Discussions By Condition: I cannot get a diagnosis.

Random syptoms for 3 years...miserable

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: agogo88
  • October 6, 2010
  • 09:33 PM

Hi there,

So I have a somewhat bizarre mix of symptoms that are making everyday life pretty uncomfortable. I am a 22 year old female, and have always considered myself to be a healthy person, but I feel like my body hates me these days.

Starting 3 years ago, I began to have difficulty swallowing. After about 6 months, this turned into having difficulty swallowing every time that I ate or drank anything. This continues to be the case. I hate eating out at restaurants because food and liquids get stuck and have to come back up at almost every meal. I love food and continue to eat enough to maintain my weight, but eating meals takes a long time and eating is quite uncomfortable.

About 9 months ago, I started getting REALLY bad rashes/eczema on my face and on the inside of my elbows. The skin around my mouth peels almost daily, and the skin above my eyes is almost always puffy, red, and wrinkly. It is very painful. The rashes on the inside of my elbows are probably about 4 or 5 inches in diameter, and usually slightly raised and very red. They calm a bit with cortisone treatment, but are always visible. More recently (about 1 month ago) I started getting rashes on my right hand. There is a large patch just above my pinky finger and I am losing my fingerprints on my first 3 fingers (skin is cracked and shiny, almost no fingerprint).

Additionally, I am always, always tired, regardless of how much sleep I get.

I maintain a healthy weight (I'm 5'5", 135 lbs) and I eat well. I have been to 2 gastroenterologists, a dermatologist, and an allergist. No one seems to have any answers except for steroid shots to calm my skin. I've had a balloon dilation and botox injection on my esophageal sphincter, but neither procedure caused any relief. I've had two upper endoscopy with biopsy and a barium swallow but none of these have provided information on my swallowing difficulties (other than that sometimes my esophageal sphincter sometimes does not relax after swallowing).

It seems likely that this is unrelated, but in high school I had severe panic disorder and was heavily medicated for a short period of time. I no longer suffer from panic disorder nor am I on any medication.

Any suggestions would be much appreciated. I am in the process of trying to figure out which type of doctor to try to see next. At the age of 22, these are very frustrating problems to have...

Thank you for your time.

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1 Replies:

  • My gastro said yesterday that rashes and anxiety disorder (I have) may be very rare esophagitis disease. He is sending biopsies to Mayo from upper endoscopy (ercp - couldn't make it down my throat). God bless u
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