Every. Single. Day. It's been about 10 months now that every night, I simply want to curl up and die. My stomach swells to the point that I look six months pregnant. I feel frequent movement through my lower esophageal valve (like a burp, but a valve too low), which happens every time I put anything in my stomach, even water, and will last for hours after a meal. The bloating is far worse at night, even if I've tried not to eat very much during the day. Nothing helps AT ALL, and I have tried everything over the counter and some prescription meds.
Tests I've had done that have come back normal:
2 gastric emptying studies (1 60-minute and 1 4-hour)
a CT enterography
a barium MRI (showed severe constipation, for which my doctor prescribed what they give as a colonoscopy prep, did not help at all, and since then with the use of probiotics my bowel movements have become more regular, though I still feel some constipation)
all blood-work (celiac was "equivocal")
Food allergy testing showed mild (extremely mild) sensitivities to peanuts, eggs, beef, and pork, but I rarely eat these foods anyway and haven't noticed anything significant when I have
I am lactose-intolerant but do not consume dairy (except for Greek yogurt, and that is only sporadic and does not coincide with my symptoms)
Things that have not worked:
Gluten-free (it's been only a month or so, so it may be early to say for certain)
Cutting out artificial sweetener (that's only been a week, but things feel no better)
Rifaxamin (one 10-day course)
Supplements, including ginger, peppermint oil, digestive enzymes, garlic oil, bromelain, spascupreel, l-glutamine, and betaine HCL. I still take the ginger, enzymes, garlic, and peppermint, as well as two types of probiotics (Phillips colon health which definitely relieves some constipation, and Primal Defense). I often take laxatives, but the bloating persists.
I'm going to the Mayo clinic in a couple of weeks, but I am just so desperate, I feel sick every single day and it's destroying my life. I am kept up at night by the swelling in my stomach and I often wake up in the morning still bloated from the night before. I also get frequent nausea and no amount of antacids exists that will soothe my heartburn. I have a mild case of Crohn's but it seems under control (no bloody diarrhea or signs of stricture, bloodwork is normal).
I don't really feel pain beyond the sense that my stomach walls are being stretched beyond capacity. I also have strange lumps on my abdomen which appeared on an ultra-sound to resemble lymph nodes, though it's a rather peculiar place for them (right down the center of my abdomen), and they get tender when I am very bloated. My navel will also protrude, but no hernia was seen on the ultra-sound.
Someone help me, I don't know how much more of this I can take.
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