Discussions By Condition: I cannot get a diagnosis.

Random Symptoms; can't find a diagnosis!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Athenaa21
  • February 16, 2010
  • 08:29 AM

I have been sick for about 10 months. At the time of my onset I was doing 3 different things which might attribute to my illness.

1. I was dealing in used clothing (thrift stores/salvation army) and touching clothes with God only knows what on them; reselling them to try to save my home.

2. My grandmother was in the hospital and dying of cancer. I was visiting her; being exposed to whatever could be in the hospital

3. Up north in a rural area where there was a farm/chicken coup which I walked into and began to clean (without a mask or other) and touched items, and breathed in the smell of feces/urine of every animal that could have possibly resided in this building in the 30 years it had been built. No living animals were in it at the time I entered; but several animals/rodents had made a home. there was various rat/mice droppings and other. It smelled like urine/death/decay, and in hindsight I absolutely should have worn a mask, but I was trying to clean my grandmother's estate and was upset and acting in haste; as other family members were not assisting leaving the task to me and my aunt; and it was a very large job.

The only other side note is I stayed in a home which I laid on a couch which smelled like cat urine. Cat urine from an 18 year old outdoor cat that had pee'd all over, and even on a pillow I laid on several times. I was not trying to be impolite, so I dealt with it. My grandmother had passed; it was a time for me to be disrespectful or rude.

My onset...

3 weeks after my grandmother passed, and directly after handling used clothing, and after the farm...

I developed stinging pains. The traveled around from my knuckle on my hand, to my scalp, would hit near my eye socket, and even my groin. They felt like a charlie horse, and stung. The quickly disappaited, and did not stay but a split second or two. I dismissed it; believing it was stress, or over exertion.

The second symptom I experienced in the pains reoccuring. This time they lasted a little longer, hit my legs, the scalp, near my eye socket again, hands, and in my backside. They lasted a little longer; but again.. dissapaited.

I then woke up one day (about 1 - 2 weeks later) with a stiff neck, like someone was CHOKING me. It was very taunt, tight.. and caused me much grief. I then got tinnitus. - it has alliviated only on a few occasions; but is pretty much with me 24/7.

I went to see a doctor, and he told me he believed I had a esutation tube dysfunction, and treated me with an inhailable steroid and amoxicillian.

The amoxicillain didn't take it away; but it did not seem to get worse.. it was no change.

After the amoxicillian, it started to progress. I know had a few bouts of vertigo, pain in the back of my head near the occipital lobe, pain in my ear, TMJ like sensation, and knots in my muscle in my abdomen area, arms, and they are lateral.. meaning if I have it on one arm, I have it on the other.

It seems like after the antibiotics, I got worse, when I wasn't taking them.

I started to have muscle twitches/jerks, sleeping issues, and RLS/tingling numbness in my legs mainly, and some in my arms on occasions.

I also have weird heart flutters/palpatations on occasion.

Everytime I discuss my issues with doctors, the first thing they do is default to my grandmother's death, and say I'm "depressed" or have "anxiety".

It is very frustrating as I was healthy before and never was sick more than two days, and now I've been ill fighting whatever this is for 2 months.

To date I have been tested for (and tested negative for)

ANA panel - negative
Scleroderma - negative
Lymphoma - negative
Blood counts - all good, high side of normal on white blood cell with no abnormalities; which they say is "stress"
T3/T4 - normal
ASE (something like this) - normal
C3/C4 - normal
MRI of my brain and auditory - high contrast - normal
MRI of my neck - normal
Ultrasound of thyroid - abnormal - 2 very small nodules; two small to byopsy
Autoimmune diseases of the thyroid - negative
Heavy Metals/Urine/Ketonins - all normal - even did a 24 hour pee in a jug collection of urine - NORMAL
disconnective tissue disorder - negative
Sjourens (something like that) - negative
and various other blood tests; 27 in all
EEG - normal
ENG - Normal
Auditory test/hearing/hearing with the clicking - Normal

I am getting another T3/T4 done this week; and an A1C as many in my family have type 2 diabetes MANY.. and a cymotgoublin (somthing like this) test. I am also scheduled for an EMG.

When I mention to them that I inhaled all that stuff in the chicken coup I am told that is fine, and that is not why I am sick.

My dog has also been ill, and was everywhere that I had went. she keeps testing positive for a bacterial infection (not identified) 3 times in 10 months, it has lead to pancreatitus, and now my dog is on insulin 2 times a day. It is not from table scraps, or a poor diet.. I feed my dog IAMS food, and she has pet insurance. She is a retriver mix and weighs 61 lbs, and is not overweight for her size. Pancreatitus can be caused also by a bacterial infection...

I wonder sometimes the correlation between her illness and mine. I have mentioned this also, and it is always dismissed.. it is upsetting to me. I have had a lyme titre but it was negative. I do remember having a few bites on my leg during this time... they hurt more than itched.

My current DX is GAD (generalized anxiety disorders) and good ole' Fibromylagia.. which is very upsetting to me..

I'm wondering if there is anything else.. lately I've had more ticks/jerks/spasms, and weird heart flutters.. not like with anxiety attacks/panic attacks.. this feels like someone is reaching in my chest and squeezing my heart for a few seconds..

My blood pressure is good.. my pulse does come back high on occasions, but I also have white coat syndrome since I have got sick, as I feel they are going to tell me horrible news or give me a test which will hurt very badly.

I'm very scared. I am a 34 yr old, non-smoking, non drug using, no kids/pregnancies, white female. I do not drink. My diet is poor at present, and I am overweight by at least 50 lbs I would say.. I suddenly gained allot of weight, I did have poor eating habits.. but it seemed to come on out of no where. Everytime my thyroid seems to come back normal....

I am looking for any input anyone could have as to what could be wrong with me. I want to get well, and reclaim my life. This situation has had me stuck, and feeling helpless, waiting to find out what will be my next symptom.. and next for the dog. I am not aware of anything being in my home that could be a problem. My younger brother lived here for 4 years; and does not have any health problems. Sometimes I also sense a tightness in my chest or but no coughing, or other..

Thank you for your help.

Reply Flag this Discussion

1 Replies:

  • I have been sick for about 10 months. At the time of my onset I was doing 3 different things which might attribute to my illness. 1. I was dealing in used clothing (thrift stores/salvation army) and touching clothes with God only knows what on them; reselling them to try to save my home.2. My grandmother was in the hospital and dying of cancer. I was visiting her; being exposed to whatever could be in the hospital3. Up north in a rural area where there was a farm/chicken coup which I walked into and began to clean (without a mask or other) and touched items, and breathed in the smell of feces/urine of every animal that could have possibly resided in this building in the 30 years it had been built. No living animals were in it at the time I entered; but several animals/rodents had made a home. there was various rat/mice droppings and other. It smelled like urine/death/decay, and in hindsight I absolutely should have worn a mask, but I was trying to clean my grandmother's estate and was upset and acting in haste; as other family members were not assisting leaving the task to me and my aunt; and it was a very large job.The only other side note is I stayed in a home which I laid on a couch which smelled like cat urine. Cat urine from an 18 year old outdoor cat that had pee'd all over, and even on a pillow I laid on several times. I was not trying to be impolite, so I dealt with it. My grandmother had passed; it was a time for me to be disrespectful or rude.My onset...3 weeks after my grandmother passed, and directly after handling used clothing, and after the farm...I developed stinging pains. The traveled around from my knuckle on my hand, to my scalp, would hit near my eye socket, and even my groin. They felt like a charlie horse, and stung. The quickly disappaited, and did not stay but a split second or two. I dismissed it; believing it was stress, or over exertion.The second symptom I experienced in the pains reoccuring. This time they lasted a little longer, hit my legs, the scalp, near my eye socket again, hands, and in my backside. They lasted a little longer; but again.. dissapaited.I then woke up one day (about 1 - 2 weeks later) with a stiff neck, like someone was CHOKING me. It was very taunt, tight.. and caused me much grief. I then got tinnitus. - it has alliviated only on a few occasions; but is pretty much with me 24/7.I went to see a doctor, and he told me he believed I had a esutation tube dysfunction, and treated me with an inhailable steroid and amoxicillian.The amoxicillain didn't take it away; but it did not seem to get worse.. it was no change. After the amoxicillian, it started to progress. I know had a few bouts of vertigo, pain in the back of my head near the occipital lobe, pain in my ear, TMJ like sensation, and knots in my muscle in my abdomen area, arms, and they are lateral.. meaning if I have it on one arm, I have it on the other.It seems like after the antibiotics, I got worse, when I wasn't taking them.I started to have muscle twitches/jerks, sleeping issues, and RLS/tingling numbness in my legs mainly, and some in my arms on occasions.I also have weird heart flutters/palpatations on occasion.Everytime I discuss my issues with doctors, the first thing they do is default to my grandmother's death, and say I'm "depressed" or have "anxiety".It is very frustrating as I was healthy before and never was sick more than two days, and now I've been ill fighting whatever this is for 2 months.To date I have been tested for (and tested negative for)ANA panel - negativeScleroderma - negativeLymphoma - negativeBlood counts - all good, high side of normal on white blood cell with no abnormalities; which they say is "stress"T3/T4 - normalASE (something like this) - normalC3/C4 - normalMRI of my brain and auditory - high contrast - normalMRI of my neck - normalUltrasound of thyroid - abnormal - 2 very small nodules; two small to byopsyAutoimmune diseases of the thyroid - negativeHeavy Metals/Urine/Ketonins - all normal - even did a 24 hour pee in a jug collection of urine - NORMALdisconnective tissue disorder - negativeSjourens (something like that) - negativeand various other blood tests; 27 in allEEG - normalENG - NormalAuditory test/hearing/hearing with the clicking - NormalI am getting another T3/T4 done this week; and an A1C as many in my family have type 2 diabetes MANY.. and a cymotgoublin (somthing like this) test. I am also scheduled for an EMG.When I mention to them that I inhaled all that stuff in the chicken coup I am told that is fine, and that is not why I am sick.My dog has also been ill, and was everywhere that I had went. she keeps testing positive for a bacterial infection (not identified) 3 times in 10 months, it has lead to pancreatitus, and now my dog is on insulin 2 times a day. It is not from table scraps, or a poor diet.. I feed my dog IAMS food, and she has pet insurance. She is a retriver mix and weighs 61 lbs, and is not overweight for her size. Pancreatitus can be caused also by a bacterial infection...I wonder sometimes the correlation between her illness and mine. I have mentioned this also, and it is always dismissed.. it is upsetting to me. I have had a lyme titre but it was negative. I do remember having a few bites on my leg during this time... they hurt more than itched.My current DX is GAD (generalized anxiety disorders) and good ole' Fibromylagia.. which is very upsetting to me.. I'm wondering if there is anything else.. lately I've had more ticks/jerks/spasms, and weird heart flutters.. not like with anxiety attacks/panic attacks.. this feels like someone is reaching in my chest and squeezing my heart for a few seconds..My blood pressure is good.. my pulse does come back high on occasions, but I also have white coat syndrome since I have got sick, as I feel they are going to tell me horrible news or give me a test which will hurt very badly.I'm very scared. I am a 34 yr old, non-smoking, non drug using, no kids/pregnancies, white female. I do not drink. My diet is poor at present, and I am overweight by at least 50 lbs I would say.. I suddenly gained allot of weight, I did have poor eating habits.. but it seemed to come on out of no where. Everytime my thyroid seems to come back normal....I am looking for any input anyone could have as to what could be wrong with me. I want to get well, and reclaim my life. This situation has had me stuck, and feeling helpless, waiting to find out what will be my next symptom.. and next for the dog. I am not aware of anything being in my home that could be a problem. My younger brother lived here for 4 years; and does not have any health problems. Sometimes I also sense a tightness in my chest or but no coughing, or other.. Thank you for your help. It sounds like from stress you developed "heat" in the large intestine and gallbladder. in Chinese medicine those areas go through the side of your neck, across the eye sockets, down the ribcage, through the sides of thighs, to the ring toe...and the large intestine area goes through the jaw, down the sides of the arms into the ring finger. The onset of being outdoors, and stress, could have brought a wind into an area over heated. Do some yoga poses that stretch you side to side with strong open arms, like triangle pose, and poses that open the chest area and relieve the neck like cobra, or camel pose...that will break the stagnating energy out of the channels that are blocked. our eating should then return to normal as well.
    Anonymous 42789 Replies
    • February 17, 2010
    • 07:52 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.