Discussions By Condition: I cannot get a diagnosis.

Rapid degeneration of facial skin causing immense discomfort; desperate for relief.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • October 5, 2010
  • 05:45 PM

Last June the onset of what I'm treating as atypical trigeminal neuralgia was very soon accompanied by the rapid and thorough breakdown of my facial skin, within mere days leaving it doughy, infirm and sensitive. The once crisp eyelids, now completely mushy, no longer lie properly on the eyeballs, which causes plenty of discomfort. Occasional creases form that contribute an additional measure of discomfort. On top of that, the upper eyelids constantly rub uncomfortably against the sagging brow.

The texture is no longer the same. The insides of my cheeks became completely smooth. There are newly created ridges in the corners of my mouth. My lips are always uncomfortable and they constantly stick together due to the drastic change in surface texture.

The skin has become very sensitive to small stimuli. It now reddens and irritates easily. In a word it has been completely and thoroughly destroyed.

I was crushed when the one dermatologist I went to saw absolutely nothing and I've been terrified to go through that again. I've always assumed the neuralgia and rapid skin degeneration to be related, but in my endless scouring of the internet I've yet to come anywhere close to an explanation for the latter.

This is only one of about ten distinct physical ailments that have arisen over the past two years. I'm tired and desperate and completely beaten down by life. My mother has been sickeningly negligent and unsupportive. I know I can't be the only person this condition has ever happened to, but my inability to find a similar case has rendered me completely hopeless and alone. Any help you could offer would be immensely appreciated.


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