I'm at my wit's end. It's been 4 years now and not only have I yet to receive a diagnosis, but I have had some very skilled doctors and specialists give up on me --whether it was by graciously 'accepting defeat' and telling me they no longer knew what to do or where to refer me, writing me off a narcotic seeking addict or simply refusing to return or accept my phone calls.
I can go into details if you like: medications tried, diagnoses given, surgeries experienced, tests done, so on and so forth, but long story short I have unexplained stomach pain that I can't seem to associate with anything (food, stress, etc). All of the simple disorders have been ruled out (e.g. acid reflux, IBS), as well as the obvious (e.g. Crohn's) and the not-so-obvious (e.g. Meckles diverticulum). I am unable to hold down a 'real' job because of the unpredictability of my 'attacks' (not to mention the fact that it's rather difficult to explain to your boss, "I may not be in because sometimes my tummy hurts" with no doctor's note to back you up ::sigh:: ) and I feel like I should be dealing with much more trivial and childish 'problems' at age 25, instead of wondering whether I'm dying or not...
I will put up with pretty much any test and expense (payment plans are great, aren't they?) if someone could simply attach a name to my excrutiating pain --treatment or not. Also having to deal with Sjogren's, I've been pointed to Rhumatologists in addition to the GI specialists and Internists. I've even been to see the supposed miracle workers of the Mayo Clinic (what an awful experience!!) with no luck.
I am currently located in Alabama but would be happy to speak with anyone that thought they might have an idea on what was going on. So if you know anyone that might have some expertise in this area and loves a challenge, please get me a name and I'd be happy to follow up; my sanity depends on it.
Thank you. Even if it's just for listening to my rant :rolleyes: