Discussions By Condition: I cannot get a diagnosis.

Questions about Fibromyalgia. Wow thats hard to spell, harder to Diagnose I hear?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • October 3, 2008
  • 03:51 AM

Hello All,

I've suffered a long time from pain that doesn't seem to have a real diagnosis. I've been diagnosed with many other things in the past but after all the C.A.T scans and M.R.I'S and being pinched and prodded given medication, having needles stuck in me, physcial therapy that made things worst. Then of course making a lot of Doctors rich along the way until eventually the doctor always changed their diagnosis, and then once diagnosed they send me over to another Doctor and the process would begin again, test after test after the same test.

Now I feel like I'm going my final round, I have one more doctor (the last one said he didn't know what was wrong with me, so I should find a Doctor who could, well at least he sent his wife out to tell me, I never really got to see him again, guess I really scared that one away)! :)

Seriously, I don't want to go to anymore Doctors (after this last one I'm seeing). I'm tired of going to doctors and just having them tell me what I already know, "you have pain but we can't figure out why"?

So maybe I can get some input from the people here, how do I find out what I have, could it be fibromyalgia? How would I tell my doctor to look for this kind of disorder? I know I'm sore all over, tired, my joints hurt, my head hurts, etc. You name it and its been hurting and making me very tired for about three years now. But I'm no good for my family or myself as I am now.

I heard of fibromyalgia recently, it is the one disorder I have never been diagnosed with nor did I really think about until I heard that two cousins of mine have it, and a friend of ours, all their complaints sound a lot like mine.

That's what I need to know, how do I know I have it, maybe I don't but it sure sounds like it, and how do I explain it to the Doctor and make sense so she'll listen? I just want them to test me or "whatever" needs to be done, so that we can either rule this in or out of my life? Either way the problem is painful and I'm so tired of the negative medical treatment which I have received thus far.

So I'll be waiting to hear from you, any advice is better than none after all it's my body that's feeling this miserable pain and so far the Doctors have been no help at all, so I'm ready to listen to the people who suffer from pain and get your take on this?

I can't thank you enough for listening.
God Bless and be well!

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2 Replies:

  • It kind of sounds like some sort of fibromyalgia or chronic pain, try this website www.butyoudontlooksick.com
    qwertyuiop123 453 Replies
    • October 4, 2008
    • 04:05 AM
    • 0
    Flag this Response
  • www.fibrohugs.com good site. I have been diagnosed since 1992 altho I know Ive had it longer. It wont turn up in blood work, xrays, biopsy, Cat or MRI scan. For Dr to diagnose u have to have 8-11 tender spots or trigger points on body. If u type in Fibromyalgia in google it will show u on most sites where these places are on body. Alot of Drs dont believe that it exists and some believe its psychological, or that some think ppl with FMS are just pill seekers and dismiss them. Pain meds dont do squat for pain altho there are many new antidepressants that seem to help some of the symptoms. Its a very sad medical community who are not educated on how debiltating this can be to ppl who have or ppl who love them cus we all look quite normal but certainly dont feel it. Western Medicine will send u off to someone else cus they dont want to know it exists or cant be bothered Good Luck hon As EvErCat
    kitcat48 80 Replies
    • October 4, 2008
    • 02:42 PM
    • 0
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