Discussions By Condition: I cannot get a diagnosis.

Rash All Over Upper Body Whenever I Get Sick...

Posted In: I cannot get a diagnosis. 247 Replies
  • Posted By: Anonymous
  • September 20, 2007
  • 01:29 AM

Hi! Since I was in my teens every time I've gotten sick with any type of illness (generally common colds), I've gotten a bright, red rash all over my upper body and sometimes anywhere else warm (insides of elbows, groin, backs of knees). Initially, I thought it was probably a reaction to some medicine I was taking and dismissed it. At one point during college though, I got so fed up with this hideous rash that I decided not to take any medicine and live with the cold/flu symptoms. When the rash occurred without any medication, I went to a doctor for it. He said that in 26 years of medicine he had never seen anything like it and basically dismissed me as lying to him.

Since it does not itch (it does get stiff and puffy) and is mainly cosmetically irritating, I haven't worried too much about it. Just a few days ago, I got food poisoning, and the rash came along. I can't find any information on this anywhere, and I can't seem to find anyone else who shares this problem. Any ideas on why I get this rash every single time I get sick? It generally is at its worst when I am getting better.

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  • I have this same stupid affliction - it first happened when I was 19. Anytime I have something cold-like (whether a mild cough & congestion, the flu, or even pneumonia twice), this non-itchy rash appears before most of the symptoms. Usually limited to face and neck but sometimes goes a bit further down. It starts out splotchy and then eventually merges. From a distance, towards the end of it, I just appear to have sunburn.It never lasts more than 36 hours so I typically don't see a doctor until after it is gone. Explaining it has gotten me nowhere, showing pictures has only resulted in stupid advice (I don't become allergic to my face lotion for 36 hours every 3-4 months). The one time recently I had it going on while actually in a hospital - I offered $10 to anyone who could figure it out. Three doctors and four nurses later - no luck.Allergies to antibodies is the best explanation I've ever heard.The attached picture is a few hours after onset - showing forehead and neck.
    Corsulian 2 Replies
    • December 9, 2008
    • 01:29 PM
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  • about 6 months ago I had to take some antibiotics (azithromycin) for bronchitis and had a bad allergic reaction to it causing a rash and much worse symptoms. I know that the medicine was the cause back then, but since then i have had 2 or 3 colds and they always include a rash with no antibiotics in my system. In fact, I took some benadryl last night for my runny nose (I thought it was just allergies) and woke up with a fever and a rash that has been spreading all day. You'd think benadryl would have prevented any rash!I feel like I should blame it on the antibiotics since I have been having these problems only since I took them. And every time I get sick the rash seems to spread further than the time before... right now it is covering the entire front of my torso, my shoulders, forearms, and neck. And like most people on here, it doesn't itch at all, it just looks gross.I read that a couple people had doctors who said the patients were lying about not taking meds to cause it. Those quacks need to go back to med school.
    Anonymous 42789 Replies
    • September 28, 2009
    • 07:28 PM
    • 0
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  • I've had this for a few years now. It comes on when I have a cold, have a fever, or when I am dealing with a sinus infection. Never from sweating or from sauna or from working out. I think that is a different ailment called cholinergic urticaria. As far as the anitibiotic idea, I get this rash before I take any. My health history includes chicken pox which has brought on other ailments like shingles and bell's palsey as chicken pox never leaves your system once it is in. I'm curious of how many of you have had the chicken pox and is this related? I used to get very dried out skin on my hands which sometimes led to cracking and bleeding. I went to a derm and he told me that some people carry stress in their skin. He gave me a shot and my skin cleared up. I had that symptom off and on for years, but in the past few years that I have been dealing with this skin rash I have not. I also used to have a recurring battle with mouth ulcers and since this skin rash has emerged I have not. I'm wondering if any of this is related. I am allergic to penicillin and wonder if what ever is in my body that rejects penecillin is causing this as well. I had the penicillin allergy before I had chicken pox. So my rash isn't like the photo's I've seen that are shown on cholinergic urticaria sites. I don't really think they are the same. Pictures I've seen of Cholinergic urticaria look like little bumps. Mine can be quite anywhere from small in size to large, there is no little dot in the middle or anything like that, and they are flat. Most are circles, the one on my thumb is oval but I think that is because of the curve of my thumb. All of them are a darker color than my normal colored skin. I have about four smaller ones on my face. One by my right eye, one above my lips on my right side, one on my chin left side, a few medium sized ones on my neck, several larger ones on both the front and back of my torso. I get on medium sized rash on my index finger on my left hand and also one my thumb on my right hand. I also have it near the end of my unmentionable, I am male. I haven't noticed anything on my legs or feet. These rashes are in the exact same places every single time. It's bizzare. Recently someone at work has been battling a bad cough. I sit next to him. He has been ill for a couple of weeks and it upset me that he wasn't going to the doctor to get this taken care of. So just a few days ago I woke up with the same cough. I said to the guy yesterday that it's just a matter of time before my rash shows up because it always does when I have a cold or am sick in any way. Sure enough I woke up today with the lovely reminders. All in the same places as the times before. You might think I brought it on because I thought of it, but it's just because it happens every time I get ill in any way. Just something to expect and accept. I'm a little surprised that I haven't been able to find anything out about this rash online. I haven't seen a photo that resembles mine on any of the rash sites, nor do I find a doctor that speaks of this. This site has been the first that I have found and was relieved that I'm not crazy or alone. I too feel dehydrated, I also drink coffee with splenda and other artificial sweetners so I'm going to stay away from those for a while and see if that makes a difference the next time I get a cold. I'm willing to try anything at this point. I would say that it might be related to antibiotics, but as I've had them show up before I take any, so it makes me feel like ruling that out. But each person has a different body and maybe a different trigger. We all seem to get this from a cold, infection, or when we have a fever. There is some connection there for sure. I would love it if people would post their health history that might be related to this as it might help us find a common thread. As I said earlier, mine are:Chicken PoxBell's PalseyShinglespossible mono as a teenager but never diagnosedallergies to pennicillin and aspirinused to have mouth ulcers, no longerused to have cracked dry skin on my thumbs, no longerMy triggers are:coldfeverinfection usually sinusp.s. I always seem to have an upset stomach during part of the any of these times. Maybe this is stomach related. The liver? Who knows? None of us or we wouldn't be here right? : )
    Anonymous 42789 Replies
    • November 20, 2009
    • 07:59 PM
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  • I've had this for a few years now. It comes on when I have a cold, have a fever, or when I am dealing with a sinus infection. Never from sweating or from sauna or from working out. I think that is a different ailment called cholinergic urticaria. As far as the anitibiotic idea, I get this rash before I take any. My health history includes chicken pox which has brought on other ailments like shingles and bell's palsey as chicken pox never leaves your system once it is in. I'm curious of how many of you have had the chicken pox and is this related? I used to get very dried out skin on my hands which sometimes led to cracking and bleeding. I went to a derm and he told me that some people carry stress in their skin. He gave me a shot and my skin cleared up. I had that symptom off and on for years, but in the past few years that I have been dealing with this skin rash I have not. I also used to have a recurring battle with mouth ulcers and since this skin rash has emerged I have not. I'm wondering if any of this is related. I am allergic to penicillin and wonder if what ever is in my body that rejects penecillin is causing this as well. I had the penicillin allergy before I had chicken pox. So my rash isn't like the photo's I've seen that are shown on cholinergic urticaria sites. I don't really think they are the same. Pictures I've seen of Cholinergic urticaria look like little bumps. Mine can be quite anywhere from small in size to large, there is no little dot in the middle or anything like that, and they are flat. Most are circles, the one on my thumb is oval but I think that is because of the curve of my thumb. All of them are a darker color than my normal colored skin. I have about four smaller ones on my face. One by my right eye, one above my lips on my right side, one on my chin left side, a few medium sized ones on my neck, several larger ones on both the front and back of my torso. I get on medium sized rash on my index finger on my left hand and also one my thumb on my right hand. I also have it near the end of my unmentionable, I am male. I haven't noticed anything on my legs or feet. These rashes are in the exact same places every single time. It's bizzare. Recently someone at work has been battling a bad cough. I sit next to him. He has been ill for a couple of weeks and it upset me that he wasn't going to the doctor to get this taken care of. So just a few days ago I woke up with the same cough. I said to the guy yesterday that it's just a matter of time before my rash shows up because it always does when I have a cold or am sick in any way. Sure enough I woke up today with the lovely reminders. All in the same places as the times before. You might think I brought it on because I thought of it, but it's just because it happens every time I get ill in any way. Just something to expect and accept. I'm a little surprised that I haven't been able to find anything out about this rash online. I haven't seen a photo that resembles mine on any of the rash sites, nor do I find a doctor that speaks of this. This site has been the first that I have found and was relieved that I'm not crazy or alone. I too feel dehydrated, I also drink coffee with splenda and other artificial sweetners so I'm going to stay away from those for a while and see if that makes a difference the next time I get a cold. I'm willing to try anything at this point. I would say that it might be related to antibiotics, but as I've had them show up before I take any, so it makes me feel like ruling that out. But each person has a different body and maybe a different trigger. We all seem to get this from a cold, infection, or when we have a fever. There is some connection there for sure. I would love it if people would post their health history that might be related to this as it might help us find a common thread. As I said earlier, mine are:Chicken PoxBell's PalseyShinglespossible mono as a teenager but never diagnosedallergies to pennicillin and aspirinused to have mouth ulcers, no longerused to have cracked dry skin on my thumbs, no longerMy triggers are:coldfeverinfection usually sinusp.s. I always seem to have an upset stomach during part of the any of these times. Maybe this is stomach related. The liver? Who knows? None of us or we wouldn't be here right? : )Sounds to me like everything I have experienced. It ended up being celiac disease. Now if I even get a small amount of gluten in my body, I get the rash and mouth ulcers immediately. The sinus infection and sickness are soon to follow. Good Luck!
    Anonymous 42789 Replies Flag this Response
  • I've had this for a few years now. It comes on when I have a cold, have a fever, or when I am dealing with a sinus infection. Never from sweating or from sauna or from working out. I think that is a different ailment called cholinergic urticaria. As far as the anitibiotic idea, I get this rash before I take any. My health history includes chicken pox which has brought on other ailments like shingles and bell's palsey as chicken pox never leaves your system once it is in. I'm curious of how many of you have had the chicken pox and is this related? I used to get very dried out skin on my hands which sometimes led to cracking and bleeding. I went to a derm and he told me that some people carry stress in their skin. He gave me a shot and my skin cleared up. I had that symptom off and on for years, but in the past few years that I have been dealing with this skin rash I have not. I also used to have a recurring battle with mouth ulcers and since this skin rash has emerged I have not. I'm wondering if any of this is related. I am allergic to penicillin and wonder if what ever is in my body that rejects penecillin is causing this as well. I had the penicillin allergy before I had chicken pox. So my rash isn't like the photo's I've seen that are shown on cholinergic urticaria sites. I don't really think they are the same. Pictures I've seen of Cholinergic urticaria look like little bumps. Mine can be quite anywhere from small in size to large, there is no little dot in the middle or anything like that, and they are flat. Most are circles, the one on my thumb is oval but I think that is because of the curve of my thumb. All of them are a darker color than my normal colored skin. I have about four smaller ones on my face. One by my right eye, one above my lips on my right side, one on my chin left side, a few medium sized ones on my neck, several larger ones on both the front and back of my torso. I get on medium sized rash on my index finger on my left hand and also one my thumb on my right hand. I also have it near the end of my unmentionable, I am male. I haven't noticed anything on my legs or feet. These rashes are in the exact same places every single time. It's bizzare. Recently someone at work has been battling a bad cough. I sit next to him. He has been ill for a couple of weeks and it upset me that he wasn't going to the doctor to get this taken care of. So just a few days ago I woke up with the same cough. I said to the guy yesterday that it's just a matter of time before my rash shows up because it always does when I have a cold or am sick in any way. Sure enough I woke up today with the lovely reminders. All in the same places as the times before. You might think I brought it on because I thought of it, but it's just because it happens every time I get ill in any way. Just something to expect and accept. I'm a little surprised that I haven't been able to find anything out about this rash online. I haven't seen a photo that resembles mine on any of the rash sites, nor do I find a doctor that speaks of this. This site has been the first that I have found and was relieved that I'm not crazy or alone. I too feel dehydrated, I also drink coffee with splenda and other artificial sweetners so I'm going to stay away from those for a while and see if that makes a difference the next time I get a cold. I'm willing to try anything at this point. I would say that it might be related to antibiotics, but as I've had them show up before I take any, so it makes me feel like ruling that out. But each person has a different body and maybe a different trigger. We all seem to get this from a cold, infection, or when we have a fever. There is some connection there for sure. I would love it if people would post their health history that might be related to this as it might help us find a common thread. As I said earlier, mine are: Chicken PoxBell's PalseyShinglespossible mono as a teenager but never diagnosedallergies to pennicillin and aspirinused to have mouth ulcers, no longerused to have cracked dry skin on my thumbs, no longer My triggers are:coldfeverinfection usually sinus p.s. I always seem to have an upset stomach during part of the any of these times. Maybe this is stomach related. The liver? Who knows? None of us or we wouldn't be here right? : ) I am soooo thankful I found this thread also!!! I too have been having this rash every time I get a cold for about 15 years, whether I have fever or not!! The reash itself does feel a little hot when I get it, but it doesn't really itch or anything. I thought I was allergic to any and all types of cold medications, including those zinc lozenges, because it happened every time I got a cold. I went to many allergists who tested and tested and found that I was not allergic to anything at all!! Then earlier today I read one of the posts that mentioned autoimmune disorders and psoriasis and BINGO ! that must be what it is. About 7 years ago I was diagnosed with mild psoriasis (which is an autoimmune disorder) on my scalp and in my ears. I can control it with a cream and the psoriasis doesn't occur very often, but that would make the case for another autoimmune response issue. I am suffereing from another cold for the last few days and there was the rash again, so I decided to Google it and found you guys! Together maybe we can get some more answers and found out how to make it go away. I am going to register so we can all stay in touch and find some answers. I am just getting over a short cold right now and the rash is almost gone, but the inside of my ears are itching, which is where I have psoriasis. This is why I think it is related to psoriasis in some way. Maybe we can go down that path a little. If anyone who has psoriasis also gets these rashes, please speak up!!! "Fairview" I think you have a great idea about all of us listing our medical histories like you did and let's find some common threads. Then we can tell some doctors about what we found: My diseases: Chicken pox when I was a childMumps when I was a childMeasles when I was a childGenital herpes, but not for the last 10 years (I do not get cold sores)Psoriasis (mild)Non-allergic rhinitis Triggers: Colds and cold-like maladies, like the flu It also seemed to happen when I ate certain foods like too much avocado or even a little bit of mango Thanks for being weird like me! Linda
    Linda in San Diego 1 Replies Flag this Response
  • This is so interesting. I have Bell's Palsy and shingles, and now I have a rash the size of my hand on my upper, inner thigh. It itches to the point of scratching til it bleeds. It sounds like psoriasis but I have not gone to the doc for this yet (lost insurance) until I absolutly have to. I know the bell's and shingles are related, but is the rash? I take meds for severe depression, was told that's related, and all are on the left side of my body which I was told is usually the case - to have these things on one side or the other. The rash started out looking almost like ringworm, very small, and has taken over half my upper leg. I have severe allergies as well. Just wondering if rash is related. Lots of stress in my life right now, like everyone, I realize this is the major trigger for these types of things. thanks!
    Anonymous 42789 Replies Flag this Response
  • about 6 months ago I had to take some antibiotics (azithromycin) for bronchitis and had a bad allergic reaction to it causing a rash and much worse symptoms. I know that the medicine was the cause back then, but since then i have had 2 or 3 colds and they always include a rash with no antibiotics in my system. In fact, I took some benadryl last night for my runny nose (I thought it was just allergies) and woke up with a fever and a rash that has been spreading all day. You'd think benadryl would have prevented any rash!I feel like I should blame it on the antibiotics since I have been having these problems only since I took them. And every time I get sick the rash seems to spread further than the time before... right now it is covering the entire front of my torso, my shoulders, forearms, and neck. And like most people on here, it doesn't itch at all, it just looks gross.I read that a couple people had doctors who said the patients were lying about not taking meds to cause it. Those quacks need to go back to med school.I too have had these problems. I get a rash whenever I get a fever or sick and also if I take any antibiotic. Small rash not allergic reaction rash. I was recently told (after thinking I was nuts) because I have elevated tires to epsteinn barr, coxackie and parvo viruses that these things cause you to have rashes when sick and also when exposed to antibiotics..... Has anyone been told this ?
    Anonymous 42789 Replies Flag this Response
  • Count me as another with this condition. Every time I have a cold, fever, or even food poisoning (basically any immune reaction) I get a rash on my arms and chest. The rash never itches though it can sometimes make my skin a bit sensitive. I generally don't know I have it until I look down at my arms. I started getting this in my mid-20s and I am now in my mid-30s. I am just glad to know that nobody, so far, has indicated that it gets worse with age. Just to add to the list of speculative causes: I am not aware of any allergies to medicine or food, I had chicken pox when I was very young, I enjoy Diet Coke, and I took Accutane when I was 19. I have never been diagnosed with mono or scarlett fever.
    Anonymous 42789 Replies Flag this Response
  • Count me as another with this condition. Every time I have a cold, fever, or even food poisoning (basically any immune reaction) I get a rash on my arms and chest. The rash never itches though it can sometimes make my skin a bit sensitive. I generally don't know I have it until I look down at my arms. I started getting this in my mid-20s and I am now in my mid-30s. I am just glad to know that nobody, so far, has indicated that it gets worse with age. Just to add to the list of speculative causes: I am not aware of any allergies to medicine or food, I had chicken pox when I was very young, I enjoy Diet Coke, and I took Accutane when I was 19. I have never been diagnosed with mono or scarlett fever.I bet if you lay off the diet coke and the other foods with aspartame in it you will feel better within a week or two. But it is addictive so it might be something you cannot do! (and no foods with sucralose either) you will feel like a man of twenty!
    founddog 188 Replies Flag this Response
  • OMG! someone else with this strange condition! I get this rash EVERYTIME I get sick. Usually with a cold/viral infection. I have seen dermatologists, immunologists & allergists. I have had every type of bloodtest you can think of with no explanation. I do have horrible allergies & take claritin daily. I had mono when I was 20 & it seems like that killed my immune system. I was NEVER sick before the mono, now I get sick constantly! My husband just had a cold for 3 days & is now better, I got the same cold, have been sick for a week & the rash came out yesterday. What scares me is when the rash started it would last a few hours then 24 hours now it is sticking around for days. It also has now been on my face which looks awful. I was told it was a viral exanthem. I did get it a few years ago after taking cefalexin also. I am getting so frustrated b/c I feel as if I am always sick & no one understands. I think if it were not for the very obvious rash all over people would think i was being a hypochondriac. It is just SO frustrating! I never had chicken pox & when I am feeling well I work out 5 days a week & eat healthy most of the time.
    Anonymous 42789 Replies
    • January 3, 2011
    • 03:26 PM
    • 0
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  • I'm so relieved to see I'm not alone. When I was 19 or so, I started getting these rashes in the same places symmetrically every time I got a cold or anything similar. My doctor couldn't find anything wrong. He did extensive blood work and everything came back normal. Over the next few years after, the lessened in severity each time I got sick until I no longer got them. I also noticed that during those same years I also had seasonal allergies, which I had never had before. It was so wierd that I periodically check online to see if I can find any information on the subject. I'm so glad to finally find a place where others have gone through it. I'm totally bookmarking this to check for an answer, and will post if I find one myself!
    Anonymous 42789 Replies
    • January 8, 2011
    • 01:02 AM
    • 0
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  • I just want to point out that this thread is trying to deal mainly with what appears to be an unknown condition, not Shingles or Hives or regular allergies or people chewing sugar-free gum. Most of the people posting seem to understand that this rash is NOT itchy (except for a short mild period after it has faded) and does NOT "cover us from head to toe". No skin peeling away in sheets. No painful bumps. Just a bright redness located mostly on your torso from neck to waist and sometimes on your thighs and almost always accompanied by flu-like/cold symptoms.And for those diet fetishists who are going on endlessly about aspartame and food additives, I'll point out that I've been eating vegan for two years (and cooking everything I eat myself) and this has not solved the problem. I've had this condition for 25 years and in all the years I've been searching, I've never found one person who has first described these symptoms then gone on to say, "And then I stopped eating X and I haven't gotten the rash ever since". So, unless you've actually had this condition for years, then completely cured yourself by changing your diet or behavior in a specific way, I'm not sure that your advice is going to be all that revolutionary. Let's try to stick to the topic and share what we do know and maybe someday someone with the right medical background will take a look at this condition and be able answer some of our questions.I'm going to re-post a description of the symptoms I've experienced and my history with this condition. If you read it and think, "Holy crap! I've got the exact same thing!", then please send me an email so we can commiserate and begin to get people who actually have the same condition in contact with each other with a shared goal of getting the attention of medical researchers who might be able to help us out. Brian
    Anonymous 42789 Replies Flag this Response
  • Another rasher, here. I have been getting it for 15 or so years and it has always indicated that I have a cold/fever/sinus infection/flu. Its always in the center of my chest, spreads around my breasts and to my stomach. It never has gone anywhere else and does not itch. I just looked it up, because this is the first time i've gotten it before i'm actually sick, but my allergies have been bothering me and family members have had a cold. I'm guessing i'm going to get it. It usually goes away when i start feeling better and/or break the fever. Mine starts out splotchy and then blends together. I just always figured it was my body's outside sign that i was having an immune response. I have had chicken pox as a child, but am fortunately a very healthy individual.
    Anonymous 42789 Replies Flag this Response
  • Add me to the list. It's exactly as you all described. I can't fake being sick; everyone I know just waits for the rash. I'm 63 now and I had it for decades. I have no allergies. The rash shows up for all illnesses (serious, mild, bacterial, viral, etc) and it doesn't matter whether or not I take any medicine. I have always been careful about not eating anything artificial. I did have scarlet fever as a child but I can't tell from the thread whether it started for everyone after a strep infection. I don't usually tell health professionals I see because none of them ever heard of it. It's amazing thee are so many people who responded because it's not easy to trip over this site.
    Anonymous 42789 Replies Flag this Response
  • Most of the replies on this post are years old, but I too have this issue every time I'm under the weather. It started when I was 11 and begins only wrists as well. I've been told it's a viral rash, eczema, psoriasis, or even scarlet fever. I'm convinced it's immune related as it also reared up after the birth of my daughter... On my hand and wrists and then straight down my abdomen and curved underneath where the skin had stretched. I've also known it to flare up when I quit taking my birth control. Mine itches horribly and has only appeared all over my body when sick with pneumonia. I too have thought it's perhaps a drug related rash and did not take medicine when with a cold. A lot of you said this did not make a difference. For me since I was not taking medicine I loaded up on vitamins and did notice a difference. I've kind of concluded with that, that it's immune and still has nothing to do with medicine. Since eczema is tied into hay fever and like allergies I also was curious if there is a tie to the lungs and the rash... mine being the worst with pneumonia and flaring up toward the end of colds when I'm coughing the most...although that still wouldn't explain my hormonal occurrences. Anyone had any new revelations?
    Anonymous 42789 Replies
    • August 19, 2011
    • 01:06 PM
    • 0
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  • HiI live in the UK and develop the rash whenever I get a cold or Flu or stomach bug. The rash is not itchy and starts as individual dots on my stomach area around to my back. The 2nd day they have all joined and looks like sunburn, the rash then spreads to my arms legs and occassionally my face if i'm really unwell. The rash usually clears after 3 days. Once i am on the mend and the rash has gone my hands, palms and fingers then peel constantly for a couple of weeks. I have now tried taking an antihistamine when the rash develops to see if this could help with my immune response.I was told 4 years I had strep throat, so had my tonsils out, as apparantly it lies dormant in the tonsils, I was hoping this would be the answer as I had been getting the rash for 10 years previously, but no I still get the rash. Doctors don't know really what the cause is and think they are quite baffled by the rash. It would be great to know what this is and if it could ever cause a real problem in later life. I am normally healthy, only pet allergies, eat very healthily and also take supplements to regularly boost my immune system.I thought I was alone with this condition and am truely amazed how many other people suffer.PaulaJS
    PaulaJS 1 Replies Flag this Response
  • hello to everyone i just wanted to join in on the conversation as i see its been going on for a while i have had this mysterious rash for a good bit of my life i am 31 yrs old and i have been getting this rash since i was 2 and in all my years i have seen all most every doctor imaginable from specialist to specialist now a little for ground on me before hand . when i was baby i had a fever and was very sick i had what was Roseola and what that is; is a viral infection that commonly affects infants and young children. It involves a pinkish-red skin rash and high fever over a course of a week or longer .Now growing up i was a fairly normal child and did pretty well in the wellness department except for these rashes which seemed to only creep up around when i was about to get sick or if a bad case of allergies were coming i suffer with really bad allergies more the seasonal /outdoor /indoor kind . i was placed on Zyrtec 10 mg to control what the drs thought was hives .. but hey it kept the little pimple rash at bay so i thought until i get really sick i mean like cold/ flu pretty much anything viral im doomed for rash city . i have had the chicken pox 4 times yes you have read that right lol i have seen a immune specialist and found out that i have a compromised immune system which does not build enough antibodies that my body needs to fight off infections so found out that i have a disease called CVID which stands for common variable immune deficiency mainly because when i had that high fever as a baby it corrupted my immune system yay me lol .so back to the story because of this lovely disease my immune system is so out of wack that it causes all kinds of strange and interesting things to happen like i have fibromyalgia and lupus which are also know as auto immune diseases basically they attack your body against itself so that's another one for the immune system . so all in all my immune system has gone down the gutter i wanted to share this with you guys because i was reading a lot of these posts and i can honestly say that it is related to the immune system now that's from my own personal experience of course everyone should seek out medical opinions .. Thank you for your time i hope this helps someone . i have also included pictures of my rash to show what mine looks like mine are very spacey and pimple like i get them on my chest neck and upper arms like shoulder they never go lower than my belly button or even the upper part of my back they stay higher up i have never gotten them on my face just on my neckline . they mostly show up in the same spots all the time i don't pop them because they will leave scars i learned my lesson once oh and i have had them cultured they came back non viral . so i dunno drs just told me it was a reaction to my immune system . SO even after all these drs i still don't have a clear 100% answer on what this exactly is or even if it has a actual medical name all i know is that there are a lot of ppl out there that suffer from it and we are not alone good luck to all on finding out what this mystery diagnosis is ????
    bayou_hellokitty 1 Replies
    • September 21, 2012
    • 05:40 AM
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  • Brian,I have exactly what you have described to a tee. My rash occurs after any type of sickness with an onset of 2 days post signs and symtoms of illness. It covers my neck and chest, then, procedes down my arms. After two days, the rash is gone. At times, it does itch when healing, but nothing extensive. I can pinpoint when my rash first occurred, after an anaphylactic attack due to shellfish nearly 3 yrs ago. I thought I was the only one dealing with this. I've been to allergists, etc, but no answers. I am extrememly fit and healthy, but I fear it doesn't help toward my rash issue. If you find anything out, please keep me posted. The stares from patients can be quite awkward when they fear it is contagious. Thanks!KimI just want to point out that this thread is trying to deal mainly with what appears to be an unknown condition, not Shingles or Hives or regular allergies or people chewing sugar-free gum. Most of the people posting seem to understand that this rash is NOT itchy (except for a short mild period after it has faded) and does NOT "cover us from head to toe". No skin peeling away in sheets. No painful bumps. Just a bright redness located mostly on your torso from neck to waist and sometimes on your thighs and almost always accompanied by flu-like/cold symptoms.And for those diet fetishists who are going on endlessly about aspartame and food additives, I'll point out that I've been eating vegan for two years (and cooking everything I eat myself) and this has not solved the problem. I've had this condition for 25 years and in all the years I've been searching, I've never found one person who has first described these symptoms then gone on to say, "And then I stopped eating X and I haven't gotten the rash ever since". So, unless you've actually had this condition for years, then completely cured yourself by changing your diet or behavior in a specific way, I'm not sure that your advice is going to be all that revolutionary. Let's try to stick to the topic and share what we do know and maybe someday someone with the right medical background will take a look at this condition and be able answer some of our questions.I'm going to re-post a description of the symptoms I've experienced and my history with this condition. If you read it and think, "Holy ****! I've got the exact same thing!", then please send me an email so we can commiserate and begin to get people who actually have the same condition in contact with each other with a shared goal of getting the attention of medical researchers who might be able to help us out. Brian
    Anonymous 42789 Replies
    • October 16, 2012
    • 10:32 PM
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  • Add me to the list. It's exactly as you all described. I can't fake being sick; everyone I know just waits for the rash. I'm 63 now and I had it for decades. I have no allergies. The rash shows up for all illnesses (serious, mild, bacterial, viral, etc) and it doesn't matter whether or not I take any medicine. I have always been careful about not eating anything artificial. I did have scarlet fever as a child but I can't tell from the thread whether it started for everyone after a strep infection. I don't usually tell health professionals I see because none of them ever heard of it. It's amazing thee are so many people who responded because it's not easy to trip over this site. Hi, I get this rash also every time I am ill, usually after I am ill, as the illness id s leaving my body. Like you I get it for all illnesses, It is not a reaction to any foods or medications as I rarely take medications. I have it at the moment, it is very very hot red solid raised rash on chest, and flat splotchy across my back and on torso, It is around my eyes and up my neck as a red smaller splotchy rash and swollen around eyes. I have i now as yesterday I had a case of the 'runs' an upset tummy, no vomiting, just the runs, and the rash started as I was feeling better last night, and today it is really bad and I could not go to work because I look awful. Like you I no longer worry about it, i know it will last for a couple of days and then go, until I am under the weather next. It has definitely got worse over the last few years, Ii am 57 and have had this for years, it used to be more splotchy, but over last years it gets very angry and the splotches meld together to form a raised and very hot area that does burn and is a bit itchy, it never used to be on my face, but now I get it around my eyes and up my neck.but as I said i know it will go down again.It is annoying that we all have it and yet doctors cannot offer an explanation. I have told doctors about it and explained that it seems to be my body’s way of getting rid of any illness or reacting to anti body’s and they laugh at me and say i have been treading too many internet sights and self diagnosing, and that my rash is clearly an allergic reaction to food or medication. I can tell you, it is not. Any how I just thought I would let you know that I also get it even if IO have had a mild illness and have not taken any meds. I have also been kept in hospital after general anaesthetic as I developed the rash 4 days later and they said i must have been allergic to something they gave during op, but I said it was just my usual rash and it would go after a few days. they pumped me full of anti histamines and steroids, nothing worked and as I predicted after 4 days it gradually went and they let me home. The worst thing about it, especially over the last few years as it has become worse and shows on my face and neck, that I have to take time off work, because it looks so bad, like I have something contagious. I would like to be taken more seriously by the doctors and not written off as a silly women who knows nothing. I know it is not a reaction to meds and food, as I only get it when I have been ill. I don’t know if this is a uk sight or US site, live in England. But wherever we live, it seems the doctors are not listening to any of us! Everyone who has it, has my sympathies. If anyone gets a proper diagnosis I would be interested to hear. thanks Shinyshel
    shinyshel 1 Replies Flag this Response
  • I have the same rash. I started getting it after the birth of my daughter 22 years ago. I am a 48 year old female. Usually it starts out on my chest then spreads to my arms, neck and, unfortunately, my face. Usually it shows up after I've been sick for a while but not always.
    The rash is usually hot to the touch. It starts out splotchy then joins together and looks like sunburn at the end. If I am really ill it can get really, really red and also affect my hands. A few times, after it affected my hands, the skin will peel off, mostly on my finger, after the rash is gone. Usually, it does not affect my hands. When I get the rash it does tend to make me tired, but usually getting the rash means I am on the mend.
    I have been to doctors and the only thing they have ever found is elevated Rheumatiod levels. I do have a lot of allergies but it is NOT hives. Benedryl and such has no affect on it.
    Sometimes I get swollen eyelids with it too.
    The worse part is that it appears on my face.
    Anonymous 1 Replies
    • December 26, 2015
    • 02:55 PM
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