Discussions By Condition: I cannot get a diagnosis.

Pudendal Nerve? Mom getting worse each day, someone please help...anyone

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: MouseOB
  • March 22, 2011
  • 02:27 AM

May 10th of last year my Mom started having lower abdominal and vaginal pain. It became so bad by the first of June that she could not sit for longer than 5-10 minutes at a time. By July she had had X-Rays, Blood Work and an Ultra Sound that all showed nothing. The pain was now so bad that even on short car trips she had to lie on her side. In August 2010, doctors did a bone biopsy of her sacrum after seeing a “hot spot” on an X-Ray. Nothing. (At least it wasn’t cancer.) By October she had to cut back her work hours and was standing or laying down, not ever sitting. The vaginal pain is excruciating and over the past 6-8 weeks she has started to have abdominal “attacks” that are similar to IBS attacks except that she has nothing in her bowels to move. So it is like a cross between IBS and an ulcer, except there is no ulcer. It gets so bad that unless she slams herself with pain medication and anti-anxiety medication at the beginning of the attack and gets to bed with either my Dad or myself there to hold her, it will take her to a full-fledge panic attack. She just had a lower-back MRI that only showed some Arthritis, which is normal for a 63-year-old woman. She has fibromyalgia. This is not that. Her Physical Therapist thinks that it is the Pudendal Nerve. But she is the first and only one in 10 months to give us anything, and as a PT, she said she couldn’t fully diagnose. Now the pain is so bad, standing and walking is as painful as sitting, so the only time she gets any relief is when she is on her side in bed. Someone, please help.

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  • I am sorry I really do no have time to stay here, I am taking care of a severely disabled person, but your post caught my eye. I had very similar problems to those you describe here and I have sorted them out to a mangable level, and I now do not need any medication. Anyway the site that helped me was http://health.groups.yahoo.com/group/fibromyalgiacured/ They do not sell anything there Kind regards Joanne
    joannesford 2 Replies Flag this Response
  • There is a test that can be done, that would tell the Doctor which nerve it is that is Signaling the Brain that pain is present. I do believe this could be nerve pain. It is very similar to the Pain I have from a Herniated Disc in my thoracic spine. I developed Cauda Equina Syndrome and Damaged several nerves through out my lower half. This Pudendal Nerve is one on my Doctors list to check when Im well enough.The name of the Test is EMG , The way it is done, is by placing Needles in the area where pain is present and gathering data on by sending electrical activity through th nerves, then watching to see what happens. A Doctor can find which nerve is sending electrical activity incorrectly or not at all. It is only mildly uncomfortable. You can find info here.http://www.emgtest.com/html/the_emg_test.htmI wish the best of Luck to your Whole Family. Please update us once you find out the Diagnosis.
    KymBerly 3 Replies Flag this Response
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