Discussions By Condition: I cannot get a diagnosis.

rare skin disorders/palmoplantar pustulosis

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: fraser
  • November 7, 2006
  • 04:23 AM

I have had palmoplantar pustulosis for 16 years now.I have been treated with various medications,only prednisone has helped.But now Iam paying for it with health problems. Soritane is now ,I am told to take by my new Doctor of four years.The problem is going from a anti ammune drug to soritain is night and day.I was told by other specialists I may never completly get off the prednisone,due to the fact the adrenal gland may not produce enough hormone.My doctor said take soritane,or find another doctor.I need some imput on this.

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  • I have had palmoplantar pustulosis for 16 years now.I have been treated with various medications,only prednisone has helped.But now Iam paying for it with health problems. Soritane is now ,I am told to take by my new Doctor of four years.The problem is going from a anti ammune drug to soritain is night and day.I was told by other specialists I may never completly get off the prednisone,due to the fact the adrenal gland may not produce enough hormone.My doctor said take soritane,or find another doctor.I need some imput on this.Hey, I had (as in no longer have!!!) palmoplantar pustulosis for at least 10 years (that's what the doctors told me). It was ****. My fingers were pretty much falling apart. I tried everything, doctors put me on countless medications, just about every anti fungal treatment on the market. They all advised some sort of moisturiser to ease the pain of the dryness (after the blisters popped and all the skin cracked off)It's all gone now :)What I found was my blisters were a reaction to petroleum products. Which is just about everything these days. Hand soaps, moisturisers, sorbelene, shaving cream, lubricant and vaseline were all in fact causing the problem. I worked it out ofter 10 years (and having developed a serious phobia about putting things on my almost destroyed hands)I read all the time PPP sufferers talking about putting things like vaseline on to relieve the pain. It soothes it temporarily, but for some of us, it's actually causing the problem.These days, if by chance I get something on my hands that contains petroleum then the blisters come back a few days later every single time. Even dishwashing liquid can do it.So now none of my household products contain it and I've been PPP (palmoplantar pustulosis) free for nearly 2 years. It's awesome!Give it a try, it may take a little while to heal up. I recently went on a beach trip and had to use sunscreen everyday. My hands got really bad from it. Took about 3 weeks of no petroleum to fully heal up again. So it takes time! My palmoplantar pustulosis cure was about not removing the cause, not about finding a cure.
    starman 1 Replies
    • November 19, 2012
    • 10:50 AM
    • 0
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