Discussions By Condition: I cannot get a diagnosis.

Rash All Over Upper Body Whenever I Get Sick...

Posted In: I cannot get a diagnosis. 247 Replies
  • Posted By: Anonymous
  • September 20, 2007
  • 01:29 AM

Hi! Since I was in my teens every time I've gotten sick with any type of illness (generally common colds), I've gotten a bright, red rash all over my upper body and sometimes anywhere else warm (insides of elbows, groin, backs of knees). Initially, I thought it was probably a reaction to some medicine I was taking and dismissed it. At one point during college though, I got so fed up with this hideous rash that I decided not to take any medicine and live with the cold/flu symptoms. When the rash occurred without any medication, I went to a doctor for it. He said that in 26 years of medicine he had never seen anything like it and basically dismissed me as lying to him.

Since it does not itch (it does get stiff and puffy) and is mainly cosmetically irritating, I haven't worried too much about it. Just a few days ago, I got food poisoning, and the rash came along. I can't find any information on this anywhere, and I can't seem to find anyone else who shares this problem. Any ideas on why I get this rash every single time I get sick? It generally is at its worst when I am getting better.

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  • I've had this for a few years now. It comes on when I have a cold, have a fever, or when I am dealing with a sinus infection. Never from sweating or from sauna or from working out. I think that is a different ailment called cholinergic urticaria. As far as the anitibiotic idea, I get this rash before I take any. My health history includes chicken pox which has brought on other ailments like shingles and bell's palsey as chicken pox never leaves your system once it is in. I'm curious of how many of you have had the chicken pox and is this related? I used to get very dried out skin on my hands which sometimes led to cracking and bleeding. I went to a derm and he told me that some people carry stress in their skin. He gave me a shot and my skin cleared up. I had that symptom off and on for years, but in the past few years that I have been dealing with this skin rash I have not. I also used to have a recurring battle with mouth ulcers and since this skin rash has emerged I have not. I'm wondering if any of this is related. I am allergic to penicillin and wonder if what ever is in my body that rejects penecillin is causing this as well. I had the penicillin allergy before I had chicken pox. So my rash isn't like the photo's I've seen that are shown on cholinergic urticaria sites. I don't really think they are the same. Pictures I've seen of Cholinergic urticaria look like little bumps. Mine can be quite anywhere from small in size to large, there is no little dot in the middle or anything like that, and they are flat. Most are circles, the one on my thumb is oval but I think that is because of the curve of my thumb. All of them are a darker color than my normal colored skin. I have about four smaller ones on my face. One by my right eye, one above my lips on my right side, one on my chin left side, a few medium sized ones on my neck, several larger ones on both the front and back of my torso. I get on medium sized rash on my index finger on my left hand and also one my thumb on my right hand. I also have it near the end of my unmentionable, I am male. I haven't noticed anything on my legs or feet. These rashes are in the exact same places every single time. It's bizzare. Recently someone at work has been battling a bad cough. I sit next to him. He has been ill for a couple of weeks and it upset me that he wasn't going to the doctor to get this taken care of. So just a few days ago I woke up with the same cough. I said to the guy yesterday that it's just a matter of time before my rash shows up because it always does when I have a cold or am sick in any way. Sure enough I woke up today with the lovely reminders. All in the same places as the times before. You might think I brought it on because I thought of it, but it's just because it happens every time I get ill in any way. Just something to expect and accept. I'm a little surprised that I haven't been able to find anything out about this rash online. I haven't seen a photo that resembles mine on any of the rash sites, nor do I find a doctor that speaks of this. This site has been the first that I have found and was relieved that I'm not crazy or alone. I too feel dehydrated, I also drink coffee with splenda and other artificial sweetners so I'm going to stay away from those for a while and see if that makes a difference the next time I get a cold. I'm willing to try anything at this point. I would say that it might be related to antibiotics, but as I've had them show up before I take any, so it makes me feel like ruling that out. But each person has a different body and maybe a different trigger. We all seem to get this from a cold, infection, or when we have a fever. There is some connection there for sure. I would love it if people would post their health history that might be related to this as it might help us find a common thread. As I said earlier, mine are:Chicken PoxBell's PalseyShinglespossible mono as a teenager but never diagnosedallergies to pennicillin and aspirinused to have mouth ulcers, no longerused to have cracked dry skin on my thumbs, no longerMy triggers are:coldfeverinfection usually sinusp.s. I always seem to have an upset stomach during part of the any of these times. Maybe this is stomach related. The liver? Who knows? None of us or we wouldn't be here right? : )
    Anonymous 42789 Replies
    • November 20, 2009
    • 07:59 PM
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  • [Ask your doctor about the shingles virus.
    Anonymous 42789 Replies
    • February 26, 2010
    • 07:39 PM
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    Flag this Response
  • I've had this for a few years now. It comes on when I have a cold, have a fever, or when I am dealing with a sinus infection. Never from sweating or from sauna or from working out. I think that is a different ailment called cholinergic urticaria. As far as the anitibiotic idea, I get this rash before I take any. My health history includes chicken pox which has brought on other ailments like shingles and bell's palsey as chicken pox never leaves your system once it is in. I'm curious of how many of you have had the chicken pox and is this related? I used to get very dried out skin on my hands which sometimes led to cracking and bleeding. I went to a derm and he told me that some people carry stress in their skin. He gave me a shot and my skin cleared up. I had that symptom off and on for years, but in the past few years that I have been dealing with this skin rash I have not. I also used to have a recurring battle with mouth ulcers and since this skin rash has emerged I have not. I'm wondering if any of this is related. I am allergic to penicillin and wonder if what ever is in my body that rejects penecillin is causing this as well. I had the penicillin allergy before I had chicken pox. So my rash isn't like the photo's I've seen that are shown on cholinergic urticaria sites. I don't really think they are the same. Pictures I've seen of Cholinergic urticaria look like little bumps. Mine can be quite anywhere from small in size to large, there is no little dot in the middle or anything like that, and they are flat. Most are circles, the one on my thumb is oval but I think that is because of the curve of my thumb. All of them are a darker color than my normal colored skin. I have about four smaller ones on my face. One by my right eye, one above my lips on my right side, one on my chin left side, a few medium sized ones on my neck, several larger ones on both the front and back of my torso. I get on medium sized rash on my index finger on my left hand and also one my thumb on my right hand. I also have it near the end of my unmentionable, I am male. I haven't noticed anything on my legs or feet. These rashes are in the exact same places every single time. It's bizzare. Recently someone at work has been battling a bad cough. I sit next to him. He has been ill for a couple of weeks and it upset me that he wasn't going to the doctor to get this taken care of. So just a few days ago I woke up with the same cough. I said to the guy yesterday that it's just a matter of time before my rash shows up because it always does when I have a cold or am sick in any way. Sure enough I woke up today with the lovely reminders. All in the same places as the times before. You might think I brought it on because I thought of it, but it's just because it happens every time I get ill in any way. Just something to expect and accept. I'm a little surprised that I haven't been able to find anything out about this rash online. I haven't seen a photo that resembles mine on any of the rash sites, nor do I find a doctor that speaks of this. This site has been the first that I have found and was relieved that I'm not crazy or alone. I too feel dehydrated, I also drink coffee with splenda and other artificial sweetners so I'm going to stay away from those for a while and see if that makes a difference the next time I get a cold. I'm willing to try anything at this point. I would say that it might be related to antibiotics, but as I've had them show up before I take any, so it makes me feel like ruling that out. But each person has a different body and maybe a different trigger. We all seem to get this from a cold, infection, or when we have a fever. There is some connection there for sure. I would love it if people would post their health history that might be related to this as it might help us find a common thread. As I said earlier, mine are:Chicken PoxBell's PalseyShinglespossible mono as a teenager but never diagnosedallergies to pennicillin and aspirinused to have mouth ulcers, no longerused to have cracked dry skin on my thumbs, no longerMy triggers are:coldfeverinfection usually sinusp.s. I always seem to have an upset stomach during part of the any of these times. Maybe this is stomach related. The liver? Who knows? None of us or we wouldn't be here right? : )Sounds to me like everything I have experienced. It ended up being celiac disease. Now if I even get a small amount of gluten in my body, I get the rash and mouth ulcers immediately. The sinus infection and sickness are soon to follow. Good Luck!
    Anonymous 42789 Replies Flag this Response
  • I've had this for a few years now. It comes on when I have a cold, have a fever, or when I am dealing with a sinus infection. Never from sweating or from sauna or from working out. I think that is a different ailment called cholinergic urticaria. As far as the anitibiotic idea, I get this rash before I take any. My health history includes chicken pox which has brought on other ailments like shingles and bell's palsey as chicken pox never leaves your system once it is in. I'm curious of how many of you have had the chicken pox and is this related? I used to get very dried out skin on my hands which sometimes led to cracking and bleeding. I went to a derm and he told me that some people carry stress in their skin. He gave me a shot and my skin cleared up. I had that symptom off and on for years, but in the past few years that I have been dealing with this skin rash I have not. I also used to have a recurring battle with mouth ulcers and since this skin rash has emerged I have not. I'm wondering if any of this is related. I am allergic to penicillin and wonder if what ever is in my body that rejects penecillin is causing this as well. I had the penicillin allergy before I had chicken pox. So my rash isn't like the photo's I've seen that are shown on cholinergic urticaria sites. I don't really think they are the same. Pictures I've seen of Cholinergic urticaria look like little bumps. Mine can be quite anywhere from small in size to large, there is no little dot in the middle or anything like that, and they are flat. Most are circles, the one on my thumb is oval but I think that is because of the curve of my thumb. All of them are a darker color than my normal colored skin. I have about four smaller ones on my face. One by my right eye, one above my lips on my right side, one on my chin left side, a few medium sized ones on my neck, several larger ones on both the front and back of my torso. I get on medium sized rash on my index finger on my left hand and also one my thumb on my right hand. I also have it near the end of my unmentionable, I am male. I haven't noticed anything on my legs or feet. These rashes are in the exact same places every single time. It's bizzare. Recently someone at work has been battling a bad cough. I sit next to him. He has been ill for a couple of weeks and it upset me that he wasn't going to the doctor to get this taken care of. So just a few days ago I woke up with the same cough. I said to the guy yesterday that it's just a matter of time before my rash shows up because it always does when I have a cold or am sick in any way. Sure enough I woke up today with the lovely reminders. All in the same places as the times before. You might think I brought it on because I thought of it, but it's just because it happens every time I get ill in any way. Just something to expect and accept. I'm a little surprised that I haven't been able to find anything out about this rash online. I haven't seen a photo that resembles mine on any of the rash sites, nor do I find a doctor that speaks of this. This site has been the first that I have found and was relieved that I'm not crazy or alone. I too feel dehydrated, I also drink coffee with splenda and other artificial sweetners so I'm going to stay away from those for a while and see if that makes a difference the next time I get a cold. I'm willing to try anything at this point. I would say that it might be related to antibiotics, but as I've had them show up before I take any, so it makes me feel like ruling that out. But each person has a different body and maybe a different trigger. We all seem to get this from a cold, infection, or when we have a fever. There is some connection there for sure. I would love it if people would post their health history that might be related to this as it might help us find a common thread. As I said earlier, mine are: Chicken PoxBell's PalseyShinglespossible mono as a teenager but never diagnosedallergies to pennicillin and aspirinused to have mouth ulcers, no longerused to have cracked dry skin on my thumbs, no longer My triggers are:coldfeverinfection usually sinus p.s. I always seem to have an upset stomach during part of the any of these times. Maybe this is stomach related. The liver? Who knows? None of us or we wouldn't be here right? : ) I am soooo thankful I found this thread also!!! I too have been having this rash every time I get a cold for about 15 years, whether I have fever or not!! The reash itself does feel a little hot when I get it, but it doesn't really itch or anything. I thought I was allergic to any and all types of cold medications, including those zinc lozenges, because it happened every time I got a cold. I went to many allergists who tested and tested and found that I was not allergic to anything at all!! Then earlier today I read one of the posts that mentioned autoimmune disorders and psoriasis and BINGO ! that must be what it is. About 7 years ago I was diagnosed with mild psoriasis (which is an autoimmune disorder) on my scalp and in my ears. I can control it with a cream and the psoriasis doesn't occur very often, but that would make the case for another autoimmune response issue. I am suffereing from another cold for the last few days and there was the rash again, so I decided to Google it and found you guys! Together maybe we can get some more answers and found out how to make it go away. I am going to register so we can all stay in touch and find some answers. I am just getting over a short cold right now and the rash is almost gone, but the inside of my ears are itching, which is where I have psoriasis. This is why I think it is related to psoriasis in some way. Maybe we can go down that path a little. If anyone who has psoriasis also gets these rashes, please speak up!!! "Fairview" I think you have a great idea about all of us listing our medical histories like you did and let's find some common threads. Then we can tell some doctors about what we found: My diseases: Chicken pox when I was a childMumps when I was a childMeasles when I was a childGenital herpes, but not for the last 10 years (I do not get cold sores)Psoriasis (mild)Non-allergic rhinitis Triggers: Colds and cold-like maladies, like the flu It also seemed to happen when I ate certain foods like too much avocado or even a little bit of mango Thanks for being weird like me! Linda
    Linda in San Diego 1 Replies Flag this Response
  • This is so interesting. I have Bell's Palsy and shingles, and now I have a rash the size of my hand on my upper, inner thigh. It itches to the point of scratching til it bleeds. It sounds like psoriasis but I have not gone to the doc for this yet (lost insurance) until I absolutly have to. I know the bell's and shingles are related, but is the rash? I take meds for severe depression, was told that's related, and all are on the left side of my body which I was told is usually the case - to have these things on one side or the other. The rash started out looking almost like ringworm, very small, and has taken over half my upper leg. I have severe allergies as well. Just wondering if rash is related. Lots of stress in my life right now, like everyone, I realize this is the major trigger for these types of things. thanks!
    Anonymous 42789 Replies Flag this Response
  • You can't imagine the relief I feel now that I see I am not the only one with this. For over 25 years now, I had this rash that starts on my chest, and then it spreads up and down, covering my torso, my back, and slowly getting to my neck and then my face.It appears when:- I have a cold- a stomach flu - after a tooth extraction- after knee surgery- after liposuction- during a kidney infection.For the first 15-16 years (until I was 35) it did not appear at every cold, or sickness, only after major surgery, and some infections; also it was not very red, and covered only my chest area, except the time I had my tooth extraction, and the kidney infection when it spread all over my torso, back, down on my legs, arms, and when it was not a faint pink but an angry sort of red. But after I got vaccinated against chickenpox 5 years ago (I never had chicken pox and since my son had to get his vaccine, my physician recommended I get vaccinated too), it now appears at every little cold or sickness I have, and it is always very very red. My skin feels quite hot when I have the rash, to the point that once I got something resembling a small burn on the back of my neck when I had it (I had the flu and was with my neck on the pillow a lot). It always appears in small pinkish splotches on my chest and as a faint pink shadow on my forehead. Then the splotches extend, get more angry red, and unite forming a red surface on my chest area, and under my breasts, and then it extends and covers most of my upper body and upper arms, and then (horror) all over my face. When it is really bad, it appears on my lower legs as well. It is horrid and I can't get out of the house for almost a week, until it goes away, as my face looks like I have a very bad case of sunburn (with white spots around my eyes only), and a bit puffy too. The rash starts 2 or 3 days into the sickness (no matter what it is), and I have noticed that after I get this rash, my stomach acts a bit upset (like there would be too much acid). Reading a lot about histamine and mast cells, I concluded that the mast cells in the lining of my stomach probably get upset too (not only the ones in my skin) hence the upset stomach.As I said, it is not itchy, but when I have a serious infection, it feels slightly hot.It appears even if I have no fever.It does not appear when I exercise, and it does not appear when I sweat or have a very hot bath (I love hot baths). I had it only once during my period (but it was a very painful period), so now I get some ibuprofen on the first day of my period to avoid the pain completely. By the way, it does not matter if I take medicines or not, it appears even if I take no antibiotics or medicine at all. Once when I had the flu I ended up in the ER with it and they gave me prednisone for it, but it did not go away any faster with the prednisone, it still took the normal 4 days to clear. Claritin (or any other antihistamine) seems to have no effect on it. None of the doctors I talked to had any clear idea what this could be, they just looked quite puzzled by it Please, if anyone has updates on treatments or diagnostics I would be so happy to see them, so please post!Thank you!OK at first I thought you may have to cleanse your liver as you were describing symptoms of dermatitis and were canceling out many reasons as to what may be bringing it on- but when I read the part about the Chicken Pox Vaccine- I knew you are having an adverse reaction to that vaccine which is NOT uncommon- and you need to report it to the VAERs on line database.(this is so the govt can know and so other people who read it know.)You may be able to seek compensation for this issue- as they have information about that - and if you email me I know I have it listed somewhere on my FB group page= you can actually look there for it- "Say NO to Aspartame, Sucralose /Splenda, Gardasil and dangerous 'foods"Look under the VAERs or Gardasil discussions if you have trouble locating it. As far as a diagnoses-you have Shingles- Herpes Zoster -the adult form of chicken pox. It is a recurring infection through life and closely related to the Herpes simplex virus. If the immune system is taxed with severe emotional stress, illness, or lon term use of corticosteroids this otherwise dormant virus becomes active and starts to infect the pathways of the nerves. Buy Thieves antiseptic spray and read www.youRno1.org to know what brands to use and those you should NOT buy. Then order on the links found on the last page- if you want help using natural AFNOR quality non-synthetics in the future locate the link on the last page of same site to know how much and what to use for what issue -this is how I diagnosed you :) you can also find links to informational videos, discussions and much more to help you stay away from poisons and stay protected and fortified using only 100% of nature's own -you can reach me through those links as well :) hope this helps :)
    founddog 188 Replies
    • August 21, 2010
    • 01:28 PM
    • 0
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  • OK at first I thought you may have to cleanse your liver as you were describing symptoms of dermatitis and were canceling out many reasons as to what may be bringing it on- but when I read the part about the Chicken Pox Vaccine- I knew you are having an adverse reaction to that vaccine which is NOT uncommon- and you need to report it to the VAERs on line database.(this is so the govt can know and so other people who read it know.)You may be able to seek compensation for this issue- as they have information about that - and if you email me I know I have it listed somewhere on my FB group page= you can actually look there for it- "Say NO to Aspartame, Sucralose /Splenda, Gardasil and dangerous 'foods"Look under the VAERs or Gardasil discussions if you have trouble locating it. As far as a diagnoses-you have Shingles- Herpes Zoster -the adult form of chicken pox. It is a recurring infection through life and closely related to the Herpes simplex virus. If the immune system is taxed with severe emotional stress, illness, or lon term use of corticosteroids this otherwise dormant virus becomes active and starts to infect the pathways of the nerves. Buy Thieves antiseptic spray and read www.youRno1.org to know what brands to use and those you should NOT buy. Then order on the links found on the last page- if you want help using natural AFNOR quality non-synthetics in the future locate the link on the last page of same site to know how much and what to use for what issue (the book on the wisdom link)BTW- your is NOT an STD just closely related to the STD- so yours came from Chicken pox- when you were a child- and irritated when you got the vaccine- they should test people for Shingles ( and other things when they dole out these vaccines but they don't ) so it aggravated your condition. (Like when one takes the lousy HPV vaccine that is hurting so many people- if those people have HPV and MANY thousands do have it as carriers and do not display symptoms- well that brings on and exacerbates their pre-existing HPV in that case causing very serious illness/diseases!)Anyway- one reason why these "one-size-fits-all" types of "medications"/"preventions" can be a BAD idea! But I "P.S.ed" you about this - that you can find a video I made- (it is one that HPV suffers really needed to have on-line since that is such a private issue and I saw the need for it) find it in my video collection on YouTube in the Glarstout channel- Ask your kids if unsure how to do that :) hehehe they know so much about that site. You will know which one it is I only have a handful for now. That video is for HPVs and what to do, how to think about it, etc... and it can help you as well even though yours IS NOT AN STD. It is not communicable, contagious, or brought on by sexual contact. It is from the chicken pox virus. But the treatment may be the same as the symptoms are the same. (they recommend the same products! :) A wonderful product that is similar to the Thieve Antiseptic Spray is the Fresh Essence Mouthwash. Only one is a spray and the other is not. (formulation is the same) and both can also be used in the mouth to prevent oral hygiene issues. Watch also the "killer" video I made about Clove- Clove is one of the products in the Thieves formula. (it is good to know how this super oil can help you- ) I hope to finish the series soon. Learning is what will keep us healthy in this day and age as the medical community is quite confused- as this site testifies of that fact- "wrongdiagnoses" and see the hundreds if not thousands on it!
    founddog 188 Replies
    • August 21, 2010
    • 01:43 PM
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  • I, too have this rash and have had it for many years. It looks in appearance more like a scarlet fever rash than a chicken pox or shingles rash. It sometimes makes my head itch, and I think It starts there. But mostly manifests itself on my neck and shoulders and chest. It is quite bright red and ot to the touch, but usually does not itch. Sometimes it itches as it goes away.I have had chicken pox and measles as a child. I eat very healthy - refuse to touch any aspertame at all. Eat mostly fresh, but because of cost I do purchase frozen or canned veggies. Usually try to put up my own from my garden. I add nothing but water and a little salt.I had a very serious bout of cryptosporidium which caused me many lasting problems. i don't know if this is a result of that or not, but.....My doctor has told me it was impossible, that it was an allergic reaction to some medication I was taking. But I have found that taking or not taking medication really doesn't make a difference. The higher my fever, the worse the rash. It's the only connection I can find.
    Anonymous 42789 Replies Flag this Response
  • For those who are certain all care is being taken in eating and in their personal care choices and all toxins have been dispensed with but are still getting the rash when taxed by illness or stress this is why. A childhood bout with chicken pox may leave the virus dormant in sensory nerves. If the immune system is taxed by severe emotional stress, illness, or long-term use of cortico-steroids, the dormant viruses may become active and start to infect the pathway of the skin nerves. What you have is called shingles :|Herpes zoster infection occurring in adults, vs. chicken pox occurring in children. This virus is closely related to Herpes simplex virus. This virus is prone to hiding along nerves under the skin and may cause recurring infection through life. (to understand why I sent out such heavy instruction about reading labels before this post see two videos on YouTube under the channel name of glarstout, the video series is called Chlorine Sucralose. See videos 2 and 3 for the testimonies of the victims who ingested this poison. The welts, skin rashes and hives a percentage of the users developed were horrendous and by eliminating that product from their diet, it all stopped.)to alleviate the chicken pox Lavender essential oil (please NO GNC products, use YL if you want to have health, www.youRno1.org )Tea Tree essential oilsandalwood oil niaouli oil melissa oil clove oil (not to be placed directly on skin but first place a thin layer of veggie oil to those who have fair skin or light skinned AA)The desk reference, which can be purchased at the above URL, says to mix 20 drops of any one of the essential oils above to one tablespoon of calamine lotion or V6 Oil and lightly dab on spots or lesions. A supplement ImmuProOther topical treatments:Thieves antiseptic spray Ortho EaseLavaderm Cooling Mist Shower Mate with filter Lavender-Rosewood Bar SoapMelaleuca Geranium Bar Soapall can be found on www.youngliving.org/gil To alleviate shingles a short lived virus starts with fatigue, fever, chills, intestinal upset, sensitive skin prone to blisteringOne attack usually provides immunity for lifeHowever, many people, particularly the elderly pain can persist for months even years. (if outbreaks occur around the eye seek help from opthamologist immediately)Oils for shingles: Tea Tree oil oregano oil thyme oil peppermint oil or blended oil thieves oil australian blue oil exodus ll oil on spine drop 3-4 drops of oregano oil mountain savory oil thyme oil next apply 15-20 drops V6 oil or olive oil to the spine, massage briefly other oils cover skin with a dry toweland apply a warm pack for 15-20 min. (heating pad or hot water bottle) (careful warming, if it becomes too hot remove warm pack immediately, and add more V6 or olive oil to coolremove the warm pack (hot water bottle of heating pad) and towel then layer 4-8 drops each of tea tree oil, elemi oil and peppermint oil along the spineput the dry towel back over the skin and apply an ice pack for 30 min. dietary supplements Super Cal AD&E SulfurzymeStraight from the essential oils desk reference
    founddog 188 Replies Flag this Response
  • I just want to point out that this thread is trying to deal mainly with what appears to be an unknown condition, not Shingles or Hives or regular allergies or people chewing sugar-free gum. Most of the people posting seem to understand that this rash is NOT itchy (except for a short mild period after it has faded) and does NOT "cover us from head to toe". No skin peeling away in sheets. No painful bumps. Just a bright redness located mostly on your torso from neck to waist and sometimes on your thighs and almost always accompanied by flu-like/cold symptoms.And for those diet fetishists who are going on endlessly about aspartame and food additives, I'll point out that I've been eating vegan for two years (and cooking everything I eat myself) and this has not solved the problem. I've had this condition for 25 years and in all the years I've been searching, I've never found one person who has first described these symptoms then gone on to say, "And then I stopped eating X and I haven't gotten the rash ever since". So, unless you've actually had this condition for years, then completely cured yourself by changing your diet or behavior in a specific way, I'm not sure that your advice is going to be all that revolutionary. Let's try to stick to the topic and share what we do know and maybe someday someone with the right medical background will take a look at this condition and be able answer some of our questions.I'm going to re-post a description of the symptoms I've experienced and my history with this condition. If you read it and think, "Holy crap! I've got the exact same thing!", then please send me an email so we can commiserate and begin to get people who actually have the same condition in contact with each other with a shared goal of getting the attention of medical researchers who might be able to help us out. Brian
    Anonymous 42789 Replies Flag this Response
  • Brian,I have exactly what you have described to a tee. My rash occurs after any type of sickness with an onset of 2 days post signs and symtoms of illness. It covers my neck and chest, then, procedes down my arms. After two days, the rash is gone. At times, it does itch when healing, but nothing extensive. I can pinpoint when my rash first occurred, after an anaphylactic attack due to shellfish nearly 3 yrs ago. I thought I was the only one dealing with this. I've been to allergists, etc, but no answers. I am extrememly fit and healthy, but I fear it doesn't help toward my rash issue. If you find anything out, please keep me posted. The stares from patients can be quite awkward when they fear it is contagious. Thanks!KimI just want to point out that this thread is trying to deal mainly with what appears to be an unknown condition, not Shingles or Hives or regular allergies or people chewing sugar-free gum. Most of the people posting seem to understand that this rash is NOT itchy (except for a short mild period after it has faded) and does NOT "cover us from head to toe". No skin peeling away in sheets. No painful bumps. Just a bright redness located mostly on your torso from neck to waist and sometimes on your thighs and almost always accompanied by flu-like/cold symptoms.And for those diet fetishists who are going on endlessly about aspartame and food additives, I'll point out that I've been eating vegan for two years (and cooking everything I eat myself) and this has not solved the problem. I've had this condition for 25 years and in all the years I've been searching, I've never found one person who has first described these symptoms then gone on to say, "And then I stopped eating X and I haven't gotten the rash ever since". So, unless you've actually had this condition for years, then completely cured yourself by changing your diet or behavior in a specific way, I'm not sure that your advice is going to be all that revolutionary. Let's try to stick to the topic and share what we do know and maybe someday someone with the right medical background will take a look at this condition and be able answer some of our questions.I'm going to re-post a description of the symptoms I've experienced and my history with this condition. If you read it and think, "Holy ****! I've got the exact same thing!", then please send me an email so we can commiserate and begin to get people who actually have the same condition in contact with each other with a shared goal of getting the attention of medical researchers who might be able to help us out. Brian
    Anonymous 42789 Replies
    • October 16, 2012
    • 10:32 PM
    • 0
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  • I have this too, and have been getting it since my teens. My story is very much like the others posted here. I get the rash as I begin to get over a cold. It never lasts too long, and has proven unrelated to any drug or food.But I did happen to notice when it first started:The first time I had it was with my second outbreak of herpes simplex 1 (cold sores). This was at age 17. It actually sort of migrated down from the corner of my mouth and showed up on my arm and shoulder too. This was just redness, not sores.I do not get it anymore with cold sores. That only happened the first time. In years since (I am now 48) I get the rash every time I get sick.All the doctors have no idea what it is. Some nurses have seen it, and they say it's no big deal.So, my question to all is this: have you ever gotten cold sores? (A blister on your lip or the corner of your mouth).Maybe this is all just a Herpes 1 rash of some unknown type? Herpes simplex 1 is known for creeping around on your nerves and causing trouble-my dentist identified as causing swollen gums and toothache, and I know that it also causes shingles.
    Anonymous 42789 Replies
    • November 9, 2013
    • 06:43 AM
    • 0
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  • Yes I do get cold sores, from about the age of 25 but I did not get my first rash until my mid-thirties.... I do hope it is not related as shingles is a nasty disease and I would hate to think my "perplexing" rash is not in the same league..It never ceases to amaze me we are a group of people spread around the world as no Doctor has yet to come up with an explanation!:confused:
    JotaFe 6 Replies
    • November 14, 2013
    • 08:23 PM
    • 0
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  • Actually, I think the explanation for lack of research on this issue is very simple: the rash is harmless. At least in my case, it is purely cosmetic and doesn't even so much as itch.Yes I do get cold sores, from about the age of 25 but I did not get my first rash until my mid-thirties.... I do hope it is not related as shingles is a nasty disease and I would hate to think my "perplexing" rash is not in the same league..It never ceases to amaze me we are a group of people spread around the world as no Doctor has yet to come up with an explanation!:confused:
    Anonymous 42789 Replies
    • December 12, 2013
    • 01:46 AM
    • 0
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