Discussions By Condition: I cannot get a diagnosis.

RE: Undiagnosed 10 years any ideas?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Carrlexzi
  • February 28, 2009
  • 07:50 PM

Ok I've pretty much narrowed down my symptoms being metabolic related. However, I still haven't received a diagnosis.

Here they are, about 10 years ago I started feeling really fatigued which then developed into headaches, sensitivity to lights(not that it hurts my eyes but that the lights in stores make me feel dizzy, vertigo, etc) Also dim/dark or depth areas make me dizzy too. (For example looking into a dark closet or cupboard). But I do not have headaches with this sensitivity. I've noticed that when I eat, (especially High GI carbs I get very dizzy ie. Chinese food) but sometimes even with any type of food, including lean proteins brings on the same response. I know it has something to do with Insulin(resistance or disturbance) because I have PCOS. And, symptoms get worse around that time of the month. But many women suffer PCOS and are not disabled. Anyway, I also can not handle being scared or startled. I literally feel like I'm having a stroke. Half of my face feels funny and my right eye goes dim. I try hard to stay calm most of the time to avoid this. So in essence, I have a sensitivity to adrenaline. Over the years I have noticed that when I feel (I call it hypoglycemia) I have orthostatic hypotension. One day, I had a bad attack, went to the doctor for a scheduled routine visit for something else and the nurse even stated my blood pressure was a little low 90/64. So I am wondering....Why do I feel horrible and every test the PCP and specialists take are always normal? No one can seem to give me a straight answer except that I'm suffering from CFIDS! Really? Come on now?

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