Discussions By Condition: I cannot get a diagnosis.

Questions about possible APS and DVT

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Traceybrooks
  • August 20, 2009
  • 10:11 PM

Here's my long story, short...

In 1993 I was tested and diagnosed with APS at a high risk pregnancy clinic in Toronto, due to many miscarriages and a still birth. I've had 4 successful pregnancies, with treatment of low dose aspirin and heparin (my last pregnancy) - all because of the diagnosis of APS. I also suffer from many other symptoms of APS, Sore joints, migraines, many Lupus like symptoms. Three weeks ago I was walking down the stairs, and my calf "popped" and pain and swelling went through my calf. I went to the Emerg. and they diagnosed me with a torn calf, three weeks later I still could not walk on my leg - and the pain and swelling only increased. This past Saturday I returned to the Emerg. where they gave me an ultrasound to rule out a DVT, due to my APS - turns out they found a DVT. Yesterday I met with a specialist, and he said some things I found very confusing. First off - he wasn't worried because the clot is in my mid calf which is smaller veins, so not considered an Emergency. (here's where it gets confusing) BUT he then said...with my APS this 'ups' the risk of the clot. Then he went on to say that even though I tested positive for APS in 1993 (and have related symptoms), he doubts that I have it - and wants me retested.

My question is - is there a possibility that my positive test, could've been wrong? I mean- why would they've treated me, if they weren't sure. Wouldn't my having a DVT coincide with having APS? I'm so confused now - really worrying and wondering about my past and present health issues!

If you have any suggestions or advice, or if you can direct this to the proper place - it would be greatly appreciated.

Thanks in advance

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