Discussions By Condition: I cannot get a diagnosis.

RA or Lupus?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: VinniV
  • January 5, 2008
  • 09:39 PM

I started having aching joints in my fingers and toes (mainly PIP and MCP joints but occasionally DIP joints) and some stabbing pain in my fingers on December 10th. My fingers and toes get cold very easily which I never noticed until now. I had severe stabbing pain in my right hip for a few days but hasn't happened since as well as occassional shooting pain down my arm from my elbow, in my knee, wrist and also if I'm cold in my ankle too.

03/01/08 and 04/01/08 I also when experiencing stabbing pain in my finger noticed that a very dark blue vein appears at the surface of my skin and then starts to surface down the side of my hand to my thumb and then in all my other fingers. It's very obvious when it happens and also turns the skin over the joints of my fingers blue (like when you cut your blood circulation off).

Prior to the onset of my symptoms I was getting tired easily and my boss wanted me to see the doctor because she thought I had a problem. I have no swelling or fever but have been having headaches on and off. My WBC and RBC are both normal however my symptoms sound similar to Rhuematoid Arthritis. I get occassional stiffness in my fingers and toes, more so my fingers which occurs more when I've rested for a while. Exercise and movement creates no pain and I have no trouble at present with everyday tasks. I'm starting to feel generally unwell and have been told to keep an eye out for rashes or organ trouble as it could be early onset Lupus. Today I noticed while out walking that I got out of breath quickly even though it was warmer today than it has been for the past few days.

Does this sound like RA or Lupus, or does anyone have any ideas as to what it could be? Thanks for your help.

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5 Replies:

  • IME both Lupus and RA can actually in some cases be Lyme.You may want to check out www.lymenet.org and talk to some and search some at that site. If you can find and access Klutzo, she is a gem. Tell her ralph says hi.
    Anonymous 42789 Replies
    • January 6, 2008
    • 04:32 PM
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  • I don't think it's lyme because I live in the UK and have no bite marks.
    VinniV 4 Replies
    • January 6, 2008
    • 08:38 PM
    • 0
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  • Lyme is not just in the US. And you do not need evidence of a tick bite, other insects can and do carry it. Regular docs really do not have a clue about how Lyme is spread and how serious it can be. Traditional testing at regular hospitals is pretty much useless - the only ones I would really trust are Bowen Labs or Igenex lab. The lyme bacteria and variants of it can be found in many areas in the world. Seriously, visit www.lymenet.org and talk to some of the posters. See if there are any from the UK. I have studied Lyme, treat patients with it, and have it myself. If you were to wait 5 or 10 years and then find out you have had it all along, you will probably be in much worse shape then. Might it be better to be cautious about this ?
    Anonymous 42789 Replies
    • January 6, 2008
    • 08:54 PM
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  • New symptoms.1. Shooting pain not just in the joints of my fingers but in bone/muscle (?) too. Sounds to me like a nerve disorder. Can RA, Lupus or Lyme cause shooting pain?2. I also am experiencing cold fingers and toes, my cold toes can be felt through my socks and my left hand is colder than the right hand. Raynaud's disease?3. My oral temperature despite being in a warm room and wearing a jumper has been 36.1c/96.9f, increased to 36.5c/97.7f this afternoon and now is 35.9c/96.6f. This seems a tad low and fever is consistant with the above conditions not a lowered temperature.
    VinniV 4 Replies
    • January 9, 2008
    • 02:19 AM
    • 0
    Flag this Response
  • Lyme is not just in the US. And you do not need evidence of a tick bite, other insects can and do carry it. Regular docs really do not have a clue about how Lyme is spread and how serious it can be. Traditional testing at regular hospitals is pretty much useless - the only ones I would really trust are Bowen Labs or Igenex lab. The lyme bacteria and variants of it can be found in many areas in the world. Seriously, visit www.lymenet.org and talk to some of the posters. See if there are any from the UK. I have studied Lyme, treat patients with it, and have it myself. If you were to wait 5 or 10 years and then find out you have had it all along, you will probably be in much worse shape then. Might it be better to be cautious about this ?I was wondering how long you have had Lyme Disease and if it can be cured if it is at a later stage. I understand it would be with a great deal more diffuculty. I was also wondering if you could tell me what other insects pass Lyme. Can moskitos? I am having many of the same symptoms but a year before the joint pain i had terrible headaches and chest pressure. I felt like I was on another planet half the time and it was very hard to concentrate. I had looked at Lyme almost 2 years ago as I have been having issues for 3 years now but the doctor said it would not be Lyme. I am getting tested but am concerned about the value of the test. If you have any other pointers or information to share It would be appreciated.
    Anonymous 42789 Replies Flag this Response
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