctor actually told me that if I would smile more, I might feel better. Never saw him again!Well, right now, I'm off anti-depressants (too expensive for current economic conditions) and I am hurting so bad. The same old stuff: can't sleep, hurt all over in the bones, stuffy nose, headache, my arms and legs are too tired to lift, nauseau and bloating.Geez, maybe I am crazy! I just don't want to take those pills forever.
    Anonymous 42,789 Replies Flag this Response
  • ... I was diagnosed with epstein barr (CFS) some 20+ years ago: I never really liked the diagnosis because its a syndrome, not a touchable curable illnessdoctor actually told me that if I would smile more, I might feel better SMILE -The Doctors say it poorly, but to explain, if you tickle a sad child in the right place, genraly they will start laughing and their sadness will go.There have been many studies that prove "... when the mouth is in the smiling position, there are deffinate chemical and emotional changes to the body to indicate that they are experincing a quantifiable level of pleasure, despite the fact that there is no change in the ...".Many dogs can be exited by having their tail wagged correctly, it is a specific combination of the hip movement and the tail, the simily is to tickling a child (there is actually a mathermatical ratio to quantify the wag & hip swing effect).So laughing and smiling DO improvre your chemical levels, whether it is real or forced.BUT when produced through real emotions, your get a HIGHER increase in chemical levels, which have been repeatedly proven to speed and increase healing in many substantial illness' (the only ones I can recall are all for cancer patients, but there are other studies and other "active recovery programs").So watch a good film, tell jokes, the more you do, the more you will get back (but I know when you feel bad, there is no way you even want to bother - but the chemicals released do make life better !).SYNDROME -I understand when diagnosed with "SYNDROME", but at least you are not misdiagnosed.It would be possible to also give many other illness' which are "more serious" (forgive the wording), and that presents more problems.Also at least you have a quantifiable illlness that people can understand - well sometimes :)Consider a "cold" as a simily, there is no one single treatment (in fact, "there is no proper treatment for the Common Cold, only to alleviate the symptoms while the patient recovers").So with CFS, there is no one recovery medicine or system, and hopefully that will remind you to keep looking for "the help you need at the time in your illness" (for those who don't know, the condition often varies on a daily bassis - or even more often at times !).It is easy to get complacent about the illness, because of duration and hassles.From experiience, sometimes simple is impressively good, e.g. zinc, St. Johns Wort and so many more.There is some talk (again ?) about long term CFS (using a simily) being like a broken leg, when it comes out of the plaster cast, it needs exercise to get it working corretly. With CFS, the series of glands (7 ?) are out of sync' and until they are all back in sync' means that the body can not peforms as meant to be (thus you remain ill).A broken leg only lasts weeks or months and then gets "physiotherapy".Because CFS sufferers often have had the illness for years before diagnosis, also the only "physiotherapy" available is a "daily exercise regime", which is "indirect", so it is even harder for the body to get back to normal.Anyway, to all sufferers of CFS and similar illness' who have had it for more than 1 year after diagnosis, I truley do wish you a normal life ASAP !
    Anonymous 42,789 Replies Flag this Response
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  • I know it's a few years later and a long shot but do you still have the symptoms and have your been diagnosed with anything in particular ? I have the exact same symptoms
    Anonymous 1 Replies
    • August 26, 2015
    • 08:15 PM
    • 0
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