Discussions By Condition: I cannot get a diagnosis.

pulsating/tingling sensations blue/red feet need suggestions

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: wl138gr
  • November 23, 2008
  • 05:05 AM

I have a horrible dr and live out in the middle of nowhere and need help trying to figure out which type of dr I should go to. Everyone I've seen has dumped me as soon as the test came back normal.
I am now closing on 30 years of age. My symptoms started around 2003. I was in the shower I looked down and my feet were a dark blue/purple color. I'm not sure what my symptoms were leading up to that or how sudden it happened. I did have some strange bumps on my feet that were hard red and hurt when I touched them prior to that. Which I now believe were the warning signs that something was going wrong. Now my symptoms are
If I sit or stand in one place my feet slowly change to the blue/purple color starting at my toes and working all the way up past my knees. The time is not consistent and it happens much quicker sometime then others. My feet feel cold like they are in ice water my sense of touch diminishes then I begin to have a dull ache as it time goes on. When I walk they change back to normal.
If I exert myself like running or aerobic exercise or just walk to far they turn red and burn. I believe there is a small amount of swelling as it feels like it when I bend my toes. Stress and heat seem to make it happen quicker.
I have strange tingling/vibrating/pulsating sensations in my hands and feet.
I seem to be tired all the time.
I slur my words when I get tired and have brain ****s. This may just be insomnia and boredom or a symptom of whats wrong with me.
I have gone to a cardiologist and have no heart problems.
I have been to a rheumatologist who ran $2500 worth of blood testes and I have no connective tissue disorders and I don't have raynaud's disease.
I saw a vascular surgeon who just chased me away after feeling a strong pulse in all of my extremities.
I had a venous duplex and everything looked normal.
I do not have diabetes.
I have never had limb weakness.

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11 Replies:

  • Have you gotten any responses for this question? A family member of mine has all the same symptoms except the red bumps and she can't find a doctor who can diagnose either! Please post a reply if you have any further information on this. Thanks! Christine
    Anonymous 42789 Replies Flag this Response
  • Actually I have had no luck at all getting a diagnosis. I got angry and stoped going to the dr. After 20k worth of bills and hitting dead ends. They didn't even try and refer me to anyone else. The only thing I was told was that I should go to the mayo clinic. if you find anything out I'd love to hear from you. I have only had the red bumps twice and my dr perscribed steroids which got rid of them. Have you gotten any responses for this question? A family member of mine has all the same symptoms except the red bumps and she can't find a doctor who can diagnose either! Please post a reply if you have any further information on this. Thanks! Christine
    wl138gr 8 Replies Flag this Response
  • Hello, wl138gr;I am curious as to what your weight and height is? These will definitely help us in diagnosing your illness, but based on the information you've given me I believe you just have Peripheral Vascular Disease (Poor Circulation.) Poor Circulation is where when you sit or you are motionless for a certain period of time and your extremities turn secular color. The reason why your extremities (your feet, hands, etc) turn blue-purple color is due to lack of oxygen through the blood stream. As for when you're running the burning you feel could possibly be the fact that you do not exercise on a regular basis OR that you're overexerting yourself.I recommend that you go here for more information about poor circulation, and I also recommend taking it easy with the exercising. Do simple things, stretches before a 10-30 min walk, a few push ups, and eating nutritional things such as things with fiber (Malt-O-Meal's Cream of Wheat is really delicious and healthy for you) as well as eat your fruits and veggies and drinking a lot of water. Before you just take a 30 min walk, work your way up. Walk for 10 minutes 3 times a week, stretch every day, and as the weeks continue increase your time walking by 5-10 minutes.Here is a link to poor circulation: http://www.epodiatry.com/poor-circulation.htmTake it easy and I hope this helps.(As a note I am to mention that I am not a registered doctor/nurse but have a lot of medical knowledge due to my family and friends being in the medical field. Before you do any of what I mention confirm that you have it with a doctor.)ALSO! So you know a doctor is not supposed to turn down patients unless you cannot afford the doctor. Being turned down by a doctor when you can afford is illegal. (If you live in the United States, although I've heard it's different in Canada).
    Tiedye 31 Replies Flag this Response
  • I am actually a health food "nut" I have always eaten extremly healthy and have always exercised. I am 6 foot tall and weigh 135 pounds I bench press 240 pounds. I lift weights every other day and walk nearly 3 miles in short increments every day. the walking is to keep my legs from becoming discolord. I usually get up every commercial break and pace around my house. I have a strong arterial pulse and the veinus duplex showed now blockages of any kind. Hello, wl138gr;I am curious as to what your weight and height is? These will definitely help us in diagnosing your illness, but based on the information you've given me I believe you just have Peripheral Vascular Disease (Poor Circulation.) Poor Circulation is where when you sit or you are motionless for a certain period of time and your extremities turn secular color. The reason why your extremities (your feet, hands, etc) turn blue-purple color is due to lack of oxygen through the blood stream. As for when you're running the burning you feel could possibly be the fact that you do not exercise on a regular basis OR that you're overexerting yourself.I recommend that you go here for more information about poor circulation, and I also recommend taking it easy with the exercising. Do simple things, stretches before a 10-30 min walk, a few push ups, and eating nutritional things such as things with fiber (Malt-O-Meal's Cream of Wheat is really delicious and healthy for you) as well as eat your fruits and veggies and drinking a lot of water. Before you just take a 30 min walk, work your way up. Walk for 10 minutes 3 times a week, stretch every day, and as the weeks continue increase your time walking by 5-10 minutes.Here is a link to poor circulation: http://www.epodiatry.com/poor-circulation.htmTake it easy and I hope this helps.(As a note I am to mention that I am not a registered doctor/nurse but have a lot of medical knowledge due to my family and friends being in the medical field. Before you do any of what I mention confirm that you have it with a doctor.)ALSO! So you know a doctor is not supposed to turn down patients unless you cannot afford the doctor. Being turned down by a doctor when you can afford is illegal. (If you live in the United States, although I've heard it's different in Canada).
    Anonymous 42789 Replies Flag this Response
  • I am having the same symptoms which began in April '09. I have seen 5 doctors so far. I am currently seeing a hematologist, as some blood disorders cause these symptoms. It seems crazy that a blood disorder can cause red feet, but I fould some info on the web about it. It is miserable. I sit all day at work, and then have to put my feet up all night because they burn and swell. I am 5'2" and weigh 120. I love to walk, hike, and bike, which I cannot do now. I do not have a vascualar problem (been tested). No power lines have recently been installed in my neighborhood. I do not have a heart problem, and have seen a rhuematologist. He referred me to the hematologist. This guy seems to at least have a few ideas. He is testing blood and urine for abnormal proteins and antibodies. I will post his findings. I am thrilled to know I am not the only one who is having this problem. All the doctors look at my feet, and shake their heads.
    Anonymous 42789 Replies Flag this Response
  • Hello, I have a similar problem. I do have low peak flow, i.e. 350-400 - it used to be very good. Also, I have extreme constipation problems, with a lot of trapped gas. I have electro sensitivity, but undiagnosed by a doctor. Recently I was on antibiotics and saw a very slight improvement. I have cut out salt, seems to make it worse. But the problem is still very bad and getting worse. I also have high blood pressure when standing and am told low when lying down - my heart specialist is sending me for neurological tests but personally not sure if this is the right direction. When standing in the heat also my veins in hands and feet stand out like varicous veins and in the cold my hands and feet are pale or blue/purple. Also, the last phalanx of my fingers remains more normal, like the flow is blocked to the last joint.
    Laikastar 1 Replies Flag this Response
  • wl138gr not sure if my name will show up in this post since it didn't in the others. I'm actually on dis for it. It is so bad that I just can't work around it. I need control over when I can sit or stand. I dont' know about a blood disorder. The rheumatologist said all of my blood tests were normal. I have however had white cells or protien in my urine every time it was tested. Hope to hear more from you I'd love to find out more. I've been going on 7 years or so. I'd like to get back to normal if possible. I am having the same symptoms which began in April '09. I have seen 5 doctors so far. I am currently seeing a hematologist, as some blood disorders cause these symptoms. It seems crazy that a blood disorder can cause red feet, but I fould some info on the web about it. It is miserable. I sit all day at work, and then have to put my feet up all night because they burn and swell. I am 5'2" and weigh 120. I love to walk, hike, and bike, which I cannot do now. I do not have a vascualar problem (been tested). No power lines have recently been installed in my neighborhood. I do not have a heart problem, and have seen a rhuematologist. He referred me to the hematologist. This guy seems to at least have a few ideas. He is testing blood and urine for abnormal proteins and antibodies. I will post his findings. I am thrilled to know I am not the only one who is having this problem. All the doctors look at my feet, and shake their heads.
    wl138gr 8 Replies Flag this Response
  • wl138grI don't know about bowl problems I eat a lot of fiber because of hemorrhoids. My veins stand out quite a bit. They are raised at least a quarter inch. Hello, I have a similar problem. I do have low peak flow, i.e. 350-400 - it used to be very good. Also, I have extreme constipation problems, with a lot of trapped gas. I have electro sensitivity, but undiagnosed by a doctor. Recently I was on antibiotics and saw a very slight improvement. I have cut out salt, seems to make it worse. But the problem is still very bad and getting worse. I also have high blood pressure when standing and am told low when lying down - my heart specialist is sending me for neurological tests but personally not sure if this is the right direction. When standing in the heat also my veins in hands and feet stand out like varicous veins and in the cold my hands and feet are pale or blue/purple. Also, the last phalanx of my fingers remains more normal, like the flow is blocked to the last joint.
    wl138gr 8 Replies Flag this Response
  • Hello, I have a similar problem. I do have low peak flow, i.e. 350-400 - it used to be very good. Also, I have extreme constipation problems, with a lot of trapped gas. I have electro sensitivity, but undiagnosed by a doctor. Recently I was on antibiotics and saw a very slight improvement. I have cut out salt, seems to make it worse. But the problem is still very bad and getting worse. I also have high blood pressure when standing and am told low when lying down - my heart specialist is sending me for neurological tests but personally not sure if this is the right direction. When standing in the heat also my veins in hands and feet stand out like varicous veins and in the cold my hands and feet are pale or blue/purple. Also, the last phalanx of my fingers remains more normal, like the flow is blocked to the last joint.Oh my gosh, I have the exact same symptoms you do - I mean, to a T. The only difference is that my feet are blue/purple when I sit or stand (regardless of Temp), but then burn and turn bright red if I am warm at all.Have you ever figured out what this was?
    Anonymous 42789 Replies Flag this Response
  • Hi,I just came across your entry. Can you tell me how you are now doing. Your symtoms sound just like mine do.Did you every get a diagnosis?Thank you.I have a horrible dr and live out in the middle of nowhere and need help trying to figure out which type of dr I should go to. Everyone I've seen has dumped me as soon as the test came back normal. I am now closing on 30 years of age. My symptoms started around 2003. I was in the shower I looked down and my feet were a dark blue/purple color. I'm not sure what my symptoms were leading up to that or how sudden it happened. I did have some strange bumps on my feet that were hard red and hurt when I touched them prior to that. Which I now believe were the warning signs that something was going wrong. Now my symptoms are If I sit or stand in one place my feet slowly change to the blue/purple color starting at my toes and working all the way up past my knees. The time is not consistent and it happens much quicker sometime then others. My feet feel cold like they are in ice water my sense of touch diminishes then I begin to have a dull ache as it time goes on. When I walk they change back to normal. If I exert myself like running or aerobic exercise or just walk to far they turn red and burn. I believe there is a small amount of swelling as it feels like it when I bend my toes. Stress and heat seem to make it happen quicker. I have strange tingling/vibrating/pulsating sensations in my hands and feet. I seem to be tired all the time. I slur my words when I get tired and have brain ****s. This may just be insomnia and boredom or a symptom of whats wrong with me.I have gone to a cardiologist and have no heart problems. I have been to a rheumatologist who ran $2500 worth of blood testes and I have no connective tissue disorders and I don't have raynaud's disease.I saw a vascular surgeon who just chased me away after feeling a strong pulse in all of my extremities. I had a venous duplex and everything looked normal.I do not have diabetes.I have never had limb weakness.
    Anonymous 42789 Replies Flag this Response
  • Hi. I wanted to know if there is an update on the diagnosis for this. I've been experiencing it as well for the last 2 weeks and it freaked me out reading that some of you has it for years now.
    It started as some sort of redness, itchiness, slight elevation and increased temperature after walking. I didn't really had a long walk though. There were also small bumps that seems to have air/fluid inside. 10 days after it got worse, it started spreading to the dorsum of my foot and to my toes. It started swelling as well. Severe itchiness and burning sensation occured. I had blister the morning I was admitted and they gave me antibiotics. I was diagnosed with cellulitis but it doesn't seem like it. Swelling and blister subsided. I noticed everytime I stand or when my foot is down, it turns bluish/purple.

    Been to quite a number of doctors and they can't diagnose it. Theu pretty are not sure pf what is it.
    It would be a big help if someone does respond.
    Thank you.
    Anonymous 1 Replies Flag this Response
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