I'm new to this website so my apologies if I am out of Line anywhere!
Well where do I start? Basically 6 years I started contracting pnuemonia. Since then I have contracted 7 pnuemonias in the 6 years.
At first it was very mild only requiring 3 maybe 4 days in hospital on IV antibiotics. However which eac episode of pnuemonia it has got worse. With the last 4 requiring Intensive Care Unit admission and th last episode saw me enter respitory arrest. This lead to me being on a ventilator for 3 weeks and I had to have a tracheostomy.
I have been seen by a chest who has check for things like Congenital Malformation of my lungs, organising pnuemonia causing bacteria and as well as other diseases and conditions. These were futile and no diagnosis was reached and I have now been discharged to from the chest clinic due to no diagnosis being reached plus two blood tests that showed I had a very low CD4 count of just 195 which is indicative of AIDS rather than HIV. However all 5 tests for HIV have be negative both for the antibodies and the genetic material test.
The other test was my Immunoglobulins test which showed I had lowered antibody levels so I was passed over to immunology who ran a whole serious of tests for immunological disorders. These included CVID, Complement Deficiency and other such diseases. All these came back as negative. I was about to be put on immunoglobulin replacement therapy however a last minute blood test showed that my levels where in the normal range but at the lower end of normal but this was sufficient to not require the replacement therapy.
I was signed of from Immunology about 4 months due to going 18 months without any sort of infection. I continued with the continous antibiotic treatment which 250mg of Amoxicillian 3 x a day and I have an emergency supply of Eurythromycin for any break through infections.
The problem with this therapy is that I become ill very very very quickly. The last pnuemonia I had requiring the ventilation not even 12 hours before I was enjoying a night out in Manchester with nothing more than a runny nose. Then I went to bed woke up and was very short of breath and admitted to hospital.
They have grown some bugs in a lab from my pnuemonia episodes and these bugs were Atypical Pnuemonia, Community Aquired Pnuemonia and Mycoplasm.
None of my doctors can explain why I am contracting pnuemonia on such a regular basis. Therefore I am wondering if there is anyone on here who has been experiencing a similar problem or know of someone who has? I would like to know their story and to know what they have done about it and if any diagnosis or theories have been reached?
I'm kind of desperate now, I feel like I can't leave my front door and have to avoid any source of infection at any cost. Just like I have said each time it gets that little bit worse and I feel now it is at the stage where it can't without causing death.
Thanks for listening and thank you for any help or advice you can pass on!