Discussions By Condition: I cannot get a diagnosis.

Ready to Give UP!!! Good Neuro B'Ham AL??

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: kimmcannally
  • September 10, 2008
  • 10:43 AM

Do these symptoms sound familiar to anyone? My neuro says "everyone has aches and pains". I ignore aches and pains, these are WEIRD things! They go back 16 years!

I'm almost 39, Female, White.
A week after first childbirth, I woke up and could not walk or move legs. Lasted 24 hours.
Twice, I've had severe chest pain (like a heart attack). Once lasted all night, once just a couple of hours.
Numb spot high mid back on spine after 2nd child born. Lasted for years.
Diagnosed with migraines and myoclonic jerks in my neck.
One episode of "staring spell" lasting about 5 minutes.
Right hand weak for about 3 weeks? Couldn 't open bottles or cans.
Numb feet, tingling burning in left foot for months. (2006)
Balance problems, fell over when I tried to squat for 3 weeks.
Memory problems, got lost on way to known destinations.
Fatigue.
Upper lip, cheek and top of ear all numb on right side. 4 hours?
Severe neck and back pain.
Numb feet, tingling both feet up calves (right now - started yesterday afternoon and is ongoing)
All of this stuff lasts a day or two, sometimes weeks. But all goes away, then comes back later.
Thyroid tests negative, arthritus negative, MRI of brain and spine negative, EMG negative. Vitamin B12 is normal.
I have a hard time finding a Dr. I like. So most items are undocumented and I don't think current neuro believes me.
I find it hard to believe it could be MS (symptoms fit) because it goes back so many years, yet all my MRI's are negative. Haven't had evoked potentials or LP.
Any ideas? Any suggestions for a GOOD neurologist in the Birmingham, AL area? I want someone who will actually listen to me and tell me what they think it might be, instead of sending me for umpteen tests and not telling me why.
Thanks!
Kim

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3 Replies:

  • Did you have an epidural at childbirth or any spinal injuries years ago? Sometimes things don't show on MRI or is not being looked for. Please read about Arachnoiditis. Good site is(I think) cofwa.org or google any info on arachnoiditis symtoms & causes & see if this fits. Best wishes.
    Anonymous 42789 Replies
    • September 10, 2008
    • 04:19 PM
    • 0
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  • A long shot, but has anyone looked at celiac disease? You have the numbness described in the article I usually send on this, but not other symptoms... Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies
    • September 10, 2008
    • 04:47 PM
    • 0
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  • Did you have an epidural at childbirth or any spinal injuries years ago? Sometimes things don't show on MRI or is not being looked for. Please read about Arachnoiditis. Good site is(I think) cofwa.org or google any info on arachnoiditis symtoms & causes & see if this fits. Best wishes. Thanks - I'll check that out. No epidural with first birth, but I did have one with second and after that I got a numb spot in my spine that lasted for years. Kim Ahh, I don't see it. This comes and goes and pain isn't really a big symptom. Oh well, something ruled out, I suppose. Thanks :)
    kimmcannally 2 Replies
    • September 11, 2008
    • 11:04 AM
    • 0
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