Discussions By Condition: I cannot get a diagnosis.

Randomly Paralyzed Body Parts(about once a week)

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: freefall41
  • February 4, 2008
  • 11:16 AM

Let me begin by saying that I have been to multiple doctors and hostpitals and they obviously could not find what was wrong with me.

About 3 years ago, I had multiple seizures. Before I had any seizures that I know of, the room would start to spin and I had a taste in my mouth that tasted like blood or a penny/copper and I couldn't remember what had just happened. I would also stop thinking.

The first time that I realized I had a seizure, I was at my buddy's house and fell onconcious randomly and I was on the ground shaking uncontrollably, according to my friend. Everything just went black.

Ever since then I have had tremors. A few days after the seizure I began to go paralyzed. At the start, it would just be really short. For about 30 seconds, I couldn't feel anything in my entire body, or move anything. Then, sometimes, a whole leg would go paralyzed. Also, my arms and face would become paralyzed, I would not be able to talk or eat for 1 to 12 hours. When I was not paralyzed, I sometimes would not be able to talk and just studder repedetly.

The doctors have given me cat scans, MRIs, blood tests, and x-rays. They could not figure out what it was.

My suspicion is that I may be allergic to a very common thing, that can happen anywhere at any time and whenever I am around it something in my body gets paralyzed. As far as I know, I am allergic to nothing.

Please be open minded and consider any possibilities that it may be. I don't know if this helps, but I am a female.

Thank you for your help.

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1 Replies:

  • That sounds so lovely!Have they checked your thyroid antibodies? There's a rare complication of autoimmune thyroiditis called Hashimoto's Encephalopathy. Many patients with HE have completely normal thyroid hormone levels, and since antibodies are not checked unless the hormones are off first, many cases of both the thyroiditis and the rarer encephalopathy are missed.Most doctors have never heard of HE. It took me 8 neurologists to get diagnosed. It was only a subspecialist- a movement disorder specialist- who figured it out.HE is treatable with steroids.There are, of course, other neurological diagnoses that could explain your symptoms, but if you are running out of possibilities, I can almost guarantee you that they haven't looked for this one yet!HE could potentially explain the seizures, tremors, and the paralysis.Sorry you are having the randomly paralyzed body parts and the seizures. I hope you get an explanation soon.Best Wishes
    Anonymous 42,789 Replies
    • February 4, 2008
    • 00:56 PM
    • 0
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