Discussions By Condition: I cannot get a diagnosis.

reacuring fevers in my 8 yr old girl,, can not get a diagnosis... any ideas???

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • January 11, 2011
  • 04:12 AM

MY DAUGHTER IS 8 NOW AND WHEN SHE WAS BORN I BREAST FEED HER TILL SHE WAS ABOUT 3 MONTHS OLD. BY THE TIME SHE WAS 5 MONTHS OLD SHE HAD STARTED RUNNING FEVERS ABOUT EVERY 15 DAYS. DOCTORS WOULD ALWAYS TELL ME SHE HAS EAR INFECTIONS OR COLD OR WHATEVER THEY COULD TO RIGHT IT OFF AND HUSH ME UP. WHEN SHE TURNED 3 I HAD A FIT AT HER PRIMARY DOC ABOUT HER RUNNING FEVERS EVEN ON ANTIBIOTICS. DOC FINALLY SENT UP FOR BLOOD WORK. IT CAME BACK ABNOMAL. LIVER ENZYMES WAS NOT GOOD. THEY SAID SHE HAD CYSTIC FIBROSES.( PLEASE FOR GIVE THE BAD SPELLING) AFTER THE DIAGNOSIS THEY SEND US TO A SPECIALIST WHO TOLD ME SHE DIDNT HAVE IT. IN THE MEAN TIME SHE RUNS FEVERS ABOUT EVERY 15 DAYS AND KNOW HAS EXTREAMLY BAD ABDOMINAL / STOMACH PAINS THAT HAPPEN ALL THE TIME. SOMETIMES WAKING HER UP FROM SLEEP. IVE TAKEN HER TO NIH= NATIONAL INSTUTE OF HEALTH A COUPLE TIMES SHES HAD MRI, CAT SCAN, ULTRA SCANS, SEVERAL BLOOD TEST INCLUDING TESTS FOR PERIODIC FEVERS ALL 5 THAT YOU CAN TEST FOR AND SHE DONT HOLD TITERS TO TETNIS , POLIO AND A FEW OTHERS. SHE HAD UPPER GI ,CHANGED DIET... EVERYTHING SEVERAL DOCTORS CAN THINK OF AND EVERYTHING I CAN THINK OF. EVERY DOCTOR I TAKE HER TO JUST GIVES UP AND PASSES HER TO THE NEXT SPECIALIST. SHE IS NOW FIXING TO BE 9 AND SHE MISSES ABOUT 30 DAYS OF SCHOOL A YEAR, CRIES BECAUSE SHE HURTS AND NOTHING NOT EVEN TYLENOL OR ADVIL HELPS. MISSES OUT ON SO MUCH. THIS WILL BREAK A MOTHERS HEART IT RIPS AT MY SOUL.... EVERY OTHER DAY WHEN SHE IS IN PAIN I FACE ...YOU CAN NOT FIX YOUR DAUGHTER... YOU CAN NOT MAKE HER FEEL BETTER AND YOU CAN NOT EVEN TELL HER WHY. NIH SAID SHE HAS SOME KIND IMMUNE DIFICENCY BUT THEY DONT KNOW WHAT KIND AND THEY ALSO BELEIVE SHE HAS SOMETHING ELSE GOING ON WITH HER ...THEY DONT KNOW WHAT IT IS. FOR 9 YRS I HAVE FAUGHT FOR MY DAUGHTER I WILL NOT EVER GIVE UP BUT OMG I AM TRULY AT A LOST ON WHERE ELSE TO GET HELP...:mad::confused::(

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